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All I can say is there are many of us who feel your pain. I know that doesn't help, but we understand how you feel. I don't blame anyone for the position I'm in, but overwhelming feelings do take over from time to time. Bless you. You're doing an honorable job for your mom even when it feels more like watching your own life disappear at times.
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I only want to address one portion of your vent, this: "When she told me a few days ago that she might not make it to next spring, my initial feeling was expectant relief quickly followed by shameful guilt."

When I was working at a Memory Care Assisted Living as a receptionist prior to the plague, we had a Catholic deacon who'd come in every Sunday morning to give out communion & talk with the residents who were interested in doing so. One morning, he & I got to talking. His mother & my mother both are the same age, 93, living in Memory Care Assisted Living and declining daily, both in mental health, physical health, and general quality of life. I mentioned something about feeling guilt that she wanted to die, and that she brought it up to me daily. Know what he said?

He broke out in a huge grin, first of all. He said he prays daily for his mother to die. That he wants her to have a better life on the other side than she does here, with God, free from pain and suffering. He feels no guilt whatsoever in praying for her to pass, and advised me to rid myself of any guilt I may feel over wishing the same for my mother. We all know from the get-go that we're only allotted a certain amount of time here, and then we're done. You have no control over when your mother's time is up, just as I have no control over when my mother's time is up. And I can tell you this: I will definitely feel relief when God calls her home.

In reality, the sadness is here on Earth, watching them suffer, listening to paranoid delusions about what we're stealing or what the caregivers are stealing, what we're not doing for them, who's not calling or visiting, the daily medications they take to relieve pain..........the crying, the ranting, THAT is the sad part. Not the day they pass and transition to the next phase of their eternal lives.

Wishing you the best of luck, and the least amount of guilt possible, doing the incredibly thankless & ginormous job of caring for your mother in this condition. One day at a time, my friend.
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Lea,

I understand the deacon saying that. Smart man! Compassionate man!

I attended an end of life seminar held at my church years ago.

Hospice was one of the topics. The priest who was very much like the deacon at your mom’s facility said, “Hospice is not meant to prolong life. It is comfort care.” He said that the church understands that there is no reason for a person to endlessly suffer.

I wholeheartedly agree!
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It IS very hard, one of the hardest things to deal with ever. I feel for you so much.
I have finished my caregiving journey and it nearly killed me. I was the dutiful daughter with no help or even moral support from siblings and put in the position of being DPOA for toxic miserable parents. Years of family dysfunction, negativity and complaining. By July 2018 when I had to move them into ALF, my BP was 208/95. I was a walking stroke waiting to happen. The thing is I've been on full disability for PTSD and under the VA's care for many years. Was supposed to avoid stress! Yea right. My mother was so bitter and judgmental, but that was due to 64 years of marriage to an abusive sociopathic Narcissist until it killed her (massive stroke at 89.) I was left alone to deal with the bad tempered, paranoid delusional, pathological liar for another 17 months. To save my sanity, I had to do limited contact. Every visit would last about 5 minutes, when he started on one of his tirades swearing at me, I would say I don't have to listen to this and would walk out and go home. I managed all his finances, etc and let the professional staff do his hands on care and keep him safe. I stopped visiting completely even before the pandemic broke out. I am not yet 65 but have liver disease and other high risk factors. He finally passed in May (96) after going on Hospice, which he fought. Non-compliant - wouldn't take any of his meds or even go to the dining room for meals. So stubborn, self-centered, and completely ungrateful for all I did. I don't know how the staff put up with him. I walked on eggshells and bit my tongue for YEARS so not to upset Mom. As soon as she passed, I walked out of the F.O.G. (Fear Obligation Guilt) and started taking care of my physical and mental health. I would no longer put up with his verbal and manipulative abuse. No more guilt. I did more than a lot of adult children of toxic parents would have done. Not all parents deserve being taken care of by their kids. Everything he said and did he brought on himself and drove everyone away. I gave up my best years of a quiet retirement for them while his favorite 2 sons did nothing. I lost my health, lost vision after a failed eye surgery and 2 dogs during an 18 month period. I am still working on the anger at the unfairness. Therapy helps. Had to stop PTSD meds due to liver. It is sad that 2020 is not even in the top 3 of the worst years of my life, but it is what it is. The pandemic lockdowns were a blessing in some ways. How messed up is that?
You have nothing to feel guilty for. Do what you need to do to save yourself. The dementia will only get worse, the physical decline will only get worse, their personalities get worse the older they get. And they could be around for several more years of this! No parent should expect their children to give up their entire life and well-being for them, yet some do. Some don't even prepare for other options or build up savings for when they need care.
Thank goodness my parents had LTC insurance, but it galls me that my 2 useless brothers will each get a third of parents' estate when they did nothing to help out or contributed even one penny. (I spent almost $60,000 of my own money over the past 7 years helping out so they wouldn't outlive their money. They understood that living with me would never be an option.)
My advice is to start looking at alternatives; memory care, ALF, etc. Contact social workers for help. If she has no funds, find out about applying for Medicaid.
It's time to do research and start planning to reclaim your life while you still have your health. No one person can do it all alone. Take care of you! Best of luck!
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NavyVet90,

My heart goes out to you. You have been through the mill.

Will keep you in my thoughts and prayers.

Wishing you all the best! Take care. Many hugs!
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There are a lot of good suggestions/advice on here. I am caregiver for my husband who is in the middle stage of Alzheimer’s. He can’t stay by himself so I found a couple ladies who do not work for an agency (cheaper!) that can stay with him if I have an appointment or want to have lunch with a friend. Keep up the walks and the bike rides. They are very good for you. I see a therapist because it is hard to find someone else to talk to who understands and shows the compassion that you need. He keeps telling me that this is only a season And it won’t last forever. I also have an 88 year old mother who is very negative, critical and narcissistic, among other things. I am not her caregiver but I have had to deal with her my whole life. I’ve had to set boundaries. This is extremely important. You should not be living with her. If she cannot live alone you need to find an alternative for her. I pray you can find some help and make some changes for the sake of your own physical and mental stability. God bless.
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Thanks for stepping forward to vent, because I need to vent also
I too am caregiving, I will be 70 next year and my Mom will be 90+. Is it hard? heck yeah!
I helped my Mom with my Dad because he to had dementia and was also diabetic, Luckily, Dad didn't suffer/linger too long. At the end he no longer recognized my Mom or me. Mom had the day to day with my Dad, but I stepped in when I after I got off work. You see my Dad was a alpha male, he was hell on wheels. I'm so glad he didn't linger. Mom was a nurse very independent and caring. This new normal is a tough job. All of you who are caregiving know the deal!
As soon an I was allowed to return to the gym I did. I get up and arrive at 6am I get a chance to exhale and not think about what is waiting for me. Mom is still resting, I alert her that I am leaving! That's my only outlet. My mom's sister's only give me short breaks about once a month. You all know that aint enuf!!!
I have to dress, bathe, and do all of her needfuls. Yes, I do get cross with her at times! I also pray for forgiveness, And yes I have to apologize !
This is not how I thought I would spend my retirement. If the pandemic were not raging, Mom would be better off in assisted living. I could visit and help with her hygiene care, like I did with my Dad. For now she is better living at home. Soon I will have to make a decision but I hope that will not be necessary. My Dad didn't know us at the end and I do not want my Mom to have to live like that
Forgive me if you think of me as being cruel!! Who wants to see a love one living like that for years???
I needed this vent!!!!
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Cat and VaJo,

Wonderful responses!

So very true! Every caregiver has needed to vent. Vent away!!!

My caregiver days are over with my parents.

Caregiving is the toughest job that I ever had. It’s easy to burn out.

I am supporting my husband these days as he goes through cancer treatments.

You will find many supportive people on this forum.

Wishing both of you all the best.
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applewatch: Thank you so much for coming on the forum to vent. No one person is perfection. In essence, no one caregiver can achieve perfection. Caregiving brings forth so much emotion and is incredibly difficult. This forum has wonderful people, who can provide you with a virtual shoulder to lean on. Prayers sent to you, applewatch.
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You are not alone in your feelings or needing to vent. I am not the caregiver of my husband. I try to keep myself under control and tell myself it's the dementia and alzheimers talking, not him but it is getting harder. He is pulling away from us, distancing himself from the family and friends. Refuses to speak to them or call them. Accuses me of stealing his things, especially his money. Sits and stares at the tv watching depressing, murder shows. I finally snapped today and tried to leave the room to keep an argument from happening but he kept yelling at me. I finally told him to stop it and leave me alone. I stood in the kitchen praying for help and wishing I could just climb into my car and leave. It would be so wonderful to just step away for a few hours without having to pickup meds, groceries, etc. Just some time for me.
So vent, rant, yell. If it helps, we can certainly understand it.
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You are not alone in your feelings or needing to vent. I am the caregiver of my husband. I try to keep myself under control and tell myself it's the dementia and alzheimers talking, not him but it is getting harder. He is pulling away from us, distancing himself from the family and friends. Refuses to speak to them or call them. Accuses me of stealing his things, especially his money. Sits and stares at the tv watching depressing, murder shows. I finally snapped today and tried to leave the room to keep an argument from happening but he kept yelling at me. I finally told him to stop it and leave me alone. I stood in the kitchen praying for help and wishing I could just climb into my car and leave. It would be so wonderful to just step away for a few hours without having to pickup meds, groceries, etc. Just some time for me.
So vent, rant, yell. If it helps, we can certainly understand it.
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I don’t think this is a healthy situation for either you or your mother. You’re both so miserable and you’re not even doing a good job of taking care of her. Both of you need help!!! See if she can qualify for Medicaid and place her in the best home you can get! She’ll be happier there with lots things to do and lots people talk with. Professionals need deal with her care now .. you’re not one!!! When you visit you’ll appreciate each other and both of you will look forward to the visits ... hopefully COVID will soon end and you can take mother on outings ... meanwhile you can FaceTime, visit, bring her little gifts
favorite foods etc... and you can start taking care of yourself...
there are no good options for this illness ... and you’ll feel guilty whatever ... you do know caregivers often die earlier ..
best of luck
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You are an amazing person to do this for your mother. It is not easy to do what you are doing. Try to put any feelings of guilt out of your mind. You are doing all that a person can do. Understand that there is an extra feeling of grief during the coronavirus, for a lost lifestyle and the difficulty of connecting with others. Try to get connected with agencies that can help you. You might be able to get some counseling and advice how to deal with your own feelings. If you can, and if she will accept it, ask for help taking care of your mother so that you can get breaks. I'm guessing that an assisted living facility where they have "a village" to care for their clients may not be feasible for you and her. People with dementia have good and bad days. They often lose track of their possessions, and it can get worse. They often don't make good judgments. Don't take what your mother says personally. I hate to say this, but it can get worse. My mother, who was a creative, intelligent and very independent person is now totally dependent on others to be fed, bathed, clothed, etc.
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I am in a similar situation. One thing that helps, is venting on the Alzheimer's/Dementia Caregiver's Support Group on Facebook. There are people in the exact same situation, who understand exactly what you are going through.
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You just told my story!!! Best wishes
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It is super hard. Hang in there. I have a similar situation. Mine went to the neighbor and told them that I was a hoarder and he cannot walk in our home, that we don't feel him, that he doesn't have hot water, etc...the APS caseworker showed up and then he denied saying it all. It was very embarrassing.
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First off..... let me say I think you are a wonderful son!! I'm so glad you found this forum. Kind, caring and experience people here so vent away. I was my Mom's caregiver for 3 years after her stroke (active until the stroke, it provided the threshold for dementia, falls risks and personality changes). The only child, I was working full time in a long term care facility. Mom and I lived together so it was easy for me to use her money to pay for some wonderful assistance to sit with her while I worked. After a while she didn't like them but I told her to put up with it. It was rougher than rough. I was sleep deprived, didn't have any social life left and even my pets suffered from lack of attention. I used to record my vents and listen to the playback somehow that helped. Mom passed in 2008 (so glad that she isn't here to have to try and cope with covid!!) Now on the other side of the tunnel.... as hard as it was, I consider it a privilege to have been her caregiver. It has also made me a better, stronger and more understanding person (although, like Mom, you better not cross me because I can go from sweet to unbelievably evil in 8 seconds, lol!). Covid isolation has been difficult but I've used the "downtime" to do interesting things. I try to listen to a 3 new symphonies a week. I've enrolled in an online photography course. And because nothing makes me feel better than helping someone when I don't have to, I joined AARP's friendly voice program and make calls to isolated senior citizens. I call about 5 people and 2 of them have become really good buddies. One of them even got up the guts to figure out Zoom and we now chat every other evening. Turns out she is a master gardener and is giving me tips about my spring plantings! Checking out all the ballets that I can't go by looking at them on youtube. When ballets starts up again.... I'm going to be able to dance them better than the prima ballerina! Social life..... better than ever... and I mean that and I'm 76. New friends, old acquaintances, people I met at the dog park, all over the place. Chill and drop the quilt... you are not God, you are going to get angry and you have a right to. Know that we are all here for you now, make a plan of what you want to do know and what you want to do when we bust through covid because we will. Hope you and your friend plan on a nice meal at a cafe or restaurant to celebrate. Keep us updated. Good luck and know that you are fantastic.
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