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MomsBrain Asked August 7, 2025

Medicaid waiver - how to get that second doctor letter?

Trying to figure out where to get a SECOND doctor letter to prove my mom's dementia for a Medicaid waiver to help pay for her group home. GP was no problem but her only other recent doctors are: dentist, optometrist and podiatrist.
She's so darned healthy, it's just this dementia.... and her dwindling funds, I swear she will out-live me, but her $ won't.
I have a message out to dentist, but podiatrist office said no and so I'm not hopeful (although they ARE doctors and they can definitely tell she has dementia, so ... I don't think it's crazy to ask, do you? ☺️).
I also contacted the Behavioral Health nurse she was seeing 18 months ago, to see if they could either sign the letter based on past visits or come out again to examine and write the letter.
Also left a message for her ER doc from a fall she had in May.
Has anyone else experienced this or have any ideas? I also contacted our elder care lawyer and the Medicaid lady, so I'm sure I'll be getting answers here soon. We are spending down her money, so at least that is not an issue if we have to make a new appointment.

ravensdottir Aug 11, 2025
Insurance covers second opinions. A US News & World Report article on finding a doctor to confirm a dementia diagnosis suggests looking for someone who specializes in dementia - geriatrician, neurologist, clinical psychologist, psychiatrist, or neuropsychologist.

Because dementia can resemble other conditions, like Parkinson's, it would be good to rule out another cause by seeing a neurodegenerative disorder specialist (those who treat Parkinson’s, ALS, or Huntington’s disease).

Has any imaging been done? Read by a radiologist trained in dementia?

Hopefully you'll find someone in-network who can see your mom soon. Meanwhile, it wouldn't hurt to tap into alz.org or other support organizations.

Geaton777 Aug 7, 2025
You need to make an appointment with a different GP, Internist, geriatrician, psychologist or neurologist for a "second opinion". You will need to explain to them up front the circumstances of why you need a second dementia diagnosis.

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