My mom will not wake up in the morning, is it okay if I let her sleep in late every day?

Asked by irwinsu  |  Jul 25, 2011

My Mom won't get up anymore in the mornings. She started having issues with mobility about 2 weeks ago. Now she can't stand, get up, or walk on her own. I have been putting her in a transport chair in the mornings, but today she doesn't seem to want to get up at all. She has been sleeping longer and longer every day. She has also been taking in very little fluid (maybe 8 - 12 oz a day) and very little food if any. I don't know what to do. Should I just let her continue on this way? I took her to the doctor and he said this is just part of her normal decline. She has Frontal Temporal Dementia but is still communicating with me, though I am not sure she is aware all the time what is going on. Any suggestions?

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54j

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Jul 26, 2011

my husband has AlZ since 07. He too is eating and drinking about like your mom.
Doctors say its just a matter of weeks maybe months. He is able to walk slowly, but does not understand whats going on. some days worse than others. He wears Depends of course but pees once a day and that is at night. His bowels move once and it really is not in the depend its in him. I have to get that out, which is a job. He on the other hand does not sleep much at all. He will go to bed at night if I lay down with him but only sleeps at night. Never naps. Doctor says he could put feeding tube in but I dont want that. That is not living its just prolonging.
God Bless you I will pray for you and your Mom.

 
 

jeannegibbs

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Jul 27, 2011

Has her doctor mentioned Pallative Care or Hospice? Those services can be a comfort to you and to your mom, if she is in the end-of-life stage. The staff that comes to help can help you understand what is going on in your mom, and the options for dealing with it.

 
 

kimbundy

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Jul 27, 2011

When my mom is in her room or in her bed too long I call on her favorite person to come and visit or fix her favorite foods and that usually gets her started. She will get out of bed and start moving around. I try to please her as much as possible since she can't tell me what she wants anymore. If she doesn't look sick and her skin color is good, I usually leave her alone.

 
 

martine22

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Jul 27, 2011

My dad has dementia and I care for him at home. He needs my help for mobility, bathing, etc.. I have found that it helps to keep a routine as much as possible. They get used to the routine and it helps them be less resistant. If you're able to help your mom move around safely (if only to get out of bed and use the toilet), then do so. As for food, make sure she gets something like Ensure which is easy to swallow and has some nutritive value. My dad only likes to eat soft, no-chew foods like mashed potatoes, pudding, ice cream or soft-cooked veggies. See if the eating issue with your mom is just that she has a hard time chewing, I make my dad protein shakes with chocolate almond milk, protein powder and frozen blueberries--to him it's just a choc milkshake but I know he's getting some good nutrients/vitamins too. I also have to remind him to drink more water/juice--a little at a time. It's good that your mom can still communicate with you. Best wishes to you and your mom.

 
 

MaureenB

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Jul 27, 2011

My Dad also has frontal temporal lobe dementia (for about 8 yrs). If he had his way he would stay in bed all day but my mom, his primary caretaker, makes him get up by 1PM every day (some days earlier if there are things to done). It takes a while for her to get him cleaned and dressed and then he eats a HUGE breakfast/lunch- waffles (cut up), covered in yogurt and fruit on top. He will have an ensure a few hours later with a snack (we have to encourage him to keep drinking) and then by dinner time he is wiped out (from just sitting around) but we try to keep him up until 9P but most nights he is in bed around 8PM. Dinner has become difficult since my mom cooks just for the 2 of them and there are fewer and fewer foods he will eat (he no longer really enjoys food). He has good days (when he knows who we are) and bad days when he is really lost but he is not angry or sad which is really good. To answer your question about letting your mom stay in bed- I would say get as much as you can get done in the mornings while she is still in bed and work on getting her up and about by noon- like someone else said, a routine is really, really helpful (my dad goes for balance therapy 2x/wk and although sometimes it is a struggle to get him there he always likes it). If you come up with any other suggestions please let us know.

 
 

Riley

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Jul 27, 2011

Hi I have seen this with my Granny and my mother who recently passed (age 90), it seems like they adjusted to our schedule of sleeping in later. The food and water intake is a concern as this is this is a sign of retinal faiure and you should offer snacks and drinks as often as possible. They really don't eat as much because they are not moving around. Give them what they want ie chocolate, jello, juice, anything with some nutriental value even of you think its not good for them. This at best is a sign of intake of fluids and some kind of food!

 
 

Nbetts

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Jul 27, 2011

My Mom would sleep forever if she could. I have a more than full-time job and just can't get her up. So, I have a home health aide who comes and gets her up, bathed, dressed, fed and off to the Senior Day Care Center. Fortunately, this aide has seen it all because my Mom is starting to cuss her out and slap at her. Mom never cussed in her life. She goes to bed around 8Pm even on the weekend when she sleeps in until 2 PM. She plays with her food like a child playing with toys. But, she is healthy and very sweet to the others at the Day Center. I wish some of that sweetness could be reserved for her family. I miss my Mom so much.

 
 

agecare222

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Jul 27, 2011

Please call your Hospice people. They are sent from Heaven. I could not have made it with my mom if not for them. They will look after your mom with you and explain each thing that is happening to her. They are comfort itself, next to God.
God bless you

 
 

jacoblady90

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Jul 27, 2011

At least she just sleeps in in the morning. My dad has been sleeping all day every day for years. When we ask why and ask the doctor why he may be doing this the answer is I don't know and that is what he wants to do for the rest of his earthly life, so I get him up for meals he gets up to use the bathroom or if he really wants he will get up to go out to eat. He loves to eat out but he can't afford to do it every day and I don't have a job for extra money so we eat home most days. Any way that's what's happening at this house. Just keep up the good work and take care of yourself too.

 
 

anonymous101100

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Jul 27, 2011

Good posting. My Mom has been bukling at the knees often especially when trying to get her out of a chair. Getting her out of bed is a huge hassle and depending on the day, I have to pull her up. Once I pull her up and she yells, I quickly talk about the birds ouside, etc and she is fine. Most days she can walk with me pullingher both hands while I walk backwards to the bathroom but some days she cannot , she walks in a sitting position and I pray we make it before she falls, awful!
IF I didnt make her drink, usually with a straw, she wouldnt. She loves yogurt and puddings now and seems to eat if I help her . The bright Trix colors gets her to eat her finger food when I sprinkle them around but she cannot use silverware. I cannot find a person for two days a week to help me now so I can go back to work in sept because she wont get up. My 3 day a week woman is fabulous, its so hard to find good understanding trained people. I have mountains of pj's and bedpads that are all urine, nothing seems to keep her dry at night, and I am a slave to laundry now no matter what I try. Everynight I throw in a disenfectant load with bleach and hot water for 2.5 hours. She seems to release her urine at night when she is relaxed and rarely during the day. I tried to change her in bed one day and she kicked and yelled, it was impossible. I need help too so I will be watching these postings closely. Our breakfast has also turned into Brunch. I hate to use the wheelchair as that will stop her from moving all together so I make her walk as much as I can. I guess they get frozen joints if they dont move so I try my best. Today Mom is barely smiling and can barely keep awake, some days she smiles and chuckles all day long, anyone elses like this? I cannot imagine my mom in bed 100% for 1,2,3, or 4 years, that thought sickens me. Mom at least she has a living will in which she refuses a feeding tube, that I do understand as I wouldnt want one either unless I could recover. Its so tough....................

 
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