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Five years ago when my dad was well but obviously unable to keep up with the house after my mom passed, my husband and I asked if my dad wanted to move in with us in our newly built home with his own "quarters" (bedroom, den and bathroom). He said "yes." Gradually we noticed that Dad started forgetting things and getting confused often. He would drive off on his own and forget how to get home. We would have to go find him, or someone would call from his phone saying he was disoriented. Now, he doesn't remember anything, not even to shower or change his clothes. My husband passed away a few months ago, so I'm the only one to "watch" him. I can't leave him alone because he leaves everything unlocked, leaves the stove burner on, tried to put metal in the microwave. I'm afraid he will blow up my house. He is unstable on his feet and could fall easily. I need to attend Grief Share meetings for the loss of my husband and I'm having a hard time getting my sisters to take care of Dad for the two-hours each week. They only live blocks away. One sister says it is my responsibility since I offered to have Dad live with me five years ago. They are always ready with an excuse why they can't help with Dad. I'm not well myself and I'm afraid soon I will need help myself. I just need to vent because I feel it is just so selfish and sad that my siblings are acting this way.

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NorieV says: "My sisters were shocked to find out how much this costs."

Funny how those dollar signs can wake some up! When we were checking places for mom, I was aware of costs having done my homework. We had already tried starting with a one hour sanity/med check - she didn't need help yet, but get it started and bump up as needed. Nope. Refused to let them in. Brothers were CLUELESS!! We went to one place, then out to get a bite and discuss. BOTH immediately said Geez, for that kind of money, I'll take her in.... Never happened though, which is a good thing! I told them I would not take her in, but if they wanted to I wouldn't stop them, but they needed to understand what they were getting into.

Glad to hear that he is enjoying his "attention." Sometimes men are a little easier that way (not always!) Probably just as well the sisters don't help - they likely are clueless about how to care for someone with dementia. If you haven't been there or don't take the time to research it, it will be a disaster! As long as it is his assets paying for the help, you are getting a break and it is working, I would continue with that unless/until he needs to move to MC.

As for the car, I know it isn't easy. It is difficult to get a doctor or DMV involved around here, but all too often it makes no difference. Sometimes it is just stubbornness and/or insisting they (doc/dmv) don't know what they are doing, sometimes they just forget they were told not to drive. I knew we had to take the car away, YB did all the talking and took her key. On the way out I told him I know she has another key, and asked him to disable the car. The cable was sufficient for her - she wouldn't know what to check. Sure enough, next day who gets the nasty call about taking the key? ME! I told her I didn't touch it, which was the truth. Second day, nastier call for me to get down there and fix whatever I did to her car (so I was right, she HAD another key!) Long story short, I had to listen to her whine and complain about us taking her "wheels" for about 6 months. But I don't go far... No you don't but you could go 2 feet and hit someone and lose everything! Later she would moan that the worst thing she did was give up her "wheels"! So at that point she thought SHE gave it up! The blown tire (she said she had a flat, but it was split from the rim to the ground) and the various little pieces missing/damaged plus the white stripes on both sides from the garage door were the clues it HAD to go!
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NorieV;

"DMV took away his DL but he still drives. He won't let anyone touch his keys."

If he keeps the car locked, you will have to try to snag the keys when he is asleep or otherwise preoccupied and have someone disable the car - pulling the battery cable works, but not sure if he'd be wise enough to figure that out - if so, find a way to have someone install a kill switch. When it is set, no one can start the car. If he doesn't lock the car, these tactics can be done without a key, but he will need to be "preoccupied." If you have AAA they can unlock it for you (again, done when he is elsewhere!) or just have it towed to one of the siblings places where he can't access it. If you don't have AAA, it might be worth signing up (a one-time tow might end up less expensive depending on how far one has to go.) Towing *might* be an issue without the key because the steering column could be locked, need to get it to ACC to unlock that (again, can you snag the key when he is busy or sleeping and make a copy for yourself?)

You *really* need to pursue this before his injures or kills someone, including himself!

If he has enough assets to pay for MC, there should be enough to hire help in-house. While it can eventually become more expensive hiring help, if it isn't needed 24/7 it could be less than MC. His assets would probably not allow for Medicaid, so you'd likely have to "self pay", but use HIS funds for this. Sisters don't like it, they can "volunteer" more time taking care of him!

He may eventually become too difficult for you to watch over, and it could be sooner than later. You should be actively checking out places and if there are any you like, get on the waiting lists!
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NorieV Jul 2019
Disgustedtoo: You are right on. I have had someone come in the past two weeks, 2-3 times a week, to help out. This has been working out very well. I think my dad likes the one-one-one attention. My sisters were shocked to find out how much this costs. Hmm, maybe they will want to work as the in-home help instead??? Pays better than their current job.
If the in-home help isn't enough down the road, MC is the next stop. I know I have to do what is best for all concerned. First item on the list, though, is take away his keys!!!!
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NorieV I hear you. I think you either move him to a memory care facility if he has the money to do so, or you hire caregivers to come in so you can get out. Does he receive social security benefits? Have any savings? Start using it.

My therapist gave me a great piece of advice years ago, "for" not "with". You are doing this "for" him not "with" him. You still have a life. Use whatever money he has and hire a caregiver. If your sisters aren't happy about that, tough. If they aren't going to help then you need to pay for help and you are going to use his money because it's for him. Hang in there.
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NorieV Jul 2019
Thank you Panini -
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Sometimes people are more willing to "take over" than to "help". Ask your sisters which one of them is willing to take your Dad in. Did he have any money? Perhaps a assisted living would help since he can still walk. After a few months you might consider selling your home and moving into an apartment. The argument about it being your responsibility since you invited him in is bogus. You had a husband then, and your Dad wasn't that bad at the time. You did 5 years now it is someone another's turn absolutely. Who has the POA? There needs to be one while he is still lucid to sign it. You have done enough. Let yourself off the hook.
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NorieV Jul 2019
LOL - I've asked them and that is when they respond that it is my responsibility since I asked him to move in 5 years ago. As for selling my home, I would never want to do that. I love my home that my late husband designed and had built for us. It's beautiful and so peaceful and in a perfect location for all my needs. I want to be here until I die...which could be soon if things don't change ... LOL
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It makes me just sick to my stomach to realize how nasty and vicious and selfish some family members are. But I have seen it all and it will never stop. First of all, since no one will help you, YOU are going to have to take control of the situation and let them be dammed. First of all, do you have a Power of Attorney and Health Care POA? If not, get that at once. Does this man have a will? If not, talk to an attorney about that and for what it is worth, I would see that the other family members who would not help get nothing more than $l.00 (so they can't contest the will). You must get advice from an experienced eldercare attorney - now. Second of all, given your dad's mental and physical condition, and seeing your circumstances and difficulties and the problems it is putting on you, you have absolutely no choice whatsoever. You must place him somewhere at once. Do not wait - do it and don't tell anyone - just do it and then tell them or you will have more problems. Good luck. You don't deserve what you are getting and you are NOT SELFISH. YOU HAVE BEEN AN ANGEL TO PUT UP WITH THIS CRAP.
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anonymous912123 Jul 2019
You make an interesting point, my brother and I have not notified any of there other children about selling their home, and moving them into AL. That was in February, now we are moving them here to Florida and they know nothing about this either. They never call them and he is totally deaf, yet can be TT on his teleprompter. She has dementia, so she has no idea what is going on. Their other children only contact them when they want some money otherwise nothing. They just don't care, never have, never will. We are not going to call them, they have our #'s so the ball is in their court.
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Ugh, nothing like having lazy good-for-nothing sisters who won't lift a finger to help you in your time of need. That is just disgusting, I must say. I'm so terribly sorry for the loss of your husband, what a terrible time of grief you must be going through right now. And then to top it all off with your dad suffering from severe dementia, it's all just TOO much to deal with. Please get your dad into an ALF, right away! The ALF/Memory Care place my mom lives in DOES allow cats, and they also have a lovely garden for the residents to stroll in. More importantly, the doors are locked so they can't wander off; there are no dangerous cooking devices in the rooms to get burned with, there are activities specifically geared towards people with memory issues, and on and on. Only 24 residents live there, so the care is phenomenal. They serve meals on red plates (to stimulate appetite; dementia folks can forget to feel hungry) and offer residents a choice of 2; no menus to create more confusion. They shrink their world to fit the disease, so the burden of choice is relieved and life gets simpler & easier. You, of course, can visit dad daily if you'd like, but still be able to go home and KNOW that he's safe & you're free to grieve alone in peace. Please don't kill yourself in the process of making this decision...........it's the right thing to do to place your dad and you can feel GOOD about doing so. Check out a few places and go from there. This is a very hard time of life for you and you need to find ways to make things a bit easier for yourself. God forbid something happens to dad in your house & you'll only wind up feeling even WORSE, you know? At least in MC you can sleep at night knowing he's safe.
All the best.
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NorieV Jul 2019
Thank you so much. I feel hopeful now. I'll check into some MC F close by and see what they offer.
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NorieV asks a great question.
Do not insult her by playing devils advocate.
She would not have written if she wasn’t tired!!!!!
Most siblings are a POS.....I know!!!!!
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Because we don't know the history between your sisters and your father it is only a guess... but I guess that it could be the relationships weren't healthy. For example, if your father was abusive towards your sisters during their lives it would explain their lack of interest in the situation now. It is only a guess, but sometimes this is the reason for an apparent lack of concern.
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NorieV Jul 2019
Hi Arselle2 - No, that's not it. In fact, my dad has always favored one of them...the one that doesn't help much at all. Hmm, maybe that's it. Maybe it's because she feels she doesn't have to because she's already gained his favor? I don't know. I know that I wanted to help my dad because I felt it was the respectfully right thing to do.
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Hi Norie,

My mom was sick on and off for most of my life and she passed in April. I have two older brothers who did nothing. When she passed, they did nothing as well. I am the executor and have done everything on my own. I was lucky to have a cousin who stepped up and offered to help me. I know it absolutely sucks that your siblings are not helping you but ultimately you have to focus on taking care of yourself. Don't expend your energy on trying to logic out their reasoning, you can't. Do what you need to do to take care of yourself. If you have friends or can find volunteers who can help, accept the help from wherever you can.

My heart goes out to you. If you are your Dad's POA, can you maybe put him in a facility where they are equipped to help someone with dementia and so that it takes the strain off you? It would be safer for him and you. I know it's a difficult thing to have to do but I'm sure your dad wouldn't want this for you.

Please, please take care of yourself, your husband and father would want you to do that I'm sure. Big hugs!
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NorieV Jul 2019
Gato01 - Thank you for your wise words. I know I can't change my sisters' actions, so I have resolved to do the best I can while taking care of myself. It may come to putting Dad in an ALF, but first I will see how an in-home care aide can help. It's just so difficult to make that decision when 20% of the time he is okay and appreciates the yard and enjoys his freedom. He has a cat which he loves. I don't think ALF allow cats. So, I want to do what I can … without killing myself in the process
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Noriev - responses to responses, and then some!

1)
"Then he kept the burner on "click, click, click" letting the gas spread into the room."
Ahhh, the gas stove... Well, the control lock method probably doesn't apply there. I thought about asking when I was typing up my response. I havn't dealt with a gas stove in a long time, can you remove the control knobs, so he can't turn it on? If you can, take them off/lock in a cabinet/drawer (easier than shutting off the gas each time and less exp than replacing with electric.) Although he was using the flame from one to start the other, certainly make sure matches and lighters of any kind are locked up too!

2)
"You make me laugh Disgustedtoo!"
I try sometimes - laughter IS one of the best medicines. Do try to keep your funny bone in shape. I almost lost mine when hospitalized for almost a month!!! Getting hard to be cheery these days too, for different reasons...

3)
"But by closing the door on her, it will not help matters."
  Well, maybe not close the door on her, but DEFINITELY on giving her ANY of dad's money (she shouldn't get any of yours either!!!) I cannot seem to locate the comment I posted about suggesting you get guardianship/stewardship for your dad, so I'll give a brief explanation:

  You said you were all assigned as POA - that could become a real problem. If they decide to go withdraw monies without asking for it (having POA can facilitate this!), it will count against him if he ever needs Medicaid (it will be considered gifting - big No No.) If you decide to find a facility (or even paying for aides to help you both), they can fight you because they have the "power" - IF and ONLY IF the POAs are set up hierarchical (one is primary, the others take over when primary/preceding POA can't perform the duties anymore) it might be okay, but I highly doubt it is - sounds like you're all appointed equally.
  Guardianship overrides ANY POA and grants you all the powers you need to manage everything and make the final decision(s), going for aides now, and if you decide to go facility in the future - they won't be able to stop you (well, they could fight it, but that will take a lot of money for a lawyer!) This isn't to shut them out, but rather to protect your dad, his future, his assets and yourself! If you make decisions to pay aides or a facility, they could try to prevent it (Many siblings who don't help do this! They want the assets to remain so they get a bigger piece of pie in the end!) Dad's assets can be used to pay the ECA and court costs to make this happen. Note - they could attempt to fight this as well, but again, it will take a lot of money to hire an attorney!

4)
"If I can get my dad to listen to the aide, then maybe things will be better for me. Right now, dad does not listen to me at all. He says he can't hear me or that I am mumbling. A lot of times I use hand gestures LOL."
 Is it selective hearing or hearing loss (or a little of both)? Selective hearing, that'll take some creative thinking to work around (suggest he NOT do something you want him to do? Write it down? Or are we just dealing with the patient-caregiver tug of war.)
 He just might be more cooperative with another person (as he treats you badly, but sweet talks your sisters.) Our mom has a bad hearing problem, so to help I bought a Boogie Board on Amazon (many MANY offerings) - it is an LCD "tablet" you can write on with a stylus (fingernail or any non-writing pointy object) and then clear with the push of a button. Even still, she will try every trick and response a 3yo would when we have a doctor appointment to get out of going!!! Final word is mine, I pull up my mommy socks as say sternly get your coat on and let's go! She'll then say she has to go to the bathroom - after she's done, she comes out, sits in the nearest chair and we have to start over again! Hand gestures DO come into play!!! :-D
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NorieV Jul 2019
The POA is hierarchically listed.
My siblings and I KNOW Dad has selective hearing. I have written down important things and there things like putting in his teeth, hearing aids, or taken his pills...I do by hand gestures. Sometimes, after many attempts of telling his something, I just have to say "forget it." I really think he likes to irritate me. A lot of times I don't talk as it only causes frustration.
Everyone's responses have been so helpful and encouraging. I feel so much better about my situation now just knowing I'm not losing my mind. Thank you.
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Your sisters are mean and selfish and you need help - now. Please face the fact that you must take care of you FIRST. Since no one seems to want to help, you must face the fact he must be placed into a facility for his safety and your sanity. I don't know the financial status but this calls for a meeting with a good eldercare attorney for advice, etc.
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NorieV Jul 2019
Thank you for your advice. :-)
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Norie,

Your Mom would be so proud of you. Everyone dreams that their daughter might be so kind, generous and loving.

Your strength and perseverance through these difficult times is admirable.

The world needs more more people like you!

Dont let anyone convince you that you did anything wrong with your siblings. You are not their “patsy,” They are acting with selfishness and negligence toward their father. You are rightfully disappointed.

Make sure to take good care of yourself. Give yourself the breaks and kindness that your siblings should be providing.
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NorieV Jul 2019
Wow, you touched my heart. I know my mom would be pleased and so would my paternal grandparents. We all have a purpose in life. I never really knew what mine was until my husband got sick and I needed to care for him...at the same time Dad got dementia. It wasn't so bad at the beginning because my husband would give me support the best he could. Since my husband passed, though, I've had to rely on friends to talk with. Also, this site has really helped, knowing I'm not alone.
Your tender words are really needed and appreciated. Thank you.
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Girl I have 4 siblings that live hr to two hrs from my parents like pulling teeth to get them here to visit guess some people are selfish and some just can’t handle certain situations but but your sweet bottom when dad dies they come running
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NorieV Jul 2019
For sure, for sure!
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Norie, good news that you are getting some help.

Can I recommend that you get some you time covered as well as your needs. You should have some time for you that isn't just for health and grief care but some frivolous things like lunch with girlfriends or a massage, manicure or whatever makes you feel pampered.

You can also hire a housekeeper and yard service to help you from dads money, those expenses are all part of living life, they are not gifts and would not affect Medicaid if he ever needs it. You will be so much less stressed knowing that the heavy lifting is being taken care of by paid pros.

Take care of you! HUGS!!
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Hi Norie, please turn off the breakers or unplug the appliances before he burns down your home.
Siblings can be very selfish.
And they can also have their own issues.

So sorry for the loss of your husband. It must be a difficult transitional time for you.

I dodnt read read all the replies. I urge you to get the dangerous appliances “ broken” he won’t know why they don’t work and you won’t lose your home in a fire.
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Is your name 'PATSY'? -  because that is what your sisters are making you into - I'm guessing you never have stood up to them too much

Just because you kindly offered to help your dad doesn't mean that your sisters are absolved of helping & don't buy their excuses - get care to come in to help dad & bill him for it - even if he doesn't pay now it will be a debt against his estate but document it up the yingyang

If dad can pay then start getting more help for both of you sakes
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NorieV Jul 2019
Hi Moecam - Yes, I have definitely stood up to my sisters, but it does no good. They are of a different mindset. They believe what they want to believe and they "are always right." There is no listening to reason. For my sanity and health, I don't bother to try to get them to understand anymore. I keep hoping that as they age and have gone through trials themselves, that they would have compassion now...but evidently not. That is why I am hiring a home care aide to help. It will be expensive for my dad, but it's best.
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NorieV my sincere condolences on the loss of Your Dear Husband Rest in peace. You were Both wonderful to bring Your Dad into Your Lives and care for His needs at home in Your own home. As other Caregivers have said dismiss those Siblings from Your mind and concentrate on Your needs also Your Dads. Indeed most of Us Caregivers Who have been on the journey of being 24/7 Carers X 365 each year because Our Siblings shyd away from their responsibilities but then it takes a special type of Person to take on the Caregiving role and so many do not have it in them. We did it out of love which is the best reason. You definitely need help here since You are in mourning after loosing Your Husband recently. Contact a local Nurse and try to get Your Dad into restbite care for a month to give Yourself time to heal and catch up on lost sleep and lots of rest then You can decide on Your next move with regards Your Dad.
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NorieV Jul 2019
Thank you Johnjoe. I know you understand. Hugs!
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NorieV;

Sorry to hear about the loss of your husband - many sympathies to you.

You are VERY good person to have taken your father in when he needed the help. It is clearly a huge burden even when you have help and now you are grieving and struggling. You do need to seek out assistance (non-family) or find dad a nice place to live out his remaining years.

Don't hold your breath on your sisters having any change of heart. Don't harbor anger at them, it will do no good, and can end up making everything worse for you. Focus on doing what is best for you and your dad and forget about them. They are not worth even a few seconds of thought. One would think family would come together in times of need like this, but clearly these two are selfish, self-absorbed, and clueless. You will not be able to change them, you can only change how you deal with their ignorance.

Also, understand that the things dad says and does come from his condition, not his heart. As others have said and it is well documented, generally the person they see the most is the one who is the target for this behavior. When we decided it was time to take mom's "wheels" away, my YB did all the talking and took the car key. On the way out, I said (out of earshot) I know she has another key, can you disable the car. He pulled the battery cable. The very next day, at a memorial service for my ex (went for my kid's sake), she called - I let it go to voice, then went outside to listen and return the call. She angrily accused me of taking her car key and wanted it back! I told her I never touched the key, which was the truth. The next day I got an even nastier call demanding I get down there RIGHT NOW and fix whatever I did to her car!!! Clearly she DID have another key and tried to use it! I told her, again, I never touched it. Around the time dementia started, I was the one she saw/talked to the most, so I get all the blame!

I plan to continue reading the posts here and if I have any other suggestions, I will post again. In the meantime, while searching for assistance or a facility, please take some precautions, such as:

* remove the oven and stove top controls so he cannot turn them on.
* use child safety locks on cabinets/drawers where you store "unsafe" items like knives.
* the microwave (and possibly the stove and washer/dryer if they are newer models) has a child safety feature:
  - press/hold the Stop/Cancel button for about 3 seconds.
  - This will lock the control panel so he cannot turn it on.
  - Repeat to unlock.
  - Install (if needed) locks on areas to keep him out of (such as a basement to reduce chance of falls.)

Back to reading...
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disgustedtoo Jul 2019
NorieV - From one or more of your responses, it sounds like you would prefer to keep dad at home. It sounds like most of the time he is okay and likes it there (and you like having him there!) It also sounds like this is the approach you are taking for now AND it sounds like a nice place too!

For those times that he becomes frustrated, angry, abusive, is it possible this happens around the same time of day, perhaps it is sun-downing? IF it is, could you work with his doctor and try some medication? Nothing to dope him up, just enough to take the edge off. Our mom is usually okay, but when she got a UTI, there was no way to control her afternoons/evenings. We had to resort to Lorazepam (there are other similar medications, if one doesn't work, try another.) She only gets a minimal dose, and only "as needed." It doesn't take weeks to build up in the system - one dose and in about 15 minutes she is calm again. She did have to take it for most of the time on the antibiotics, but they played it by ear, watching for the "behavior" before deciding to pill her. She didn't even use the refill or all of the pills before the expiration date! Just to be clear, I am not a proponent of medications! I won't take anything if I can find a good/safe alternative (currently Vit D3 and Aspirin for me!) I am even the same way for my cats! But this med was a necessity because mom was out of control for hours with the UTI.

Before resorting to medication, sometimes being able to refocus/redirect him to something else might help (if it is sun-downing, this method is less likely to work.) When he does get like this, be agreeable. Don't take anything he says or does to heart. Don't try to correct him or argue with him (you can't win in either case!!!) If possible just agree, smile and walk away. It does take time to learn how to let the "barbs" roll off and how to redirect someone who is in this funk. Sometimes something works, other times you have to be creative and come up with another plan/excuse.

Keep learning all you can about dementia - not everyone behaves the same way or responds to the same methods, so it is well worth taking time to researching/reading about it - I can still learn new "tricks" despite being on year 3.5 in facility and dealing with the early stages from a short distance (and mostly alone, despite having two brothers.)
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Siblings who don’t help is both incredibly common and horribly painful. At this point be sure you have your father’s power of attorney and health care poa so they can’t try to take over at a later date when they know nothing, and if there is any money involved, consult an attorney and be sure that they can’t interfere with your ability to make all decisions for your father and how to spend his money.

Your sisters have have proven that they don’t care and won’t help, so you need to make sure that they can’t do you or your father any harm. Sometimes when money is involved people make horrible decisions in order to benefit themselves. They lack empathy so don’t expect them to have integrity.

I’m sorry you have these kind of sisters. I always thought my problem was that brothers don’t help, but in truth it’s that many siblings of both genders don’t help. And they get support for their attitude because we live in an age when helping others is often labeled co-dependent behavior and those who don’t bother helping congratulate themselves on their mental health. Even my therapist tries to label me as codependent for taking care of my mom with dementia, until I point out that no one is addicted and no one is enabling anyone to lead an addicts life. I’m simply taking care of the person who I love and who loves me. She didn’t choose dementia. I’m not enabling her to have dementia.

You absolutely need help, so you will have to pay for it. Your father’s money should pay for a caregiver to come in to give you time off and to make leaving your father safe. If money is a problem, then you have to look into what Medicare and Medicaid will pay for, and you can meet with your sisters to see if they will contribute when faced with the reality of the situation.

And the reality is that that you can’t do this care on your own anymore. Don’t wait until you’re too sick to sort it out. Make a plan now.
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disgustedtoo Jul 2019
Wow... nice therapist. S/he'd probably label me as being cold because I said there is no way I could take on the 24/7 care-giving! You sure you want to continue with this one, or find another who is living closer to reality?
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Before I finish reading all the other posts, I DO have to address this one:

"Oh, and yes, my sister does come to the house now and then....when she wants money."

The correct response would be "You brought this on yourself, it is YOUR responsibility." Close and lock the door and let her go sort it out for herself. It IS your house, you don't need to let her in.

The reason for the above:
I know that might sound cold, but it IS reality. I will add that while there are many families whose members all chip in, maybe not totally equally, but they do what they can, there are many more who behave like your sisters. You can make things worse for yourself trying to resolve this "fairly", being angry and/or frustrated, wishing for more help. None of that will work. Cut your losses and move on. Being angry only hurts you, not them. And I do MEAN close/lock the door on her. She isn't there to visit dad, so don't let her in. I would probably tell to be sure her hand isn't in the way while I close the door....
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NorieV Jul 2019
You make me laugh Disgustedtoo! But by closing the door on her, it will not help matters. To picture it, though, is very funny.
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The moment he dies...they will all show up like circling vultures waiting for a piece of the estate money pie. Guaranteed.
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NorieV Jul 2019
You betcha Cetude. It happened when my mom died. Suddenly her precious jewelry and other things disappeared. But that's a whole other chapter. My dad sold his house and got rid of a lot of the furniture, etc. I'm sure there will be scavengers lurking, though, with whatever he has left.
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I am So very Sorry you have Siblings so Selfish who Obviously Don't want to get Involved or even Monetarily,Momentarily, Don't see a Reason to.
I see you May need to eventually take Mature Matters in your own Hands, And Put Dad somewhere where he can get more Professional Care. It sounds like he has Alzheimer's and this only gets Worse in Time...
make arrangements too, If this might happen down the Road, So Medicaid won't Take all of his Money, honey.
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NorieV Jul 2019
Thank you Parise.
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Doubt if you're going to get anywhere with siblings. Keep in mind that you, none of them, offered to let him live in your home. More than likely they would have been okay with just putting him in a facility. None of them inherited the caretaker and empathy gene. What readers here don't really know is, did dad sell his house and move in with you and has been using the money for his care or household expenses. Although still not right, they may think you benefited from his moving in so it's all on you.

Not sure what the finances are, but if there's money use it to pay for someone to come in a couple of hours a week...or a couple times a week. You may also talk to his doctor to find out if there is any kind of home health he can order to help you out with Medicare/Medicaid/Health Insurance help.

You are only going to get more frustrated and do harm to your own health to keep arguing with the siblings. You can try demanding, but it appears they already drew a line in the sand.
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NorieV Jul 2019
Actually, I didn't charge Dad anything at first. It was my sister who lives far away who told Dad to pay me a couple hundred to help with utilities, laundry, and cooking for him. He willingly agreed. Now, he'll be paying to have an aide come in to help. I feel better knowing that someone will help me.
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Then get your Dad evaluated for care or hire in home help. What your sisters are doing is unacceptable. I'm so sorry for your loss. If it were me, I'd be knocking down my sister's excuses with reasons like the fact that this man is your father for ALL OF YOU and the fact that it's 2 HOURS of "their" time to watch him. And if they can't be bothered to help physically watch him, tell them you expect them to start paying, yes I said paying, for his care. No one has the right to act high and mighty with entitlement when it's their parent that needs help as well as their sibling.
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kbuser Jul 2019
Such great advice! I'm in a similar situation with 3 siblings that don't help. I met with an elder law attorney a couple weeks ago and he said the uninvolved siblings need to start pitching in financially for my mom's care. Whether they will is a different story.
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The painful reality is that you have selfish siblings and they aren't required to help care for you dad. So, try to ignore that aggravation and ask yourself what you need to do to help yourself. I hear in your question that you fear for your dad's and your own safety as well as your home. You are at a crossroad in the care of your dad, and clearly his needs can't be met by you alone. If he doesn't have the money to pay for people to come into your home to care for him and you are feeling overwhelmed by his decline, it is time for dad to be taken care of elsewhere. This is what he needs and this is what you need. You obviously love and care for your dad, so make sure that he is in a location nearby so that you can raise the quality of his time on this earth to the best possible. If he has the money for care (from you and others), make sure everything is in writing so that if in future, you place him in a facility and Medicaid is involved there is clear proof that he hasn't gifted you any money.
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Somewhat similar here.  Husband passed, one year later almost to the day my dad become seriously ill, couldn't walk, had sepsis poisoning that caused dementia type behavior for a year.  I took my dad in, broke my heart to see him like that, he'd helped us such much when my husband was ill and passing.  At this point dad has been living with me on year 6, I'm lucky that he's markedly better in mind set than he was, except physical age is catching up fast, heart problems and cancer.  I've had little help over this six years,  and none from my one sibling.  I could go on and on and vent about that sibling, pretty much just think of your worst nightmare with a sibling and I've had it.  Physically threatened me and our dad, attempted lawsuit, dad threatened.  He lived off our dad for years and years, so when dad moved in with me, he couldn't get to dads funds, he tried though.  Even with all this, at this point if my dad developed dementia to the level you describe with your dad, I would find the nearest best facility and I would admit him, I would be there every day at different times for a visit to check on him, which I have done when he's gone into the hospital or skilled over the years, but yes, that is what I would do.  I don't believe you would need any siblings permission either to do this given the physical state he is in, just have his doctor evaluate him and refer him to a facility, also not knowing what your dad's legal paperwork is, but everybody should have it legally lined out a DPOA for medical and financial, and you at this point should be that person, if not you should get an attorney to line that out so you can do this, a good attorney can and will get this done for you.  Believe me, it's not going to get better or easier and even if he's in a facility care, decisions will still fall on you.  Again, you can have his doctor examine him and do a medical referral for a facility and you can tell your sibs his doctor did it if you need to do that.
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NorieV Jul 2019
Yes, we had Dad evaluated last week and the doctor is referring him to a geriatric specialist and to see if Dad's insurance will cover any help at home. The doctor also sent a note to DMV for retesting. I'm doing what I can to help the situation. I was just thinking I'd have help. Silly me!
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Why should they? You are doing it lol. With my siblings, both live about an hr away. One comes for an hour on the weekend if he isn’t golfing, the other comes once a week for a couple hours but not if something else comes up ( her husband currently is undergoing chemo so while they can go to visit their kids 5 hrs away, can’t come an hr away) . I am basically housebound due to over 30 yrs of chronic medical problems and can’t do more that take her to some dr appointments so it ends up being my husband who does most. But it’s not going to change. Before I had both my stepfather ( Alzheimer’s)and my mother but it literally almost killed me so I can’t do it any longer.
Moral to the story, don’t do what I did. Take care of yourself first even if it means an assisted living facility for your parent. Your family will not step up and you may ruin your health.
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NorieV Jul 2019
Thank you Jannner. I wish you well.
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You could write a book about why siblings don't help. Jobs, kids, distance away are real concerns that should be respected. Perhaps they don't know how to help. Then there's the "ick" factor of personal care. Perhaps they don't like being bossed by you (I've been there). If they won't come try hiring a sitter and sending them the bill.
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NorieV Jul 2019
Ha Ha Ha.....Sending them the bill would not end well. I know that one sister doesn't want Dad staying at her house because she's afraid he will pee while sitting on her couches. Yes, there are a lot of excuses. I'll see how it goes with a home care aide. I think it will be just what I need right now.
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You are a saint, and I'm sorry to hear that you are getting no help from your sisters.
If you can speak with a social worker, there may be resources available for you from the government. Some areas have elder care where they pick up seniors and take them to activities for a few hours. Others have assistance where they will send an aide to your house. It sounds like your father is not able to handle stoves, cars, etc. If he wanders, you may have to put alarms on your doors. Has his doctor assessed his condition? Medicare may pay for some of it.
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First this is just my opinion...But I understand what your going thru. My mom lived with me and made me promise I wouldn't take her to a nursing home. Even Hospice ask her on her dying bed if she wanted to go and she said NO..Yes, she screamed.. None of my 5 siblings who all but 1 live within an hour ever visited, ever offered to take her to dialysis, ever offered anything at all. I watched her sit on the side of her bed crying wondering what she had done wrong to make her kids hate her so much. I don't think it was they hated her, I think it was they loved themselves more...so they didn't visit at all unless I literally begged. I think the sooner you can accept they are not going to help and move on, the better you will be. Sounds cruel I know, but I've seen it too many times. Once one "good child" starts to care, the rest back off and do nothing... Again IMO.....

Now I want to share something I learned during my ordeal. Maybe it can help you. My dad was in the military. The government will actually pay you to take care of your dad (or his surviving spouse) if you are his caregiver. I had to get his DD214 (retirement papers from military) I then talked with the military (I forget which office) but they had me fill out the paperwork. It does take months, but the sooner you get started the sooner you will start to get some relief and can pay someone to stay with your dad. You will need to show the military where your dad pays you for caring for him. So start having him write you checks. Keep copies of those canceled checks because you will need them. He needs to pay you a fair price, nothing crazy too high or too low. Now what you actually do with that money is up to you. I gave my mothers back to her I just needed the canceled check. We actually lived off both our incomes so it really didn't matter who's money it was, it was all out together to pay the bills. Im on disability and she was retired so it took everything.

My last coversation with the VA was that we had been approved but it could take 90 days to get a check. Unfortunately that conversation happened about 30 days before mom passed. I knew she was getting worse and didn't have much time so I told the guy to forget it because she would be dead in 30 days and she did pass within a couple weeks. Point is don't waste time, get started NOW it does take months to get approved but the amount of money I would have collected would have eased a LOT of stress on the both of us since we had to count pennies literally. I don't think I would mention this to your siblings as all this will do is give them even more of a reason to depend on you because now your getting paid to care for him so they will never come back around.

Forgive my poor spelling and grammar as it's kinda early for me and I don't do too well until my med's kick in.

Good Luck and God Bless.

i think this link might help or at least get you started.
https://www.military.com/benefits/veterans-health-care/new-va-family-caregiver-program.html
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disgustedtoo Jul 2019
It is unfortunate that you told them to forget it. One thing they told me is that if it is approved, it does go back to the date they received the application, so you could have gotten "back pay." I also gave up, because the place (not the VA) that sent me the forms to process sent me EXPIRED forms. After all the time spent gathering the info and filling everything out, it was rejected. So, I had to start over. By that time, her income changed, tax laws changed, ALL the information I had on the old forms could not just be copied to the new forms. They had also updated their rules and now include something like Medicaid does (look back, consider trust funds, etc.) I had enough on my plate handling everything else and I let it go.
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