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Fridacare Asked November 2021

Parkinson’s dementia, advice?

How does anyone deal with a Parkinson’s patient with dementia (88 years old and unstable on her feet) who constantly gets up in the middle of the night to go to the bathroom, undress, walk around. During the day she can’t even stand or walk without help. But at night she is very active and I am burning out getting up to help her. Seriously, often it’s only five minutes after I’ve gotten her to the toilet tucked her in bed!

Kantankorus Nov 2021
Her night time activities may be automatic (learned behaviour) where in the mind her function is completely normal (how nice if you could just reverse night and day!) and the body responds accordingly (similar to sleepwalking?).
My LBD dad (similar issues) couldn't climb 5 steps in rehab - back home he virtually hop, skipped, and jumped his way to the top of the stairs in comparison, literally the very next day!
Melatonin could help provide a more settled night's sleep (but timing the dose takes a little trial and error to avoid overrun into the next day).

againx100 Nov 2021
You can't keep her from getting up. You need sleep. So therefore, you need help. Or she needs to be placed somewhere.

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Ariadnee Nov 2021
Time for a memory care facility. Time to hire someone for the night shift to monitor her movements. Time for respite care for you. Time to start making changes.

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