I'm tired of cooking/preparing 3 meals a day. It's just the two of us but boy oh boy can that woman eat!! She stays slimish, I get fattish. It's bad enough I do everything here much less start making her one thing and me the other. At times I feel guilty when I buy her fast food cuz of the nutritional value....not to mention I eat it too.
Obviously you will have you lives back as a couple, but that in in itself may be a huge adjustment after sharing your home for so long. You will be freed of the burden of physical care, you will no longer have to take him into account whenever you shop or visit or want to plan a holiday.
On the flip side, he may very well turn into one of those grumpy old men who complains that you dumped him in a home and tries to make you feel bad every time you visit. So unless you are psychologically prepared for that it may be very hard. I think deep in your hearts you still feel you would be letting him down. Try to look on the move in a more positive way, make a list of all the things that will be available to him there that you can not provide... if he is cantankerous and chooses not to take advantage of the pluses that is all on him, not you and hubs!
I would start by placing him into respite so you can have a week away. No arguments just very factual - you are going into respite because we are going to the moon and back and will be unable to care for you for a week. It's no up for discussion we need to have some quality time together with some sun on our backs - end of conversation - if he gets arsey tell him it is that or a permanent position in such a facility because you ARE going to have some one on one time.
Remember the rules about visiting facilities. Go without an appointment and go more than once, use all your senses especially smell to get a real feel for the place. Ask about the ratio of staff to residents - they should know that for day and for night. Ask about religious facilitation. ask to see the kitchens, ask to see menus, ask to see entertainment diary, ask to see anything you can think of that is on your list of must haves - oh and you need a list of must haves!!!!! xxxx
I do think that a good management team makes for happier employees and happier residents, but I have also seen upper management thwarted at every attempt to reform by entrenched older employees who are resistant to change. Check out the 3 and 4 star places if you have the time, you may be pleasantly surprised.
Ask if she can take any of her own belongings with her especially something like a favorite arm chair or recliner. There is nothing worse that being forced to sit for many hours in an uncomfortable chair for the sake of "being out of bed"
Are their windows in the rooms? By that I mean something other than a pane of class looking out on a brick wall. These things may seem small but in that kind of a room a patient soon feels they are in solitary confinement especially if they get the bed by the door.
Ask to sit in a room for half an hour and see if you could tolerate it full time. Note the smells and the noise level. Look at things from your own point of view. Just because Mom or Dad is 87 and on the dementia journey does not mean that will be content with a crazy room mate who sits up all night and sings and keeps coming over and touching you. She turns up the thermostat to 80 and you get the nurse to turn it down and as she returns to the room she flicks it back up as she walks past. Sorry I was just whining but you get the drift.
Of no help or particular interest I once worked in a hospital where the geriatric wards were part of the old Dickens workhouse. Indescribable!!!!!
I think I finally understand what upsets me the most about the reaction that others have to my parents' Alzheimer's. They don't understand the tragedy of the disease.
When the 2 towers fell on 9/11, everyone was shocked. Some families didn't know for months what had happened to their loved ones.
Their loss was wrong and they had people to blame for those losses.
Our hearts ached for the families.
We cried out for justice so the President declared war on those responsible.
We didn't expect the families to heal quickly. We understood that such a tragedy would devastate them for a long time.
I'm not trying to diminsh their experiences. But is a caregiver's experience any less tragic?
When someone dies with Alzheimer's, we say that they're in a better place and that its God's will.
That its just life.
Then we go our separate ways.
We expect the families to grieve their loss quickly and move on.
We expect them to Thank God for their blessings.
We don't see the sleepless nights.
We don't see the nightmares.
We don't see the overwhelming bureacracy
We don't see all the shattered hopes and dreams.
We don't see the the devastation and hopelessness.
We don't cry out for justice.
The President is busy fighting other wars
I'm not trying to make light of your suffering cause trust me I know what you are going through but I don't really think you can compare the two things.
( she did NOT get away with this), Then yesterday an 85 yr old ex neighbor who lived next to Mom for 14 years calls asking about my selling Mom's home for friends of hers and did not offer condolences until 10 minutes into the conversation just kept telling me about her friends wanting Mom's home. We are not ready to sell yet.(and for that I will raise the price if I did sell to her, haha!) I actually thought she did not know Mom was gone! What the &%%%% is the matter with some people?? Maybe all this nasty thoughtless behavior is why I have been so depressed and very angry lately. Time to put on my helmet and sharpen my sword too. Why the bad behavior towards people grieving and caregivers?
We have already talked on the thread about society's need to put bad things aside and move on. Grief is uncomfortable, and surely you have put it behind you, it has been weeks, after all!
Your neighbor meant no harm calling about the house. To tell the truth, if someone called me the day my mother died and wanted to buy the house, I would be glad. It would be one step closer to moving down the road from the hardship I've been living. We all look at these things differently.
Thanks to all of you that were there for me during the time I cared for my Mom 24/7 when she was bedridden. {{Hugs}}, Katie...
Death of a parent is also not new to me. I lost my Dad when I was age 35. And so many more people close to me, as I am sure many others here have as well throughout our lives.
We cannot, and it was good of you to point that out.
Sorry that you and others are hurting so.
Keep sharing, we care!
Love, from Send.
No!
Maybe all these people in your life and mine need a big dose of reality. Maybe when they lose something that was so very important to them they will understand. Or not. Who cares anyways. I understand Katie.