My mother is in an ALF on hospice. Do you dread holidays as much as I do?

When my father was on hospice in his ALF, messy briefs were ALL handled by the staff at the ALF, understaffed or not. Same with meals and anything else he needed, including medication for anxiety or pain, etc. By law, a nurse MUST be on staff at all times in all Assisted Living Facilities to be able to dole out narcotics and other duties.

If your mother's ALF is telling you that YOU have to change a soiled brief or pick her up from a fall, etc, they're way out of line and you need to take the matter up with the Executive Director immediately.

The holidays should be no different than any other day in managed care. If your mother is having a hallucination, a nurse or QMAP should come in to give her a dose of medication prescribed by hospice. In fact, she should be scheduled for regular dosing if hallucinations are an ongoing problem.

Let the ED know, in no uncertain terms, that you are not going to do any hands-on care for your mother in her fragile condition and expect the staff to do it! That's what you are paying for.

A couple of years ago, we had a hail storm here which soaked my mother's carpet in her apartment in the ALF. The ED told me to take her to a HOTEL for a couple of nights while they set up fans to dry the carpet out. I was flabbergasted. I said absolutely not, and to figure out another solution because there was no way on earth I was going to be changing Depends and dealing with vertigo etc in a HOTEL room with a 92 year old woman with dementia. So lo and behold, he put her up in a different apartment in the ALF and had the staff move her bed, recliner and tv set into the new place! 😁

Speak up! Otherwise these EDs will try to walk all over you!

Good luck!

Absence for medical staff just because its a holiday weekend - why? Caring is a 365 day a year job, it cannot be picked up and put down. I'm sorry you have to deal with such unprofessional organisations.

Personally I am surprised she is still allowed to stay in an ALF at this point. She seems past that and should be either transferred to stay in LTC where there is more staff to care for her needs or if she's closer to death, then she could go to a hospice residence. Hospice can still make regular visits even if she is in LTC which is what we had for my dad. She needs more eyes on her.

My husband was under hospice care for 22 months in our home, and they never took off holidays. I have never heard of such a thing!!! There may have been a different CNA that came to bathe him if his day fell on a holiday as his regular may have requested off, but there was always someone available. You may have to see if there is a different hospice agency you can switch moms care to, as something just doesn't sound right about them "being on holiday." Best wishes.

Get another hospice company. There is absolutely no excuse for them to take off a holiday. My mother was seen by the hospice nurse on both the 4th and the 5th this week.

There are different kinds of hospices. But if they are licensed and in the USA, they MUST have care full-time, no matter if there is a holiday.

Does this facility get paid by insurance? Do they have a medical team?

My best friend's spouse was in hospital over the last week, and there was care on July 4th and July 5th, which were both holidays. It was a bit sparse, and some nurses had to work 18 hour shifts (because some will call in "sick" on holidays and there needs to be coverage).

Something seems very fishy. If you are not local to your mother, she may need a local advocate. If you are local, either get involved or let it go. If the private care will not cover on holidays, find different private care.

A friend of mine found out her family was using one person for 7 day/week, 24 hour per day care of her dad. But she was not local, so there was nothing she could do. If you only have one option - the ALF hospice and the private care your mother is using - then you only have one option. But I'm not sure why any of the fears you have are pertinent - isn't hospice temporary so a "messy undergarment" isn't as bad for someone with 6 months left vs. years with worsening pressure sores?

Cetude- Wow! You present a rather a morose description of hospice care, and certainly your description of AD death is absurd. Hospice doesn't "let your mom die", dying happens naturally. Hospice doesn't provide any curative care, nor do they shorten one's life. Why do you detail the agony of death and then tell us that your mother never experienced this? I, personally, was disgusted by your depiction of death. My wife's experience with hospice was one of compassionate care, comfort and companionship.

Hospice on holiday? That’s so odd. Health care workers work seven days a week, morning, noon and night, including holidays!

I guess if you don’t wish to do it, so you can participate in holiday gatherings or simply relax, then hire someone to be there.

Moving mom to Memory Care or Skilled Nursing sounds like a better option. Typically in Skilled Nursing and MC there would always be a full staff.
Private hire through an agency should work when when you need/want them. Yes it might cost more since the caregiver would be making "holiday pay" but someone is always willing to work a holiday just because of that.

Thank you to all who have replied. This is a heads up to all who are new to hospice as I was. Check in advance to see if your hospice provider will take off gov't holidays. I was caught by surprise. Private care is an option but my pockets are not bottomless. Best wishes to all of you who are going through this most stressful time.