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My husband died 4+ months ago. He had major heart and other health problems when I met him 2 decades ago, and he gradually declined until things really started to domino 2-3 years ago. Caretaking of course gradually increased over the years.


I started anticipatory grieving in the last few years and was very angry at him for ruining his own health and leaving me to go on without him. He would always tell me not to worry because he would be with me always, even after his death. My reaction to that was, “Great, but that doesn’t help me” (on the physical plane)!


I finally realized that I didn’t want to spend our remaining time together in anger, so I forgave him and gave us both some peace during the last year.


He died at home after being on hospice care for only 12 hours. (He had needed hospice services sooner, but coordinating with his VA medical staff had been agonizingly slow.) It was a shock to me that it seemed to happen so fast, even though I had known for so long that it was coming. He had been hospitalized so many times and had so many close calls.


After he passed, I was devastated and depressed and I felt like I was only half conscious for a long time.


Gradually my mental state has improved. I’ve been talking to a hospice counselor, which has helped a lot. I have continued working and have tried to stay busy and distracted from the deep feelings of grief, but coming home and being alone in this house has been hard. I have felt so alone. It’s the first time in my life that I’ve ever lived totally by myself.


A week and a half ago, I ventured out to a hospice-sponsored event. I enjoyed it, just being with other people who had been through the death of a loved one. Since then, my feelings of grief and loneliness have lifted considerably, and I haven’t cried. I’m even beginning to enjoy being at home by myself and able to do things I never had time to do before.


But now I feel guilty! It seems like I shouldn’t suddenly be over the grief. Is that what’s happening? It seems like it’s too soon, and it feels disloyal. Is this sudden change in my feelings normal? I never thought I’d feel like this a couple weeks ago, when I was crying and praying and asking my husband to help me go on without him.


I’m now thinking about how hard it was to take care of him toward the end, and admitting that I’m glad I’m not in that position anymore. Most of the enjoyment had gone out of our relationship, because it was just so hard and exhausting, mentally and physically, day after day. It was so stressful for so long.


I know the experiences of caretaking and grief are different for everyone, but if anyone has had similar experiences with unexpected feelings and reactions during caretaking and grieving, please share. And thank you all for keeping me relatively sane with your posts, which I have read voraciously over the last year or two.

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Guilty? Watch what words you use to label things. Guilt is for those who just went out and murdered someone. You didn't do that. Perhaps you are "curious". Perhaps you are perplexed? Astounded? Puzzled? I doubt you are guilty of anything. Oh, maybe parking poorly.
Here has been my experience with people who have lost loved ones, including my Mom whose love story with my Dad is likely the greatest I have ever known. I think that those who made peace BEFORE death, who did the best they could during the dying process, who understand the limitations of the human heart, who have a deep curiosity and longing to know and understand relationships, who see beauty in life, who understand contentment............they often are the ones who can get on with it. Who can accept that they did the best they could with what they had, that sometimes they weren't quite up to it, but as often they rose above what they thought they could. That things that were frightening were dealt with one at a time and increased self worth as they were.
You are correct. It is different for everyone. And like the Simon Says games sometimes there is a step backwards in the forward steps. You can be blindsided by grief, put down onto the bed in a fetal position, and that after thinking you had "come out of it".
Good on you. You are curious about it all, still. I thought my Mom would follow on after my Dad. Couldn't imagine her without him. Still remember the day she looked at me and said "You know, if I can keep my marbles and still get around? I would love a couple more years". She had them.
Take good care!!
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staceyb2 Sep 2019
I Love you response AlvaDear, but I challenge you in the "Parents with the Greatest Love Story", Lol! I am happy that you had such a wonderful experience growing up and had that admiration for their Love for one another just as I did!

We should share our stories some time!
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You are living your life.
Trust me you have not "stopped" grieving little things will hit you totally out of the blue. You will be listening to a song on the radio and all of a sudden you will be crying...been there done that. And the next time you hear it you will not have the same reaction.
You will be watching a TV show and all of a sudden you will start to cry...been there done that.
You are going to sit down to dinner one night ans start to cry...been there done that.
You will be out shopping and look at your watch and think I have to get home, the caregiver has to leave at 4..and remember there is no one.
You will walk in to the house and the silence will hit you.

I had 12 years with my Husband after he was diagnosed and the last 6 were complete care. I lost him bit by bit, day by day, year by year...
He was not the man I fell in love with. The man I fell in love with laughed, smiled not just with his mouth but his eyes smiled. The man with dementia no longer smiled, no longer laughed. He would not have wanted to be that shell that needed care. He had always been a giver not one to accept help so to be dependent on me or someone else would have been upsetting to him.
And he would not have wanted me to "give up" on life, he would want me to do the things that we had wanted to do.
I think there are 2 ways to deal with grief. (ok more than 2 but it boils down to this)
1. To live your life, go do the things that you know would have made him happy. Live your life to the fullest and honor him that way.
2. Go into a shell and pine a way and don't do the things that you wanted to do because he is not there to share them with you.
I think one is a more healthy way than the other.

And I want to thank you because during this I started to cry thinking about my Sweetheart and I miss him..(It will be 3 years next month so it does not stop).
One final thought...
Grief never ends
But it changes
It's a passage not a place to stay
Grief is not a sign of weakness
nor a lack of faith
It is the price of love.
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staceyb2 Sep 2019
Ssuch a Beautiful response, so touching and so spot on! We can only hope to have such lovely life story, even in the tragedy that is Dementia and illness. We all have so much to learn from you and to be thankful for!

Love to you FranklymyDear and Grandma, you are both Wonderwomen!!! ❤
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Greetings, my dear, quite frankly. Both your reactions are totally reasonable – grieving that he is gone, and relief that the hard hard journey is over. It is also totally reasonable to see-saw between the two reactions. Even if you really hated him, the grief will still come back – on a birthday or Christmas, or even just out of nowhere. The relief that the troubles are over will also still be there, and you need to build on it to make your new life without him. You have nothing to blame yourself for, now or for the past, and nothing to feel guilty about. Just give yourself permission to ride the roller coaster for the next few months, until things settle down. Best wishes, Margaret.
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Franklymydear Sep 2019
“Roller coaster” fits the process so well. I also like the description of grief coming in waves, very close together at first, knocking you down, almost drowning you... then slowing down, waves not so close together, but they knock you down just the same!
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I do not believe the 5 stages of grief are baloney, not in the least. In fact, most people waffle back & forth between the stages for quite some time before arriving at the acceptance stage of the process. You may not be 'finished' grieving yet, but just stepping back from the acute pain phase into a more accepting phase of things, allowing yourself to enjoy what you were unable to enjoy for a long, long time. Don't put a schedule on yourself, or all sorts of unreasonable expectations, either. "Guilt" is an unreasonable emotion to put yourself through, so please don't do it! You've been through enough. Allow yourself some peace now, my friend.
My condolences on your loss
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Franklymydear Sep 2019
You make a lot of sense, lealonnie1! Especially “just stepping back from the acute pain phase into a more accepting phase...”
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You sound perfectly normal to me! and you’ve grieved during his decline and more obviously after he died. So I’m not surprised now he is out of pain, that you are now reflecting on how hard it was towards the end and are relieved that all the worry and stress has stopped.

Besides, he told you he’d still be with you, 😉 maybe that’s how he’s helping - by reminding you how hard it was for you both and easing any unwarranted “guilt” about how long you’re supposed to grieve.

Enjoy your freedom and the happy memories before his health declined- it sounds like you both had a great sense of humour.
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I believe I've written this on a previous thread, but I'm one who just accepts that old people die and don't really get emotional about it. I loved my father and took care of him as he was declining, but when his time came, I just worked it into my plans. He died on a Monday, and I decided to have the funeral on Saturday, partly because I had a business trip on Wednesday-Thursday, but also because the funeral was to be in another state (with many relatives in that state), so I figured the weekend would allow them all to come, which they did. I don't get excited about birthdays and especially holidays although I see birthdays and New Year's as "milestones" to reach. However, I miss my father when I think of something he would have enjoyed being told and then realize he isn't here to hear it.

I was in high school when my father's mother (i.e., my grandmother) died, and I belonged to a small band, so I went to a rehearsal we had planned for that night. Afterward, my father asked "how could you do that the day your grandmother died?" and it had never really occurred to me that I shouldn't. (My grandmother lived a state away so I only saw her a few times a year, and she spoke only very broken English.) Years later I mentioned this to my father, and he just said that he was upset about his mother's death and just assumed I would be, too.

A long time ago, I got into a conversation about grieving and mentioned that I just seem to take deaths in stride and move on, and someone said the world needs different kinds of people--someone who can function well after a death can do things that need to be done that the other people are too upset to do. That made sense to me, so I just accepted myself as I am in this regard. I also mentioned the incident about my grandmother's death, and I was told that because of the distance and a language barrier, it would have been difficult to get very attached emotionally.

I've told people that if I drop dead, they shouldn't cancel their plans that day--if they have a party planned that night, then they should just go ahead, have it, and enjoy it!
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Franklymydear Sep 2019
Jacobsonbob, you sound a lot like my sister. She’s very matter of fact about life, always logical and practical, and doesn’t get overly emotional about anything. She was my rock and my salvation right before and after my husband died. When I told her how sick he suddenly had become, she was on a plane within a couple hours to come help us out. She held everything together during the difficult last hours when I was so exhausted that I couldn’t think or function. I was SO THANKFUL for her calm strength! You are so right. We are all different, and it takes all kinds of people to make it in this world!
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I see that two things are happening.

The 1st one is that you have been grieving for years, you lost him in bits and pieces.

The 2nd is answered prayers. You asked for the ability to go on with out him. Praise The Lord that you are being granted grieving mercies and comfort during this time.

I don't think that you have any reason to feel guilty. When my grandma died, I didn't have any tears left, she disappeared 10 years prior and only her body was left. It was a relief that she was finally released from the prison her existence had become.

May you continue to find happiness and contentment in your life. Hugs!
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Franklymydear Sep 2019
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IMHO, there will still be times when grief will strike you. It did me - at church when a particular hymn that my late mother liked - ACTUALLY she loved them ALL - I would start crying. I guess other parishoners must have looked at me as though I was crazy, but I didn't care. Prayers to you...
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Frankly,

I am so sorry for what you're going through. Having lost my precious dad 3 years ago, I've concluded that grief doesn't follow a timetable and the so-called "Five Stages of Grief" (you know: denial, anger, bargaining, depression, and acceptance) are baloney.

However you grieve is no indication of the depth of your feelings. There is no right or wrong way. Relief from responsibility can be a part of grief. Just allow it to unfold in its own way. (((Hugs)))
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I think it's wonderful that you are starting to see the opportunities and possibilities of your new life. I hope you don't feel guilty because there's nothing to feel guilty about. There's no timeline for grief. I don't think you're "suddenly" over it, because you've been grieving for a long time, even before the death occurred. Give yourself a pat on the back for moving forward.
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