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Stressed52 Asked March 2014

Has anyone used Trazodone or Melatonin for sleep on parent with dementia?

I do not know why everything seems so difficult with my Gerontologist but he took my Mom off Remeron and Celexa and put her on .25 Ativan twice a day. She does not sleep well so I asked for something, he called the pharmacy and told them to give me Remeron WHICH HE HAD JUST TAKEN HER OFF OF!

I called his office this morning and spoke to the office manager telling her what had happened last night. I just received a call from the office manager telling me, the doctor was calling in Trazodone, he had FORGOTTEN that he had just removed her from the Remeron. I read up on TRAZODONE and it causes irregular heart beats which my Mom already has and is on medication to keep under control. It also messes up her Coumadin/Warfarin and blood thinning.

I called them back immediately and they said, "Well if her Cardiologist says NO to the Trazodone, then all I can tell you is to go to the store and purchase Melotonin 3 or 5 mg and try that. This is all we can do!"

I am shocked and appalled by the way this doctor is treating us. It feels like he just doesn't care. Now we have to start another search for a doctor? I just don't get it, they are a company called SAGE and supposedly deal with Dementia and Alzheimer's patients pretty much exclusively!

Has anyone else used Trazodone or Melatonin for their parent with dementia or Alzheimer's. Any problems?

I am just sick to my stomach over this! I feel like laying in the floor crying, because it took us so long to find this Gerontologist and now it seems I have to start again. I am physically ill!!!

MikeRathbone Aug 2016
The Doctor mentioned above is sending, by registered mail, a 30 day supply RX of her meds. Guess this means she's wanting to dump the mess she made on someone else. That's Fine Dr.

FaithHope Aug 2016
I started my husband on 3-5 mg of Melatonin to help him sleep. About an hour after falling asleep he would wake up having really bad delusions and hallucinations. I couldn't figure out why it would be the "all natural" Melatonin. But I told his Neurologist and she said if you don't give a high enough dose of Melatonin to some elderly people, it will cause a sleep-walk like delusional sleep. Took him off and replaced with .5mg Klonopin and he sleeps well now

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MikeRathbone Aug 2016
And I use to be a nurse so I know sloppy medical care when I see it.

MikeRathbone Aug 2016
You are not alone in this. I am a 62 y.o. caregiver to my 82 y.o. mother who has Dementia. I've been doing it for just over 7 years now, by myself, 24/7 without a single day off yet. Her Doctor sent Home Health to us, who evaluated her asking if she wanted to die/kill herself (in her condition who wouldn't??) and they decided she needs to be in a Psych Eval Unit. They tried to put her into one where a Dr. Ali, who had a role in taking her from the ER suffering confusion from a Urinary Tract Infection and ramming her into a Psych/Chem Dependency Unit where she was assaulted by another resident, and then they tried to cover it up and lie about it. To this day, NOT ONE apology. The Psych Eval unit they wanted her put in has this same quack in it so there's no way that is going to happen. We were both VERY traumatized by what he did, and he will never see her again. So now, we're looking at another unit but they don't accept Humana as Humana won't pay their bills, so now we have a choice to make: drop the insurance and just use Medicare, or change insurance companies. Meanwhile, her Doctor is being a jerk about the whole thing insisting that the Home Health Nurse who evaluated her "knows all sees all" and that she can only be treated in hospital where they will treat her for her depression. SURPRISE!!!! She is already on an antidepressant called Trazodone and it's not working. Sometimes it seems like all anyone is really interested in doing is collecting that co-pay and doing as little as they can skate by with doing. I've fired the Home Health people...I'm fixing to fire her Doctor, and take her somewhere else. Oh, one I fired Home Health, they called the cops and sent them to the house to do a "wellness check" since she had mentioned wanting to die. That's the kind of care you can expect from Columbus, MS. So you are not alone in your frustration over this. It is a horrible disease which our govt. offers absolutely no help with at all. Caregivers should at least be paid something so that they don't have to go into bankruptcy over this, but they would rather waste OUR money on foreign countries and sugar deals for their pals. It's a sick deal all the way around but you are not alone...you're just ignored by the medical community and your govt.

pamstegma Jun 2014
stressed, I don't know of an antidepressant that will not react with Coumadin. In mom's case we got rid of the Coumadin and gave her a baby aspirin at noon with the Zoloft being given 8am and 8pm. Works well, no clots.
All antidepressants also have some prolongation of the Q-T segment. Again in Mom's case the combination we gave actually made her A-Fib almost undetectable. I'm not saying you will see the same results, but you should talk things over and get both MD's on the same page, or dump one of them.
Melatonin is milder and more natural, but may not be as effective.

Booschmoop Jun 2014
My 95 year old mother in law has been taking Trazodone to help her sleep for some time. She has dementia and wakes up every two hours during the night and when she wakes up she wants to use the bathroom. This requires us to be up and down all night and we are exhausted. The Trazodone helps her get to sleep but she still wakes up and lately we've noticed she is foggier the next day and has a hard time moving around the day after we give it to her. That doesn't help any of us and as a result we would only give it to her if she couldn't sleep at all. That happens fairly regularly.

We thought all her getting up to use the bathroom might mean a UTI but that test was negative. We then guessed that every time she woke up she thought it was because she needed to use the bathroom and she'd call us. She is becoming very unaware of how it feels to need to go and then forgets she already went. Her doctor prescribed Detrol for overactive bladder but I was skeptical about it since my son was taking for a time and hated it. He said he still felt the need to go but couldn't. That would make my mother in law worse! I then saw that people with MG shouldn't take it. She's in remission after having MG so we decided not to give it to her. Then he told us to get her Melatonin and try that. We gave her 10mg last night and she only woke up once to use the bathroom and seems to be clearer this morning than she has in the two months she's been with us! I also feel so much better getting more than 2 hours of sleep before her bell rings at night.

I'm not sure how long this will last and I'm keeping my fingers crossed. My son has autism and we used it for him when he was younger and its effectiveness seems to wear off after a while. It's harmless so I would definitely try it before the Trazodone. My husband has been taking it for some time to control RLS and for pain and he's trying to wean himself off of it.

jeannegibbs May 2014
Wow! That clinic situation doesn't sound very well organized. I'm sorry it isn't working better for you.

But trazodone may be suitable choice. My mother (93, with dementia) is now taking it. It is too early to tell how effective it will be. We increased the dose tonight. The thing is, just about anything available is going to be a trial-and-error experience. Drugs don't work the same for everyone, and elderly and those with dementia seem to have more varied reactions than younger people.

Melatonin is generally safe and is recommended for a wide range of sleep problems. It is worth trying. Just know that it isn't always effective for everyone.

Just about any drug you read up on will scare you. Realize that sleep deprivation is scary, too. Sometimes it is a matter of weighing the risks and benefits and choosing the lesser evil.

For an interesting article comparing sleeping aids, type in Sleeping Pills, New and Old in a Google search, and select the article by Psych Central Professional.

Good luck with resolving your issues with the doctor who can't remember what drugs his patients are taking ...

Stressed52 May 2014
Yes my mother has used both and they did not work as well as we had hoped. I tell you I just tasted the Trazodone (licked it) and it literally made my heart hurt immediately... it was frightening.

We managed to get Mom into see a very well know researcher in CA who works with Alz, Dementia, Anxiety, Depression and many others. He put her on 2 medications and one of them was Prozac and I thought he was crazy, but my Mom is doing so much better, it is unbelievable. I have now gone to him for Panic and Anxiety.

jeffrey20832 May 2014
My 83 year old mother with Alzheimer's was on Trazodone. Geriatric psychiatrist stopped it and put her on Remeron (Mirtazapine) instead. I really haven't noticed much difference. The idea was this change would reduce some of the day time delusions. Again not much change noticeable there either.

Jennyc Mar 2014
My mom takes trazadone at night to sleep but she does not have dementia or if she does its very slight as when she gets paranoia about bed bugs even tho we have treated and there is no evidence of. When my mom started taking trazedone it seemed she slept better and woke up in a good mood every morning. She was on a mild antipressant that doubled as a good sleep aid for elderly (can't remember name) but after several years seemed to stop working. She has done well on Trazedone for a few years.

AgingCareCM Mar 2014
Hello HolyCow,

Here are a few articles and questions that have already been answered in the community that may help your caregiving question.

https://www.agingcare.com/questions/experience-with-trazadone-for-helping-with-sleep-for-their-parent-165076.htm

https://www.agingcare.com/News/aging-eyes-and-sleep-disruption-147833.htm

https://www.agingcare.com/questions/sleep-aid-for-dementia-patient-143055.htm

Hope this helps.

Best Regards,

Ashley T.
The AgingCare.com Team

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