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This article was so helpful. For Stacy who wrote about a Rehab/PT facility in Sun City...........what is the name of that facility? I'm searching for a facility just like that.
Hello Riley. I am so sorry to hear about your situation. Every time someone says someone is too debilitated for therapy (especially when there is a dementia diagnosis), I get frustrated. Every situation is different, but too often dementia patients are either overlooked or written off without a proper assessment. Please watch the following YouTube video. This patient was considered nonresponsive and totally atrophied.
The facility that this took place at was in Sun City (just outside of Phoenix). Stacy
Thank you for this article. My Dad has dementia and was put in the health care center at a retirement community. He is just stuck in there, it's not even a place to actually live. The care is minimal. (already has bedsore), They have refused to offer him PT, he has been there 6 months and his muscles have completely atrophied, he was walking when he went in there, now he is crippled and in a wheelchair. My sister and I have not been allowed to intervene as my Dad's "friend" POA Agent has blocked us from all information about our father and for advocating for him. We have an attorney now, but it's slow going and I don't know if he will be able to regain his strength now that he is in a wheelchair. We had a report recently that his doctor at the facility said that "he is not a candidate for PT." I think she is insane. I have no idea how this could even be possible unless they want him to just deteriorate and die as soon as possible.
The main question I have, and I am hoping to get some kind of answer, if we are able to get him moved to a better facility, is PT normally offered, or does it cost extra, and how much does it cost approximately? He is in Phoenix. Cost isn't an issue, I just need to know how to get him the proper care, as at this juncture, it will be hard to get him to even do it as he is so weak and just wants to lay in bed and sleep a lot. So having someone who can really connect with him and work with him is crucial. Also, he can't really go out to any PT place for treatment, again, he is so weak, so it would have to be at the facility where he is. Thanks!
Makes me rethink admitting my dad to a therapy facility. While he was being discharged from a short stay in the hospital they recommended Therapy. I didn't think moving him from the hospital and not back home was good. I now know I was wrong. I will consider PT and OT. He has Dementia and does not walk good. Uses a cane but could go to a walker. Delusions and sundowners. I thank this Blog for keeping me sane.
I agree donglen. I only wish that hospitals, and their staff, would step back from trying to correct collateral damage (unfortuately, often caused by their shotgun, lets try anything approach) and see what the extra treatments and tests were actually accomplishing. All through the hospital treatment for my mother I never had a doctor sit down with us to discuss an ultimate goal to their medical adventures. It was always some "symptom" that had to be addressed, and not the overall problem, which was aging and dementia, two problems that could only be dealt with, and not corrected. I often thought the primary rationale was "well, Medicare will pay for it so we might as well do it".
My mother is stepping into dementia and was living in an assisted care facility that specializes in dementia care. She fell while going to the bathroom received a scalp injury that required two units of blood. As an added bonus, she broke her hip. The hip and scalp were repaired. While preparing for transfer to rehab a nurse noted that she was coughing when she drank and that her blood pressure spiked (just after bathing her and with no pain meds). Although I said she reacted very poorly to blood pressure meds they convinced me that the smallest possible dose would not affect her. She was eating well (with not much appetite) on Saturday, Sunday. The blood pressure meds were given on Saturday an Sunday. On Monday she was given the swallow test. When I arrived at 11:30 am she had had her swallow test. However, she was talking to relatives in the ceiling, worried that they going to put her in an insane asylum because they suspected her of murder, etc. The nurse said she had been like this all morning. In short, she failed her swallow test miserably. This behavior was NOT typical and had never been displayed before. I told them no more BP meds. Oh the nurse had already stopped that because her blood pressure had tanked. The doctor wanted to put in a g-tube. Now, the rehab places will not take her without a g-tube because she might get pneumonia from aspirating food. I am not even going to go into the chronic UTI. The g-tube is expressly against my parents wishes in their DNR/DNI drafted by their lawyer over 10 years ago. Unfortunately, with the g-tube she cannot go back to assisted living. So far, no rehab for the hip, no home to return to and consignment to a nursing home when the rehab is completed if we decide for the the g-tube. She was mobile and functioning fairly well with a walker before the fall. So is there any acceptable alternative?
I am at my wits end! My dad, who has dementia, had a UTI and stayed in the hospital for a week. Then he went to a rehab to rehab. He walked in on his own power. After 18 days, the uti has returned twice which freezes him where he can't even feed himself and he has diarhea so lays in his own feces for hours. My husband and I are ther 1x/ day and have to bath him. Thus he has a terrible rash. These people do not realize that dementia patients have to be told to drink water, water, water! 2nd they do not know how to ring for a nurse....it is so exhausting. It is going to be a LOT of work, but I see the only way to get him well is to bring him home. I can't sleep at night worrying about this. The PT and OT's are awesome along with the morning staff. It is the p.m. and midnight and weekend crew that are the problem.
This will help a lot since my dad is getting out of the hospital today to go to a rehab facility. He had a UTI, which really plays with the mind. He has lost most of his tone and needs it back so he can return home.
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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
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Physical Therapy and Rehabilitation for Alzheimer's and Dementia
The facility that this took place at was in Sun City (just outside of Phoenix).
Stacy
The main question I have, and I am hoping to get some kind of answer, if we are able to get him moved to a better facility, is PT normally offered, or does it cost extra, and how much does it cost approximately? He is in Phoenix. Cost isn't an issue, I just need to know how to get him the proper care, as at this juncture, it will be hard to get him to even do it as he is so weak and just wants to lay in bed and sleep a lot. So having someone who can really connect with him and work with him is crucial. Also, he can't really go out to any PT place for treatment, again, he is so weak, so it would have to be at the facility where he is. Thanks!
youtube/watch?v=aQP1p8lWQys
These people do not realize that dementia patients have to be told to drink water, water, water! 2nd they do not know how to ring for a nurse....it is so exhausting. It is going to be a LOT of work, but I see the only way to get him well is to bring him home.
I can't sleep at night worrying about this. The PT and OT's are awesome along with the morning staff. It is the p.m. and midnight and weekend crew that are the problem.