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Jblasing Asked December 2020

My mom had unexpected shoulder replacement surgery and is resistant to a caregiver at night. I’m burnt out and need help but she’s resisting.

My mom is an active, independent young 70! She lives alone and passed out at home and we think she fell down the stairs. She suffered a severe concussion and ended up having shoulder replacement surgery. She was discharged from the hospital one week ago and I’m caring for her 24/7. She’s definitely starting to move around and uses the bathroom on her own etc... BUT I’m so paranoid she’s gonna have a fall again! I have my own family, took a leave from my job to care for her, and our youngest son (who is 18) has high functioning autism and still needs me and a regular schedule. I asked her if she would be ok with me hiring a caregiver at night so I can go home (and be here during the day). She initially agreed but then said no the next day; she doesn’t want anyone here she doesn’t know. I’ve explained that this is only temporary; I’m thinking 2 weeks at most but she isn’t budging. How do I handle this?

funkygrandma59 Dec 2020
You have to do what's best for you and your family first, and if that means hiring an aide to come spend the night with mom, then do it. Mom really doesn't have a say in it anymore, so don't ask her, just tell her that an aide will be starting soon, and that you cannot continue with her 24/7 care. You have to take care of yourself and your family, and be able to get some rest to be able to continue helping mom.

I am needing a shoulder replacement, and was told that I would not be able to move my shoulder/arm for a good 3 months, so moms care will continue for quite a while yet, so please take care of yourself (and your family), and get mom the additional help she will need. Best wishes.

AlvaDeer Dec 2020
I agree with all below. She should be in rehab. And if she will not accept the help you need to tell her that you will have to withdraw your own services and she may have to "go into care" until more healed. I think the problem is that you are asking here, and accepting her answer that no this isn't what she wants. Well, YOU didn't want her to fall and mess up her shoulder, either, but hey, that is life and she did it. If she can't cooperate then you can't participate. Sadly sometimes you have simply to lay down the law.

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Beatty Dec 2020
Your Mother has the right to refuse in-home help.

She does not have the right to insist YOU are the home help.

Make this distinction clear.

(I am dealing with same concept).

Does she need to use the stairs at night? Where is the bathroom? Work on improving safety with lighting, no rugs, wellfitting slippers.

Countrymouse Dec 2020
Your mother can figure this one out for herself.

You are going home, where you are needed, on [date]. She must decide on and source whatever support she thinks she will require after that. Her problem, not yours.

NeedHelpWithMom Dec 2020
I totally agree with funkygrandma on this one. Your family comes first.

Don’t ask but tell her. She is resisting because she knows that she can.

Tell your mom, ‘I am going to sleep at my home, not yours, I have hired help to stay with you.’

She won’t any other choice but to accept it.

When my children were young, I took them to the neighborhood park with their friends to play.

When it was time to leave, I gave them a count down of five minutes.

If my children were resistant to leaving, I got up and started walking towards the car. They would come running behind me.

Give choices for less important issues. Don’t give a choice when there isn’t a choice.

Mom may be resistant. You still have control. She cannot manipulate unless you allow it.

You have been kind and generous. It’s a new day! Mom will get used to it.

My husband’s grandfather would fire his live in caregivers everyday.

The caregivers were told by my father in law to ignore it and continue to stay on the job.

They were paid generously to compensate for his grumpy behavior.

Start looking for help. Tell mom that you found a lovely woman to help.

Warn the caregiver of her resistance. Be extra kind to the caregiver.

I’m sure she is used to dealing with all kinds of personalities! Give her a Christmas bonus!

Good luck!

Taarna Dec 2020
I am pretty sure she is high-functioning. I can understand her reluctance to have some stranger wandering about her home while she sleeps - creeps me out too.

You are concerned that she will fall again without anybody there to help her. The fact is that she can fall again after 2 weeks - alone or with somebody there. It would be better to have her evaluated by her doctor to understand her fall risks: medications, needing to toilet in the middle of the night, cardiac problems, mobility problems.... Once you know what probably contributed to the fall, you can address minimizing her risks.

Since she has had a joint replacement, she will need daily physical therapy sessions. It appears that you will not be able to be transport for all those appointments. May I suggest that you set up transportation through the county/province transportation system, Uber or the like. If she needs assistance with bathing, dressing... her insurance will probably cover having home health visits for the period of her recovery.

If none of these can be arranged, her best option may be to go to rehab facility until she has regained optimal function and strength.

MargaretMcKen Dec 2020
A couple of questions:
Can your mother have a commode next to the bed, so that she doesn’t need to walk to the toilet?
Does your mother know that with low blood pressure, before she gets up to walk, she needs to sit on the side of the bed for five minutes to avoid fainting?
If she does get out of bed, are there things (furniture, rails etc) for her to hang onto?

None of this is great, but if you are seriously stuck they could be better than nothing. At least you’ve tried!

lealonnie1 Dec 2020
I don't know how you can hire a nighttime caregiver for your mother if she refuses to let her in.......right? She can send the person home & say No Thank You, and that ends THAT in a hurry. Therefore, unless I'm missing something here, your mother HAS TO agree to having a nighttime caregiver, otherwise, you can't force one on her. What you can & should do, however, is tell her you can no longer be her personal caregiver, your family needs you.

Why was she not sent to rehab like PeggySue mentioned?

What worries me is why your mother passed out & fell down the stairs in the first place? Did the tests at the hospital determine the cause for such an incident? Did she have a seizure? Is she a big drinker?

In any event, wishing you the best of luck trying to convince your mother she needs a bit more help than SHE thinks she needs!!
NeedHelpWithMom Dec 2020
Rehab is best! Not sure why not.

I would supply a key! LOL
ExhaustedPiper Dec 2020
My mom also had a shoulder replacement at your mom's age, before she got dementia, and she was living in a different town in her own place that also had stairs. She needed the replacement because she was hit by a car and badly fractured her shoulder.

I went and stayed with her for about two and half weeks, and that included her hospital stay.

My mom was very much like caroli, she went to PT outside the home 2 X a week and did exercises at home with the pulley rope. She got good at using the shoulder immobilizer and her biggest complaint was also using the blow dryer.

I was very comfortable leaving after 2.5 weeks.

For your mom I'd be more worried about the possibility of another seizure, when does she see the neurologist? Was she put on any seizure meds?

My mom also developed a seizure disorder following a stroke in later 2016. Her first seizure came when she was back home. She had a fall and was alone, luckily there were no serious injuries. She managed to call a friend after but was so disoriented at the ER she was immediately evaluated for another stroke. Long story short she's been on seizure meds since and there have been no other seizures.

Because of the possibility of a new seizure disorder it might be wise to have your mom in rehab until she is fully cleared to be alone.

Your mom doesn't have dementia, so reason with her. Let her know your son, her grandson, needs you at home.

JoAnn29 Dec 2020
I am with caroli1 here. As I responded, my brother, 64, just had rotor cuff surgery. He was home not long after. Therapy can be done in home or out patient. My Mom broke her shoulder. No rehab but once it healed she did have therapy. OPs Mom is only 70. Last place I would want to be is rehab.

I found a while back not to ask, tell. "Mom, I can no longer stay here. I need to get back to work and Tommy needs me. I am a little paranoid about you falling again. I would feel so much better if someone was here during the night." Automately its her decision.

You wouldn't have to hire a CNA. I had a woman who helped with Moms bathing. She was not certified but had experience caring for people. I would say for a nighttime shift where the aide would sleep, maybe $10/15 an hour. At 70 don't think Mom will need Medicaid in the next 5 years so can pay under the table. (please no comments this is done all the time)

Is Moms house set up where there at least is a powder room on the main floor. Maybe set up a twin bed somewhere on the main floor. Its just temporary.

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