Getting Your Siblings to Help With Caregiving

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When an elderly parent's health begins to fail, one adult child generally becomes the primary caregiver. And while this may work well for a time, it can eventually cause resentment when you find yourself shouldering most of the burden—especially if other siblings live nearby yet don't help out.

What to do about your resentment? Before you blurt out words that you'll regret later, it's important to take a look at why you stepped up to the plate in the first place, says Lynne Coon, M.S., a nationally certified counselor from Portland, Oregon. In other words, she continues, "Why did you put yourself in this position?"

There are many reasons that people take on the role of primary caregiver, such as closer proximity to the elderly parent or greater availability to help out. But just as often it's because they see themselves as most able to do the job, says Coon. Unfortunately, a competent and capable adult child who has taken on the role of caregiver often begins doing more and more until eventually she or he becomes responsible for the majority of the caregiving duties.

While it's best to involve other siblings early on before such a pattern develops, it is possible to redistribute the responsibility later in the game. Here are some ideas for opening the lines of communication and enlisting the support of your siblings:

  • Call a family meeting: Whether by conference call or in person, schedule a time to meet with all of your siblings, even those from out of town, to discuss what needs to be done to help your parents.
  • Make a written agenda: "Write down an agenda for discussion," says Wendy Kaufman, a family and life-balancing specialist and CEO of Balancing Life's Issues, Inc. "Write down details of all you are doing now, such as health care, home obligations and transportation."
  • Do as much listening as talking: Explain how you feel in a matter-of-fact way. But be open to other's feelings and viewpoints, too. Your siblings may not have been aware of how much you've been doing. Or perhaps they are feeling hurt and angry about being left out and uninformed about your parent's needs.
  • Be specific about what you want: Have an idea beforehand about which tasks you'd like to be relieved of rather than just a general appeal for help. Perhaps you'd like someone to take over the driving to physical therapy appointments, or give a hand with grocery shopping or meal preparation. 
  • Divide up tasks: Split up the labor among those present. While there are many ways of doing this, Coon suggests dividing chores by expertise. A family member with experience in health issues could take on all of the medical appointments, for example. Or the person with good business sense might handle legal issues. And make sure to include siblings who live a distance away. Even if they can't help with day-to-day needs, they might offer money for a housekeeper, or be willing to come every few months to take over and give others a break.
  • Don't expect total equality: It's not likely that you'll achieve total equality in division of tasks. This is okay, says Kaufman. "It's more important to make sure that all siblings have a manageable lifestyle, that all can help to alleviate some of the stress on each other."
 
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Great advice
Susan Berg

 
 

MysticalAngel

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Jul 26, 2008

My mother and I have been taking care of my grandmother for the past 4 years pretty much by our selfs. My mother has two sisters that show up when they have time. But they make that very far between visit's they all say they are busy. They never make time to come visit, or just call to see how she is doing, they might show up on Christmas or some other holiday, but only to stay for a few minutes then have to leave.
We have tried everything that was suggested in this article and none of it worked. We even had in home nurse's coming out to try to hep us get the family together and work together to make everything a little easier on everyone especially me and my mom. My mom was told by her doctor that she could no longer tend to her mother that her back and mind wouldn't handle it any longer and was told she had a major depressive disorder so that pretty much left it up to me.
I am at loss for what to do really, I am only 24 years old and have a wonderful 3 year old son who is my little helper. But I can't keep going the way I have been going. I have animals that I use to escape from most of the stress that I have to live with when I am at home. When I feel that things are getting to bad for me to handle or just need a break I will go saddle up one of my horse's and ride for a few hours and feel alot better, but once I walk back in the door it starts all over again. There is nothing that seems to help the issue. Help me if you can

 
 

Dear Mystical Angel and Family,

Maybe it is time to think about long term care. Even if you promised not to do it, things have changed. I wrote a great letter to the editor in USA Today about this very subject. Norsing homes are not bad. You can still visit. Have you ever thought about placing your grandmother there for a respite visit. At the very least, you can see how your grandmother does and get a much needed break.
Maybe the rest of the family will take you more seriously

Susan Berg

 
 

JudyV

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Jul 27, 2008

I agree with Susan. Let's say you ask your son at some point in his life not to put you in a home. Then many years later you are in ill health both physically and mentally and this is having a very negative impact on him and his wife and child. Would you want him to suffer and resent you and live a life where he dreaded coming in the front door? I didn't think so. At the very least get some in home help that you can count on, that is predictable, so you can start living your lives more fully again. We all deserve to live our lives with some hope that our days are more than a hopeless routine that we are trapped in.

 
 

SusanK

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Aug 3, 2008

I'm in a situation where my (widowed) mother will only allow me to help her. She will not allow my 2 brothers or their wives to help. She depends on me for emotional support entirely. Five years ago, my husband and I moved to the same high rise condominium where she has lived for the last 30 years. It has made many things easier and I don't generally mind it, but when I try to tell my brothers what is really going on, they don't believe me because they never see what I see. When she speaks to them, she tells them everything is wonderful, that she's getting along well and never reveals anything to them. Mom is financially self-sufficient but emotionally overwrought since my father died 6 years ago. She has no social life, but that is her doing. She is not interested in relationships with other people/neighbors.

I placate her a lot. I don't tell her when she repeats the same scenario to me over and over because I don't want to upset her. I don't correct her when I know she's mistaken about something unless it's something that can cause her harm. She still drives (81 years old), sometimes better than others.

I don't know if I'm handling this situation in the right way for either her or me. My husband is very understanding fortunately.

 
 

debbiemedley

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Dec 18, 2008

MysticalAngel or anyone else that is out there, My heart goes out to all of you who care for a loved one with no help. Iam a 55yr. old wife who quit a job of 17yrs to stay home and care for my husband whom I married knowing he has hunnington`s chorea disease.It is a genetic disease that destroys your brain and body functions.Also a feeding tube is inserted for cause of choking.Anyway, I met Larry in 1985. To make it short, we met lived together for 4 yrs. Then he was in good shape,we partied hardy together and had alot of fun times.He took care of my 2 sons at the time,along with his 2 kids from previous families.(all boys). We separated in 1990 and didn`t see each other until 2003.His ilness had progressed alot, The weight loss, slurred speech etc. I had loved this man all these years so we got together again and I married him in 2004. Even though he is still with me and sick I won`t put him in a nursing home.That is where I worked for 17yrs.They do the best they can at the homes but it isn`t enough.It will take a toll on you with no help . My husbands family lives close a few blocks away and will not help. I have no free time. I am very lonely and depressed, stressed out. And a few other added on problems. I did all the above talk to family members , I`ve argued I`ve been nice but nothing works.But I still won`t send him off.I told a person 1 time that even though he is sick and Iam going nuts he still is in his right mind and deserves a little happiness for whatever time he has left.I told the family if anything happens to him I would not tell them.I will take care of it myself. So everyone out there who is a caregiver will have a place in heaven.I have to go now Larry just fell on the floor. ( he`s okay)

 
 

billsgirl

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Feb 26, 2009

just wanted let you know the articles really do help. i am the main caregiver for my mom, caregiveing, chef, bather, bill payer, taxi driver to dr, bills, etc. i have had several conversations with my two siblings and i always get no where. their excuses are as follows: baseball season has started, oh i have to work that day. i'm busy,etc. i too have promised my mom that i would never put her in a nursing home. i intend to keep that promise. i even told them if you can't come by and see your mom, call and see if she needs anything, just give us money every month help with meds, gas to dr, diapers, etc. but of course they don't have the money to give. I feel i need a break to but to no avail. but i will continue to have faith and continue caring for her for as long as she is alive or me for that matter. i too suffer from depression and need to go to dr appts too. but for now GOD will have to take over and maybe just maybe HE can make them understand. it's amazing how they can tell me what they think i should or shouldn't do, but there again i have no choses in my life. all i know is i am the caregiver and the domestic goddess and when mom does pass, i'm sure they will be there to tell me how to dote out the inheirtance.

 
 

debbiemedley

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Feb 26, 2009

Billsgirl Believe me i know what u r going thru.Iam in the same boat u r in. My husband has hunnington`s chorea. It eventually kills. It takes control of the body and brain.His family does me the same. I can`t go shoppping,visit what few friends i have left. I workd in a nursing home for 17 yrs. I quit to care for him. His own son hasn`t been by for 2 months.Iam like u my health has gone down alot.Everyone is out enjoying there life while ours is on hold.God gives me the strength to keep going. Since he got sick the so called friends stopped coming by.If and when he passes i have a good mind not to tell anyone,just have him cremated and then tell them.I know it`s a rotten thing to do,but when u are all alone it makes u very irritated. My prayers r with u.

 
 

billsgirl

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Feb 26, 2009

i'm with you debbie. yea i worked in the medical field also. guess that's why my siblings think i should care for mom. no excuse on my part. wow huntington's. my son's oldest has it, he's 28. his mom died with it. her sister is still in a nursing home. their mother died with it and their paternal grandfather. he was th first known case in birmingham, al. all my brother did for years was drop his huntington son off on my mom's street. and keep going. he has helped him get a appartment and ssi. but he doesn't do like he should. but that's between him and GOD. all my brother's interested in is coaching baseball. my oldest sister has so many excuses. guess she lays up at night thinking up excuses. yep everyone is out enjoying themselves while we take the resposiblty of our parents and you with your husband. it's all so sad. i will keep you in my prayers also. i understand the irritations but in the end we will have done what we were suppose to. i just hear it now, oh we should have done more.....but it will be to late then. thanks for emailing me and it really does help to know i'm not alone afterall

 
 

debbiemedley

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Feb 26, 2009

billsgirl,e-mail me anytime u like.All we have is each other.There will be a place in heaven for people like us who put their loved ones first.I will keep u in my prayers too. I lost my mom to heart disease and kidney failure. We had to take her off life support.She died in 05.My father in 85. I have been taking care of sick people most of my adult life.Whatever happens to my husband he will be the last person i care for unless it is one of my kids that get sick and then again I think.Let their wives or girlfriends to do it.But i will help out.When it comes to us lets see who will be there for us.My husbands daughter in law divorced her husband , my step son.She don`t want the responsibility if e would ever get it.U r like me if u truly love them they way u and i do we will be there. I will watch for your e-mails.Iam from Louisville,Kentucky. Hope to hear from u again Take Care, DEBBIE

 
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