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Okay friends...so the plate is full here with active dad at 102 and deaf which is a challenge in itself; and then mom who is 97 with dementia, but thank goodness moderately functional with supervision. So I overhear dad last night telling mom he isn't going to kiss her goodnight because he "might" be getting a cold. (Translation: we have a biohazard alert in progress for the next 10 days and his germs will be on every handle, door knob and in the air so the pup and I will self-isolate or do a disinfection of the surfaces before spending time in any room. Also putting mom at risk because he's not kissing her but sleeping in the same bed in the same room and using the same bathroom). And then he goes out today (to spread his germs further) and stops down the block at the sister and bros in law of our neighbors (neighbor was in highschool with me and went on to become a dentist to my folks as well; this is his wife's sister and hubby). He came home and was ever so anxious on seeing me, to pass me a note that this woman had jotted down the name of an ENT doctor because he has an on-going complaint of feeling "off balance". Also the number of a balance clinic of some sort.
Call me cynical. He has seen the one of the best ENT's this town has to offer and he was told then, and BEFORE, that his hearing loss is profound and there is no hearing aid that will help him. He is stubborn as the day is long and although this ENT said (to me) why is he using the hearing aid? (which is useless) he asked him and he (dad) believes it helps. So ENT shrugs his shoulders with a "whatever."
As for the balance, it could be related to the hearing loss. The primary guy suggested PT. He went and saw no benefit and ended it after 2-3 months which only benefited the pocket of the PT firm. I would expect similar games with the balance place.
A cochlear implant ad in the Veteran's magazine is ripped out for ME to check on. It is of other's opinions that 1. there is surgical risk, 2. he has been without hearing for so long his brain would not adjust and 3. it takes much getting used to and adjusting. AND if he doesn't like it, it's not like you just put it in a drawer or return it like a hearing aid. Not to mention as far as I know it is not covered by Medicare and would suck up god only knows how much $$$ which easily could be needed for care for my mother if she can't be left alone at home and I try to work so my own future is protected financially. (That's a whole other story).
Right now I am just infuriated with this well-meaning twit down the block. I really want to say YOU make the phone calls, YOU take him to the appointments, YOU come clean the house and make dinner and do the laundry and change the bedding and scrub the spots out. Basically just MIND YOUR OWN BUSINESS! And what would you all do? BTW, It's funny how when Dad wants something bad enough, he manages to use his little CapTel phone to get it. I took the note away...and may respond by telling him I am trying to get an appt with another MD to be a primary care person. One day I found a note he had written "CBD" on it. Yeah, I know what it is. THAT he didn't ask me about.

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GD, big ((((hugs))))).

You so clearly care so deeply about your parents. You are doing the absolute BEST for them.

Why do you care about what people who don't matter think?

It's a real question. Those folks? They are dust.
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gdaughter Oct 2019
Thank you...hard to change that mindset of not caring...but I did call and leave the person a message today (got answering machine) basically saying I'm sure she was well-meaning but things were under control etc and Dad had an ENT and please keep your resources to yourself etc. The machine cut me off abruptly and I called back to restate that I meant no offense, but that I really had enough to do etc. Her husband answered and when I attempted to explain and just said "ok".
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Here's what I suggest: 1) Come here to vent.
2) Don't respond to your dad or the meddlers.
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gdaughter Oct 2019
seeing this a wee bit too late. Que sera sera. As for dad, impossible to NOT respond, he will be asking. I will divert by saying I am in the process (true) of getting us hooked into another primary care doc that he can share his tale with.
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As to the "well-meaning" meddler, at least you KNOW he is well-meaning, and you know he hasn't got a CLUE. So you are ahead of the game. It never fails that the well meaning advice hits the exact time when it is the straw and the camel's back thing.
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gdaughter Oct 2019
Don't YOU know it!!! BTW, it's a woman and she and her hubby are truly really nice people...but EVERYone who knows my dad sees him as cute, nice, amazing, good neighbor etc etc. They don't see the stubborn, demanding and 100+ year old mentality. I've said it before...mom (with dementia) was his patronizing wife...and I have slipped into the role of wife-y.
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Wow, u have got ur hands full gdaughter! It's amazing that dad can still go out by himself for a walk, (very good genes in ur family, for sure:)
It didn't sound like you have any kind of household help...or respite for yourself?
Yeah, after all you do, u sure don't need the neighbor's family giving out advice 2u.
But likely the note was just to placate dad.
I do agree with u... they cud have properly called,& instead said something about helping you out, in whatever way u need.
It does hurt to feel unnoticed in this way, ...(I've been there). I wish I had better ideas for u friend! But the Good Lord sees ur faithful works toward ur parents, & sometimes doing the right thing: has to be it's own reward.
1cor 10:13b. 2cheerU :
"...but God is faithful, who will not allow you to be tempted beyond what you are able, but with the temptation will also make the way of escape, that you may be able to [a]bear it"💟🌈🌷.
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gdaughter Oct 2019
A WALK? HA! He walks daily, the neighborhood or the mall or the community center; he mows the lawn, he golfs AND he drives! Let's hope his genes minus the deafness and spinal stenosis and pacemaker needs are mine along with an adequate income to last!
No, no support or respite and I live under the same roof, which is both good and bad. We were signed up for a caregiver support program this past summer and in the end I would say it was more hassle and trouble then it was worth. I was actually relieved when I cancelled the last one or two visits. The goal was to get mom to accept personal care knowing she would be a challenge; barring that the person was expected to do LIGHT housekeeping. We had 2 primary aides once a week, and they both were nice, but did such a dreadful job it was of no help and one damaged something because of a lack of common sense. I really began to think they deliberately plot to do a lousy job so you never ask them again.
I did get away for a few days a couple weeks ago. I just abandoned ship. It just wasn't long enough and I can't afford more. Just added another $1K in debt between my dental (even with insurance) bill and my pup needing some minor surgery and lab work to have a cyst removed.
It's just nice to have the understanding here:-) Thank you:-)
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I just had surgery on my jaw. My mother wants to send me soup recipes. Not really in the mood to do cooking and there are plenty of healthy,inexpensive options. My point being some people think they are being helpful and their methods aren't. I wouldn't get so worked up. You could say thanks and let it be. You certainly have enough to do and know what you will do so I think you will do yourself a favor and some good by just hearing them out if you even feel so inclined and then disregard all the helpful advice they are not providing and continue the path you know to be best.
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When I was pregnant with my first child and constantly regaled with well-meaning but inappropriate and unsolicited advice, I would just smile and say, "Thank you, I'll see what my OB has to say about it..." and then forgot the advice. People mean well but don't have insight into the totality of your situation.
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NeedHelpWithMom Oct 2019
Then after the baby is born they keep giving advice!
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I agree with many above. The adventures in care giving is difficult enough with out the frustrations of dealing with the meddlers. Initially, we tried to be nice and polite with their "advice", but it reached a point when the intrusions became positively ridiculous, and after four years of playing nice, I finally let them know just how unwelcome their remarks had become.

We nicknamed our set the "Gladys Kravitz 1, and 2 and 3. They would take turns showing up and create trouble and turmoil. I ultimately renamed their cell ID's as well, so I'd know which was calling from their various numbers, and ignore the call, and quit answering the door if they showed up. There calls and texts were especially unwelcome when I was at work.

I detest their meddling, advice, opinions, gossiping, and overall intrusion in personal business in every way. Clueless, definitely! I often have the dream of "pushing" each down a row of bleachers like a slinky. We even named our grandson's slinky, "Gladys". It took some planning, but we ultimately elected to put measures in place to create as much distance as possible. Do what you have to do to make your job easier. (and adopt a slinky for that moment of shear frustration!)
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gdaughter Oct 2019
Ohhh...dear Mrs. Kravitz!! Not all will remember her, but I sure do.
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Have you talked to the meddler and asked that certain issues NOT be brought up with dad as you have all you can do to keep them safe, fed, the house kept and earn your own retirement?

Sometimes just letting people know how overwhelming it all is and then their helpful input causes more havoc than can be dealt with.

Honestly people just don't know how much trouble their well intended advise causes. I would approach it with gratitude and honesty and say something like, if you really want to help, here is what would provide real help for dad...this will do 1 of 2 things, either get them to avoid giving dad advice or get you someone that is willing to help.

Family is different, they usually want to create havoc if they know the situation and keep instigating problems. Then you tell them to jog on and block their number.
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gdaughter Oct 2019
As stated above, before I saw all the savvy advice here, I did make the phone call this afternoon and then was cut off on the machine so called back to explain again so they would not think I was a miserable witch. Maybe I will follow up with a note. I know they care about him and are truly well-meaning, but they are as some have said, totally clueless as to what amount of time and energy goes into this EVERY day. That well-meaning advice means no less than a half hour on the phone connecting to set up an appt and even more time to rearrange the appts around my work schedule, using my sick time to accompany him to the appts. ANd then there will be the time of the routine testing so they can get more money before the consult ...and on and on. And I'm sure they couldn't imagine that and of course I would not want THEM taking him. When I think about it, I had picked out (with great care) a primary doc for my folks and this same person either worked within the practice or something, but suggested another person and THAT'S who the folks saw. I was livid then because I had invested so much time and care..BUT...it turned out that he was one of the most caring and decent people I have ever met and I love him. He left the system, but we still sporadically keep in touch and he even stopped by dad's 100th birthday party...
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I doubt if he's a candidate for any type of surgery at 102! Probably just the lady's way of politely sending him on his way and that's all.

Get a dry eraser board to communicate easier and clearly.
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gdaughter Oct 2019
Well, elective surgery maybe not...but just so you know, after his 100th birthday he wasn't feeling so hot and wound up having a pulse of 35. Steady 35. Got a pacemaker. Doing great. That procedure was done with less anesthesia and it was pretty awful and traumatic for him...but I'm afraid, if offered the opportunity he might still agree to endure that level of pain to be able to hear.
We are way beyond dry erase boards...he has an iphone with an app on it and you talk into it and he reads the words on the screen and can reply. Oh and I forgot when listing all he does in a day that he also volunteers as a packer for meals on wheels as he has for over 25 years!
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That was great info that Margaret M provided (few posts down), about cochlear implants. Explained why old people aren't the best candidates to get one. (At his age the vibrations may not actually help him, & cud drive the poor guy crazy). Made sense to me anyway. Thanks MM.
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gdaughter Oct 2019
The bad thing about the implant is 1. It is a surgical procedure with risks, and 2. it is equally complicated to undo if he didn't like it and did drive him crazy. BTW, we have an outstanding couple people at our local Costco who referred us to one of the best ENT's in town that we saw. Costco sells the hearing aids that are most helpful for the masses..and he explained there was a kind that worked by dealing with the bone somehow...but the ENT said it would not work for him.
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Lol. That’s awful. My strategy would probably be “in one ear and out the other.”

Maybe you should send the old biddy a note of your own: “Please send a check for $400,000 to pay for all these treatments.”

I can’t stand people who intrude on my private business on a pretext of “helpfulness.”

What is he seeing this woman for, anyway?
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gdaughter Oct 2019
In one ear...no pun intended, right LOL? Ok, well, seriously, she's not an old biddy...she is more middle aged and she and her husband truly are kind, nice people who have treated dad well. EVERYone loves good old Sam. But yes, I think clueless as to the realities of what goes on under our roof or in their bankbook. Dad was just visiting/walking, making the rounds and they probably got to talking and he probably mentioned his physical complaint of feeling off balance. I don't recall if I mentioned but he had complained of this to the primary doc who thought it was worth his exploring a round of PT. It served no obvious benefit after 2-3 months and he quit. So she was probably just trying to be helpful/resourceful with no idea of what work and hassle she was generating for me with the multi-page to-do lists. I mean seriously, I feel like I need a day off just to make all the phone calls for his issues. Some of which I generate for his /their well-being. Like a clean home, getting rid of black mold in the shower door, the new garage door he wants etc. So she's just a nice neighbor down the block and he just stopped to say hi I imagine because he's friendly and has time to do that since he doesn't do laundry, cook, clean, etc etc. LOL.
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thanks everyone. You are more supportive than the support group I go to :-)
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I don't have any advice for you about meddling neighbors who have suggestions for surgical procedures on 100+ year olds, except to say OH HOW FREAKING STUPID. I just wanted to say how in awe I am of your commitment to caring for TWO parents THIS old. You are one amazing human being, and a far better woman than I. I believe I would have shot myself by now, had I been in your shoes. My mother is 92.5 years old, doesn't even live with me, and tries my patience daily. I cannot imagine doing this for another 10 years, not for one second.
Kudos to you, dear woman
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gdaughter Oct 2019
Aw, gee thanks, but I am hardly the only one doing this and what you don't see/hear is the cursing and nasty nasty comments under my breath that I try to contain because my angry tone is picked up on by my pup who thinks I am angry with her...and to be fair, the referral to the ENT MIGHT have been in re to the balance issues; the implant was his own idea he has harbored for years and came up AGAIN, thanks to an ad in the VFW magazine that looked like text and said in the tiny print that it was an "advertisement". Such slime. I am not amazing. It's payback for all they have done for me, but I was not as big or demanding a pain as they can be. They also had me when they were older so at 63 I still have some juice left, but I tell you...more lately I sit down at 8 PM and drift off having missed what I intended to watch. My job is working with older adults as well...been there 28 years and the joy is gone, but I do help and have even more compassion for the family members dealing with this stuff of course. Thanks for the compassion:-) We all do what we gotta do. HOwever, I must admit that the mom's worn/frayed housedress is lying on the laundry room floor right now, stained with her poo and possibly pee and I am debating about scrubbing it or ditching it:-)
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Okay, you have received lots of great advice. I just have a comment about your dad. He should replace the pink rabbit on the ‘energizer’ battery commercials! He is amazing! I bet you could write a book about him. It would be a fabulous read. I love human interest stories and he has quite a story. If everyone could get around as well as he does at his age we wouldn’t mind getting old.

I have to ask what his younger days were like. Please share with us.
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gdaughter Oct 2019
That's so sweet of you...wait till you hear this: ok, so dad was always a hard working, industrious person with strong ethics. He ran his own muffler/shock type business and it was a private chain in the Detroit area but there was one here in Cleveland he bought from his boss and we moved here, away from all family in the 60's. It was in a neighborhood increasing in crime and unrest to the point he had to hire off-duty cops to stand guard but when that expense began eating into the income and a UPS driver got held up outside his door, which he kept secret, he sold out to a national chain and then worked in a private company as a manager until he really retired at I don't remember what age. He always kept busy, he mows the lawn, volunteers at meals on wheels daily (he drove for them until one day the board went OMG! Sam is 90? and with great ageism and bias told him he couldn't any longer even though they had no liability and he continues to drive to this day and accepted another role at MOW. He sneakily calculated getting TWO cataract surgeries done (with me in attendance of course) right before his 100th so that he could be sure to pass the vision screening on the driver's lincense renewal, which he passed. The cataracts were so minimal the tech wondered if they would even DO surgery. But, he was always dependent on the women in his life for the details to be tended to. Cooking, cleaning, laundry, bills, appt making etc etc. Lots of etc LOL. He can shop for essentials like OJ, pastry and has learned to make frozen meals in the micro. The key is to stay engaged and have friends even if your peers pass away. On his 100th he wanted a big party and as he said "how often do you turn 100?" LOL. We had about 50 people, neighbors, family, volunteers he was close to. Got permission officially from the Energizer people to use the image of the bunny on his cake, and it was the frozen frame from a commercial I fell in love with while being very sick in bed and sat up and KNEW that's IT! It was the theme along with red, white and blue for his patriotism (he's a WWII vet). He used to volunteer for Habitat for Humanity but I think my mother in her pre-dementia phase put an end to it by intercepting phone calls, plus the group kind of disbanded when some of the leads, younger than dad, passed on. And, although I didn't write a book, amusingly enough it took a couple years, but this year I finally put together a huge book with all the greetings and cards and prior articles and commendations/certificates and photos. I must say I have a bit of talent for it, and did do a nice job of it. I FINALLY finished it the night of this past Father's Day...about 2 minutes after he went to bed LOL. But he got it in the AM and was thrilled with it. Mom with dementia was intrigued and kept going through it. So we left it out. And that day or the next when I came home from work, it was on a table and something looked amiss...a couple of the pages were sticking up out of the protective sleeves..and I was devastated to discover mom, who is into ripping things like the newspaper at times...had pulled things off a few pages. No, not people she was not fond of (like me LOL). But she nailed a lovely confirmation from the owner of the party hall, a wish card he had filled out into pieces but left a business photo card of the guys Irish wolfhound we all loved. And some greeting cards. Dad, bless him (and then I) went through our huge city provided trash bins for pieces to patch back. So now we keep the book safe. He is hopeful, positive, optimistic, and determined and demanding..that and always having a good woman or two. That's the secret. His deafness doesn't stop him. He uses an iphone to have people speak into it with a dictation app, and then responds. He's short so people think he's cute. He's a character. One time local mayor attempted to help at MOW; learned how not to interfere with his "method". Married 70 yrs...
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Hi everyone: Again many thanks. Wanted to update to let you all know that as so often happens, if I am visible, I am a moving target for Dad's issue of the day. I shoved the note with the resources aside but tonight he wanted to know if I had made the appts for him. If he were not deaf I'd tell him to make them himself. Now there is no way out and I will have to follow through. No winning. Watched New Amsterdam tonight and got the idea of having someone give him Mike and Ike's as a cure:-) Stay tuned..
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Gdaughter, I would be happy to mail him some guaranteed miracle ear pills. You can pm me if you want to go that route. I will even do an official looking letter with instructions.
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gdaughter Oct 2019
I think Miracle Ear is already copyrighted LOL. To be fair we have more than one issue, and right now it is the feeling off balance. I can't tell you how much time (at least an hour) I spent on the phone, on hold etc etc. Anyone want to guess when the ear MD can see him? Jan 6 2020. Uh huh. On the list should anyone cancel before then. The balance place cannot see him without an Rx so call into MD and I forgot...today the holiest day of the year for those of the Jewish faith.... They did connect with me and will get back after talking to the MD (the nurse will that is) tomorrow. The other fam med doc I wanted to switch them to and isn't taking new patients is due to one doc leaving and another retiring...so they have their hands full. Hope my letter is convincing. Stay tuned...
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Gdaughter,

Oh my gosh! Thanks a million for sharing those things with me. They made me smile from ear to ear. He is absolutely precious! My dad had the same work ethic as yours. My dad had a similar personality too. He was also a WWII veteran. Guess that’s what attracted me to your story. Thanks again for allowing me to enjoy a portion of your dad’s life. My dad died in 2002. I loved him very much.

How fantastic of you to compile the memories of his life for him. What a special gift that was. Married 70 years! Wow!

My husband’s great grandma lived just shy of 102. She had 12 children and a couple of miscarriages. She outlived a couple of her kids.

She was a tiny little thing. Not sure if she was even 100 lbs. She was absolutely adorable! She had all of her faculties.

We rented a venue and held a 100th birthday party for her with a band. She danced to her favorite songs! No cane, no walker!

She had one living sibling who was in his 90’s that attended the party. She greeted everyone who attended, knew and remembered people she hadn’t seen in years. We had trivia posters hanging with things like, “What came first, Granny or the invention of the zipper?” The answer was Granny! It was a fun party. She stayed active until shortly before her death.

The newspaper wrote a wonderful article about her.

She got upset when at 101 one of her daughters insisted that she move into their home. She wanted to continue cooking but pots became heavy for her to lift. She needed a bit of help with certain things. She took no meds. She died simply of old age.
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gdaughter Oct 2019
Wow! Thanks for sharing that...they sure broke the molds didn't they! Ah to pass of older age in our own beds and homes looking forward to what mischief we can generate tomorrow!
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Regarding surgery at 102-yo...my mom is 90 and a retired RN. She could use a knee replacement surgery but is terrified of what the anesthesia could do to her cognitive abilities post-surgery. If you want to end your dad's pursuit of that topic, go online and research post-op effects of anesthesia on the very elderly and print out the most horrifying stories and articles and have your dad read them. The post-op worse-case scenario happened to my friend's dad after shoulder surgery and he wasn't even that old. He was a very vibrant and social guy. So sad.
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gdaughter Oct 2019
The worst stories would be absolutely no match for this life-long optimist. Not at all. You might though want to check out some stories on the SAIDO method which helps people regain cognitive functioning after anesthesia exposure...there's also the possibility of doing a local block, though that sure isn't for everyone. I knew someone who spent the remainder of her days in pain in a wheelchair because no one would do the surgery for her hip. She'd had one in the earlier days and the cement had disintegrated. She would have much preferred taking the chance.
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Gdaughter when I had surgery a few years ago my balance went out the window. My neurological chiropractor had me do a rebalancing exercise that helped me the 1st day.

If you are interested I am happy to share. It is simple and all you need is a pen or something similar.

You are blessed that he is an eternal optimist, because the opposite is a life sucking personality to deal with.
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UPDATE: Spent probably close to 1.5 hours on the demand list yesterday: The system is toxic, being on hold...listening to self-serving commercials. The new fam med doc is not taking new people because they are short staffed; the current doc was off for the day; they will get back in touch. I told them I'd be at my work number till 5; they called at 2:30 and left a message at my home requiring me to make ANOTHER call back and be on hold, only to learn the person was away from their desk and they would call ME back...all to find out they would have to call me back....the ENT has no openings until Jan 6th. We're on a waiting list if someone cancels. ANd the PT balance place needs an Rx from the fam med guy. I hope I didn't post this already but I had a headache yesterday (wonder why?) LOL.
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