My aunt is 93 and a spinster. She is in a lovely care home in the UK as she is now in a chair/wheelchair as she broke her hip and wouldn't do the physiotherapy. So she could not return to her assisted living (we call it sheltered housing) as she cannot manoeuvre herself even to the bathroom. She hated being in a home because for the first time in her life it was a decision made for her, as opposed to her making the decision. She is very stubborn if she can't get her way. This morning I received a call to say she has broken a finger of one of the carers and thrown a cup of tea over another. Her language would have shamed a stevedore, which is surprising as she was always careful about her use of words. I have since found out that this isn't the first tea throwing incident.I have seen her medical summary as I had to have a copy when I took her to the hospital a few months ago. There is no mention of any mental impairment, just chronic kidney failure. Are these physical outbursts in any way an indication of pre dementia in the experience of the lovely people on this forum please.
I'm so sorry, but she's going to need advanced care very soon, and I hope she will find the care she needs.
Aggression
Anger and frustration are common in dementia. As cognitive decline takes its toll, the patient grows less able to tolerate the challenges of daily life or mold the environment to their needs. The situation is made worse by the fact that impulse control is one of the early casualties in some forms of dementia, such as frontotemporal dementia (FTD). With the loss of this critical function, a patient who never had a tendency toward aggression in the past can exhibit surprising levels of rage and aggression seemingly blowing up out of nowhere.
· Do not take it personally. Anger and aggression are caused by the patient’s dementia and are not a reflection of their feelings toward you.
· Stay vigilant. Aggression is dangerous and can cause physical and emotional harm to the caregiver or bystanders. Stay alert for its danger signs and never get complacent about them.
· Most patients do better at certain times of the day. When possible, plan their more demanding activities, such as bathing, walking, or exercise, during those hours.
Causes of Aggression
Recently, my dad has become aggressive for no apparent reason. There’s been no change in his routine, living environment, caregiver, medication, sleep, or diet.
Aggression can occur for a variety of reasons, including physical discomfort, environmental factors, or communication problems. As with other behavioral problems, one often has to look beyond the obvious to find the reasons for aggression. When a patient is unable to express their pain or discomfort, even a simple headache can go untreated for hours. Look for:
· Physical discomfort such as pain, fever, urinary tract infection, colds, constipation, fatigue, sleep deprivation, sundowning, and insomnia.
· Environmental factors such as a loud TV, children running around, crowds and family gatherings (especially if they include people the patient does not know), high or low ambient temperature, or unsuitable lighting.
· Communication problems such as repeated and complex questions by the caregiver, rushed interaction, or caregiver distress and fatigue. Reduce or eliminate noise, crowds, and other distractions prior to attempting to communicate.
· Drug interactions and side effects, caused by a new medication (including prescription and over-the-counter meds), change in dosage, or mistakes in administering the drugs.
How to Deal With Aggression
I was in the other room checking my email when my mom walked in angry and hit me. I smiled and said, “It’s okay Mommy, give all the sweets and candies that you have for me!” At that moment her face lit up and her demeanor changed, and she started caressing my face. It turns out she was upset that I was spending too much time away from her.
· Look for clues right before the onset of aggressive episodes to identify and eliminate the causes of aggression.
· Don’t ask the patient why they are angry. Instead, try to find the feelings behind their anger.
· Speak positively to reassure the patient. You can say, “I understand it’s difficult for you,” or “I understand how hard it is.”
· Comfort the patient by maintaining a relaxed demeanor. Speak in a soft and reassuring tone. Remember that even subtle expressions of anxiety and tension in your demeanor may increase the patient’s anxiety and agitation.
· Engage with the patient with a confidence that communicates that you trust them and are not afraid of them. Take a
My own mother has broken both of her hips, and I recently broke my leg—which has made me more cautious and given me a firsthand understanding of how painful and difficult leg and hip injuries can be. Honestly, I don't even know how my mother manages with two broken hips and a deteriorating knee.
The outbursts you're describing do sound similar to what I witnessed with my mom when she began showing signs of dementia. Her agitation and increasingly argumentative behaviour were some of the early indicators. It wasn't until after her second fall that she was assessed and officially diagnosed.
Dementia can get quite difficult at times. I’ve learned to give her space during those moments and let things go until her mood passes. It’s not easy, but sometimes distance is the only thing that helps manage the emotional toll.
Your mother is unhappy and there’s really nothing anyone can do about it. As a VERY independent person myself, who’s just only hit 60, the thought of losing my independence is crazy making. I can’t even stand sitting here, at this stupid job, working for a virtual idiot. So, the idea that someone will remove me from my home, take me somewhere I don’t want to be, that is unfamiliar to me, to be with people, whom I neither like, nor ever will, imposing themselves upon me, is light years away from where anyone wants to be. My home and belongs, maybe pets are gone. Not a bit of happiness to be found there.
What I “think” I experienced with my mother, might sound absurd. But it is my opinion from that experience that, sometimes, even IF a person has dementia, traits of narcissism or even full blown NPD might be an even bigger problem. The nastiness is also being able to be strategic, in their destruction. In its basic form, misery loves company and they will take it out on the closest person to them. The person they feel cannot or will not leave. And they very much intend to ruin your life, as they feel justified, since their own life feels ruined now. Perhaps, the ONLY time you’ll see them embrace the situation, is when they’re made to feel like a king or queen, ruling over the peasants that are serving them. Then, it might even be bliss. When my mother went to the hospital once, she returned absolutely blissful, because I guess the staff had learned that the best way to treat narcissistic patients, is to treat them like royalty. They won’t even care why they’re there, as long as people appear to be kissing their a$$. And I also understood that when my mother conveyed to me how sweet the staff was, it was because she was trying to imbue upon me, that, too, should be treating her the same. Difference between me and the staff? I wasn’t billing her insurance.
However, if she is like my mom at all, she won’t agree. My mom sounds a lot like your aunt. She started with the memory decline first, though, and then started having significant behavioral issues. (But yes, there are some dementias where the behavioral issues start first.) Normally, the brain’s “bottom up” feelings, impulses, and agitation are countered by the brain’s “top down” regulatory mechanisms. In dementias, the top down mechanism fails to work, and you have rampant bottom up outbursts and agitation that go unchecked.
Anyway, my mom refused any and all medical treatment (which is another huge issue around being POA, etc), had screaming matches with waitresses in restaurants, cussed like a sailor at Uber drivers, hit me and my brother, pulled her caregiver’s hair, smashed her TV (twice), etc. She’s now on a medication that has calmed her down significantly, thank God.
And this was not my usual mom, who had always been calm and peaceful. Yet it did help me to know that she couldn’t help it, it wasn’t intentional, and that it was very common in dementia.
Anyway, I wish you and your aunt the best. Remember to take care of yourself through all of this.