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shammaambreen Asked June 2013

Mom with Parkinson's in hospice has totally stopped eating. How long will she live like this?

My mother has been diagnosed with Parkinson's and has been in hospice for over two years, just yesterday she has totally stopped eating. She has been immobile since tow and half years....what should we expect now..and how long will she live like this with no food..tube feeding is out of the question..

anonymous158299 Aug 2013
my mother lived for about 8-10 days after she stopped eating. her digestive system had been going downhill for some time. hospice said it was pointless to try to make her eat or drink. a good meal was one of the few enjoyments left in moms life and when she couldn't even eat because of poor digestion I feel like there was nothing left in her life but illness and misery. I miss her terribly but I understand that her body gave up on her, it was time to go. the dead digestive system was poisoning her.

StandingAlone Aug 2013
Ah, I just read of your mom's passing... I am so sorry, but I'm so happy, too, that she's not suffering and in pain anymore. She's in such a better place now.

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StandingAlone Aug 2013
I cried when I read this, the pain vibes are so intense. I feel so sorry for your mom, and for you, too. What about shots for pain? I am so, so sorry...this isn't the way for anyone to go, and I can only imagine what it must be like to have to watch.. **hugs**

Veronica91 Aug 2013
So sorry Shamma, wish I could be there to give you a hug. Try and let your grief out. if you need to cry run to the rest room and let the tears come. Get some eye drops to get the red out. Can you take more time off work, vacation days, sick leave anything you need a few more days not dealing with other people. Hospice usually has a grief councellor and may hold meetings for the bereaved. They like to follow caregivers for thirteen months and if you are able to attend meeting you may be able to share your story and help new members. Stay strong Mom will always be with you in spirit.

assandache7 Aug 2013
Shamm so sorry for your loss. I'm positive she will be looking down and thanking and guiding you daily. Hugs...

shammaambreen Aug 2013
to all my mothers well wishers ...i here to inform you all thank you all for your prayers .my mother left for heavenly abode on saturday 17 at 8 20 am..although we were made aware her days are now short to hours .yet when she left we were all in disbelief
her last days were horrific i could not stand see her so exhausted just wanting to take that journey..i miss her so much...it is hard for me i cant focus at work at all
i went after three days only to return back after two hours than took few more days off and started again yesterday i managed to complete my shift but god it was hard to focus or even smile...i work today long shift today and i pray to lord and my mother to look down upon me to give me strength to move on now....she will always be in my heart no matter how many times i am told time will heal but a loss of a mother is a loss of A MOTHER...

maury123 Jul 2013
My heart goes out to you & your Mother . Please take care of yourself I know that this is hard to do but do your best as you are able each day. This stress is so so taxing on the family and caregivers, but we have to try our best to care for ourselves properly also. That is hard to do - this happens to me alot with the eating and resting aspects. My prayers are with you.

shammaambreen Jul 2013
i m sorry to hear about your pain and mother..is it okay i ask what is your mum suffering from....when i see recovery i aSK oh lord if she gona live longer than BRING A MIRACLE so she can get up one fine day walk around and be happy...but if she is going to be alert , know of our presence yet not able to talk as well neither move...why she should suffer in so much pain why??/..i pray for your mother dear amyrup...i pray they find peace....

amyrup Jul 2013
Praying for you shamma, I struggle everyday seeing my mom slowing dying. It is a really hard thing to do.

shammaambreen Jul 2013
update about my mother
well her fluid intake is good, she not dehydrated she is alert .calls out out names ,responds back ...and doc said she not actively dying...hard to see her in this state though..how long she needs to go through so much pain ..

shammaambreen Jun 2013
shall ask the docs..thank you for tip...oh it is so hard to see her like this...i spend time with her ,and being single too got to make sure i dont miss a day of work to pay up bills ,,but at work i just cant focus , i m told i look sad and if i need days off i can have it...

amyrup Jun 2013
I was also going to ask about an IV for pain meds. Praying for peace for you, your mom and family.

sharynmarie Jun 2013
My understanding is that hospice can be called in when a dr. has diagnosed a person's health as not going to get better...not just for end of life support. I was told when my father was at the end, that a feeding tube at that point in time would make him miserable from bloating since the body is not digesting the food. Can your mother be put on an IV drip for pain?

shammaambreen Jun 2013
i dont even cry because i tell myself prepare yourself be strong....i so afraid of that moment will i be able to control myself...

shammaambreen Jun 2013
yes docs have said that G tube will only give her loose bowel movement since it is just feeding her through tube but she cant digest...and she is in fetus position..to take her to hospital insert her tube..she has no flesh on her she is so bony...we also feel too much pain for her....as for she stopped eating i meant she cant open her mouth anymore...my fear i aware parkinsons is painful disease her body aches bones aches too...if she unable to open her mouth anymore...she wont be able to take any pain killer i so afraid she will be in so much pain before she departs....

Sugarplum Jun 2013
Good afternoon, I feel your pain. If Mom has been in Hospice for such a long period you already know the docs misdiagnosed her time of passing. They cannot judge past a few hours. Mom may just not be hungry today, it happens sometimes. Is there any particular reason you don't want to get a "G" tube placed into her stomach? They can sustain her with liquid nutrients. Don't worry about whether or not it is time to let her go, Love, Cheerish and Enjoy the warmth of your Mom Always.

Perseverance Jun 2013
It's hard for anyone to know, honey, especially those of us who are not able to see her, or are medical professionals. That said, hospice may be able to give you some indication of the timeline. She may have stopped eating today - but tomorrow, she may decide to eat.

Love your Mom today...

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