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cshileman Asked August 2010

What can I do to make things easier for my husband with IBM (Inclusion Body Myocitics)?

EXPERT Carol Bradley Bursack, CDSGF Aug 2010
I'm so sorry you and he are suffering like this. Can you have him evaluated in your home (if he has Alzheimer's, they may be able to send someone out)? Otherwise, maybe a social worker could come to your home. He and you need help. Please reach out to one of the agencies in your area and ask.
Take care of yourself - and him.
Carol

cshileman Aug 2010
I don't think he has Alzheimers's he is very alert, He is forever in his computer and read books a lot, Just his movement is the main problem, Urinating is that much of a problem because he has a tube attached to to his bladder that he can use the bottle, th #2 part is the worst y ,many time he just to it in his pants and I can't get him to use adult diapers he hates it' cleaning part is really hard on me. Very temperamental, he does'nt anybody to touch him but me, another reason why I can't even suggest to get help. He is diabetic too he falls a lot n hardly any more muscle in his legs and arms. How can I get somebody here to see him and evaluate his condition? I don't want him to know that it ismy idea, I'll get yelled at andwill never hear the end of it. Will end for now. Please advise. Thanks, C

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cshileman Aug 2010
I'll try and check social services in my area, sure it will help a lot , and I'll let you know . Thanks for the suggestion.

cshileman Aug 2010
I went and check Social Services in my area , found out they charged $60.00 to $70.00/hr. / session I thought this gov't services is free. Is there a place I can go for more information Re: my husbands condition? Please let me know. Thanks, C

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