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I show her that we are right across the hall from her, but she doesn't care, she wants someone in her bed. I explain that I can't, I sleep with my husband (I'm afraid to start something that I won't be able to stop by sleeping with her). Mom has dementia and gets in these "states" where she just won't listen and is telling wild tales. Later she calms down but this discussion can last for a couple of hours and it's getting more frequent. Used to be once a week maybe now almost every night. Last night after I told her she could not crawl into bed with us, there wasn't room she asked to put a cot in our bedroom. Not sure how to handle this. Any suggestions appreciated.



Thank you.

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Many answers are in line with my thoughts. But,dosing her with melatonin - or anything - could increase her risks of falls, and I would not do it unless recommended by a gerontologist, or she is immobile and no longer a fall risk.

The ideas of a pet, a big pillow (perhaps wrapped in a flannel shirt), and a large stuffed animal all make sense to me.

I'd also consider either an infant baby doll, or a toddler sized doll for her. Baby dolls have been shown to be very calming for dementia patients. She might enjoy a bedtime routine of putting the baby to bed beside her, then going to sleep herself. Perhaps add music (lullabies might be in line with the routine) or some sound she decides would comfort the child.
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Get a white noise machine and then get her a full body pillow to hug and keep her comfortable
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Just a thought-perhaps one of those long body pillows pregnant women use would help or one of those stuffed animals-maybe the responsive kind. Perhaps a weighted blanket (not too heavy or weighted shawl.
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Agree with Riley, try a low dose of melatonin maybe, 1-3 mg. tablet about an hour before you & hubby turn in.
Stick to a routine of helping her sleep in her own bed, using the suggestions mentioned in above posts as well.
Its a phase that will pass.
Best wishes.🙏
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How about a body pillow with enough 'heft' (stuffing) to feel like another person in the bed, to put an arm around, cuddly up with; even arranging extra pillows so mom has the sensation of something to 'back her up'. I get the sense this is akin to how a small child needs someone in bed with them to fall asleep, as they learn to self-soothe. So in a way mom is regressing. One of the lighter weighted blankets might be helpful too, to calm the nervous system. The sound systems are often helpful, too.
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I agree with those suggesting real or robotic pet. There are some wonderful examples here of people going above and beyond to sit with their elderly, play music, read stories, massage etc :)
I will say Mum absolutely loves the cats sleeping on her bed. One cat is a senior so they have a special bond. Mum will ask where he is when going to bed and prep the bed for him. His also a real chill cat that is like a carer cat ;) his always purring and comforting. Some days I have played those relaxation apps. Mum particularly likes the rainforest and birds chirping sound. Just not rain as she’s sick of the rain atm with all her heart. It’s been raining here for real so much.
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xdx83xdj: Imho, perhaps your mother could sleep with a stuffed animal.
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It sounds like either you should get a battery powered stuffed animal that moves and keep that with her when you're not around and make a bed in her room and sleep there.
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When I was single I used to sleep with a huge Teddy Bear. My daughter was living with me temperately because she was going through a very bad time. One night my door burst open, and daughter, in her best exorcist voice said, "I WANT THE TEDDY BEAR". So I gave it to her. As mentioned other places, it might help your mom.

I don't know how it would be, but if you have a medium size dog, would a real one help? I have no idea if it would work or not, perhaps someone else on the forum has tried it. Mom, Spot is going to stay here tonight to protect you.
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When I was single I used to sleep with a huge Teddy Bear. My daughter was living with me temperately because she was going through a very bad time. One night my door burst open, and daughter, in her best exorcist voice said, "I WANT THE TEDDY BEAR". So I gave it to her. It might help your mom.

I don't know how it would be, but if you have a medium size dog, would a real one help? I have no idea if it would work or not, perhaps someone else on the forum has tried it. Mom, Spot is going to stay here tonight to protect you.
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Stuffed Animal
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Get a dog or cat to sleep with her or a big stuffed animal.
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Sounds like she may be frightened of the concept of death
My Grandpa is the same way
I have found Dr Bach Rescue Remedy ( applied where you apply perfume. Ie wrists & behind ears
Also a few drops in all drinks throughout the day have really helped with the irrational fears and sleep problems
avail on Amazon, EBay & all big supermarkets etc. been around 80 years. All natural. No side or after effects
Additionally a tea of chamomile )4 bags to a mug) served with honey
or Catnip tea help give a deep relaxed aleep
if he is still upset & restless I pull the sheets out at the bottom of the bed and massage his feet with a little warm olive oil with a few added drops of essential Lavender oil
look up the reflex points for head & neck on a chart on google & pay special attention to reflex points there
He slides off to sleep while I massage Then I put on some big clean comfy cotton Sox
Majority now he sleeps until the morning
Just yesterday mentioned. “I’m sleeping really well”
it’s a lot of work initially
However he’s stopped asking if he will die in the night. And if I will sleep with him
with deep sleep he’s a much easier & more happy camper also
Let us know how you get on :)
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Riverdale Nov 2021
You are a Saint! I will search for that remedy.
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I havent read all of the answers and I'm sure some will disagree with me. Your Mom is 98 years old. She didnt choose this dementia. I'm sure you love her dearly ....so show her that love and if having you sleep with her makes her happy and feeling safe.......Please sleep with her. Remember she is 98. You will feel so good when the time comes......that you did something for your Mom that meant so much to her. Trust me......It will make her feel so loved and wanted. She needs and should have that now at this stage of the game. Please give her a hug from me.
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princessasa Nov 2021
And the lady’s husband? It’s a hard balancing act for her
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Do you think a pet would help? Perhaps a dog or cat if she loves animals! My sister with dementia always loved the pets. But she also loved having a stuffed toy in her bed to cuddle.
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Hello:
I went through the same with my mother as her dementia deepened.
She would not stay in her bed and wanted to sleep with me. After a few sleepless nights trying to get her to sleep in her bed, she started sleeping in my bed. I was single at that time.
However, I was working full time and needed my rest. I really resented this, I was a single woman in her 40's sleeping in the same bed with her mother. I wondered how did my life get to this point? I realized I had to get over it and deal with what was at hand.
On the other hand, my mom seemed to morph back to a frightened girl at times.
Sleeping with me calmed her down and made her feel safe. What was happening to her was frightening enough. That was MY job to keep her safe as a her caregiver. She did the same for me as a mother.
I also knew that this could not go on for her or me. What I did was:
1. Got her ready for bed in her room.
2.Had soft music or calm tv playing. Old movies or PBS was great for this.
3. Got her in bed and made sure she was comfortable.
4. Had a soft light on and kept it on so she would not wake up in the dark.
5. Sat next to her. Sometimes I would read to her and she'd drift off. Sometimes I'd sit next to her watching tv and she would drift off. Or we would listen to music.
6. Kept the bathroom light on so if she went to the bathroom, she could see.
Once she was in a deep sleep, I'd go to my bed. A few times, she would get up
come to my door, look in but would go back to her room and sleep the rest of the night. I was afraid that she would fall downstairs trying to get downstairs but that never happened.
This behavior did not last long but was one of the behaviors exhibited after her dementia deepened. After a while, I got a hospital bed and she slept downstairs.
I sat with her a while, then she would drift off and I would go upstairs. The doors would be locked(she did not remember how to unlock) and I left the light on in the living room. By then, she was wearing Depends.
That worked for us until she was placed.
Perhaps this behavior will not last long with your mother. My mother's behaviors came and went. I disagree with some of the "tough love" answers. You will have to figure out what will work best for your mother. Try some of the softer approaches (body pillow, soft toys, sitting with her, etc...) while trying get your rest.
Good luck.
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princessasa Nov 2021
What a kind & feminine soul you are
love is the most powerful force in the universe
People don’t remember what we say, they remember how they “felt”
after being in our company
Im sure, despite her mental decline, your Mothers memories of your kindness caring & understanding remain crystal clear in her mind and heart
Bless you
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Much like a child yes? it is the disease talking. How about body pillow with heating pad. If you have the energy, be in the room reading until she falls asleep. She has a lot of fears in her brain with the disease. It exhausts you but terrifies her.
it isnt easy. one of the hardest things of caregiving
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When he goes to bed he talks to the body pillow and pats it.
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My dad was the same way. I bought a body pillow. He thinks someone is in bed with him.
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Do not give in taking her in your bed or going to hers and do not start with a cot. Set boundaries and try to get her a sleeping pill. You have to be tough. Perhaps get her a huge stuffed animal to have in bed with her. And, as someone suggested, do NOT get an animal. The animal won't understand what she might do and there will be problems - either the cat will lash out or completely hide and she would not have the slightest idea in the world how to care for a kitty. I love animals and could never be without one - ever - but it will all fall on you. Please consider the time may be coming when she needs to be placed into a facility where they are trained and paid to handle these issues. You need to live your own life.
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Is a cat an option?
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I'm the one who can't let babies "cry it out" and end up cuddling them to sleep, so I'd probably be sleeping with my mom and wondering how to get out of the situation. LOL.
When my son went through this stage (age 2), I found that talking about it in the morning when everyone was rested and cheerful did a lot more good than arguing about it at night when everyone was tired and upset. Since your mom has dementia, it might take a LOT of talking when everyone is rested and cheerful.
Definitely try the nightlight, lovie, soft music options.
My mom had trouble interpreting what she saw, and shadows turned into bugs on the wall, while lights from outside looked like faces in the window so we would leave the room lights on and close the blinds.
If you suspect anxiety, talk to her doctor about medicine.
Do you need to set up a baby monitor so you can hear if she needs you during the night?
When my mom got to the point that she could not roll over in bed by herself or transfer from bed to wheelchair, and was incontinent, I arranged to get a hospital bed in her room to make her care easier. I moved her queen size bed into the guest bedroom and the twin bed from the guest bedroom went into her room. Without any discussion, or any request from my mom, I and one of her aides started sleeping in her room when we were on duty. The other aide was a deeper sleeper, and, to avoid going to sleep, had already been sitting in a chair in my mom's room while my mom slept. We did this to comfort ourselves, and to make sure we would hear if my mom needed anything. This lasted until my mom died about six weeks later.
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Hi, this may be mentioned already, i dont have time to read through all posts right now, but my 87 yr old mom with vascular dementia LOVES a robotronic cat that I bought for her....it cost $129, but worth every penny, instead of calling my or my Dad's name every 30seconds when we leave her to do something, she now pets and talks to cat...maybe it would help your mom stay alone at night? Go to JoyForAll.com made by a company called Ageless Innovations...Good luck!
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NightHeron Nov 2021
It had been mentioned, but you're the first one to talk about price range and where to get them. (That's actually quite reasonable! I was thinking such a thing must cost 4 figures.) So your post is much appreciated. :)
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I would lay die with my mom for a few minutes until she settled in. Then I would get up to use the bathroom, or some such excuse. She was OK to sleep alone after that.
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They gave my grandma a life like baby doll to hold and she held it all the time at the end. She always loved babies and children and it was a comfort to her. When I cared for my dad who had dementia right at the end he seemed to be grasping and so I gave him a stuffed animal to hold. It seemed to calm him a lot to hold onto something. Anyway, I don’t know if that will satisfy your mom but just as a child loves a stuffy at bedtime, perhaps it might help.
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Stuffed animals, or lifelike baby dolls often do the trick. Some of them have "voices" and move. My 98-year old mother liked a cat that meowed and moved. All the best to your mother and you and your family!
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She may feel afraid and lonely. Get her a HUGE soft teddy bear and have her name him . Put him in bed with her every night but also have him near her during the day as well. Keep night lights in her room but make sure they aren’t casting scary shadows. She has become a child again. Good luck
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My mother with Alzheimers went through this stage of wanting to sleep with me. I left the light on and the TV in her room on all night to comfort her. I also got her a baby doll. The doll did the trick. Ashton-Drake has a doll specifically designed for Alzheimer's patients. My Mom loves it! You can also try a sleep aid, such as Trazadone. That worked extremely well for my Mom. Good luck to you.
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NaySquared Nov 2021
What a wonderful idea! I googled Ashton-Drake doll for Alzheimer's patients and found it on Amazon.
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How about a doll or a teddy bear etc,. with her, or if it doesn't work, put a cot in your room. You and your husband are caring enough to have her live with you, maybe a cot in the room or just outside the room, might work?
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My Mother-In-Law used to try and crawl in bed with us. Not a lot just here and there. I generally would walk her back to her room and sit with her. Sometimes I sang lullabies. Once or twice I crawled in with her. It never turned into a nightly thing. I would say maybe 4 times with weeks or months between. We did have a pill if we needed it. I think we used it maybe 3 times. It would knock her out.
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