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wildkat7232 Asked July 2021

I think I might be in the wrong place. I’m the one that has Parkinson’s disease. I’m not the caregiver. Will I find any info here?

gladimhere Jul 2021
WK you are certainly welcome here but you may find a better fit on a site geared towards people that have been diagnosed with Parkinson's.

Most of the posters here are caregivers. Many are overwrought, tired, burnt out and just want out. Some become quite angry and belligerent and have lost all patience. Some of those posts I would think would be very hard to read by someone needing care.

But, you are welcome. What I hope you learn is the importance of planning. Best wishes to you.

NeedHelpWithMom Jul 2021
Welcome to the forum.

I am sorry for your diagnosis. My mother recently died at age 95 in a hospice house with end stage Parkinson’s disease.

I just read your profile.

Find the best neurologist that you can. Meds definitely help with symptoms. Are you having mobility issues? Keep your muscles strong.

If you are experiencing mobility issues, home health helps tremendously. A doctor can order home health if needed. A physical and occupational therapist are sent to your home. Medicare paid for my mom’s home health. It’s a work out! It helps with gaining strength and balance.

Mom did have several tumbles. Be extra careful in your shower. Please place bars for safety. Parkinson’s disease can easily cause your balance to be thrown off. Falls are common with some people. Use a walker if needed. Mom’s neurologist discouraged a wheelchair. She used a cane, then a walker until the last month of her life.

Stay as active as you can. There are certain utensils that help with eating. Tremors are miserable. Take your meds at your scheduled times. If mom had a doctor’s appointment and took her meds a little later when we got home, she noticed that her tremors were worse.

Best wishes to you.


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againx100 Jul 2021
Sorry for your diagnosis. Maybe there is a Parkinson's forum somewhere?

Geaton777 Jul 2021
Welcome to the forum! You are in the right place, depending on what your question is.

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