My wife has diminished capacity due to severe epileptic seizures. What kind of long term care facility should she have?

It sounds like she needs medical supervision so a nursing home would be the best long-term care. As you know, seizures can kill, so skilled nursing care seems important. Look around for the best NH you can find in your community. You may have to get on a waiting list, but it's worth it if there is time to wait. Some nursing homes in some states are still terrible but most have improved and many are very good. You'll still be able to be by her side but she'll have the 24/7 care she needs.

You need to take care of yourself, too, so don't let guilt eat you up for looking out for both of you.
carol

Have you applied for Medicaid for her. Talk to an eldercare attorney and the social worker at her facility.

Willy, she goes on Medicaid, you don't. The Nursing home is required to help you fill out the application. Glad you are seeing an attorney, it is money well spent.

Medicare does go on household income for NH care and certain assets such as your home, personal effects and one car are exempt. the community spouse (you) is allowed to retain a certain amount of savings.If you are over the limit you may have to contribute to you wife's car. Your wife's income will be taken to help pay for her care aside from a small allowance. Does not feel fair but the alternative if you have the funds is to hire help in the home. The lawyer will advise on what is best in your situation. how has she been cared for in the past? does she want to remain in residential care or would she rather be at home if care was available. She is still relatively young to face long term care. Whateve is decided she will need someone trained in caring for an epileptic patient.. may not need the expertise of a registered nurse an aide can do the job. many relatives are able to care for an epileptic loved one especialy if the patient is still capable of doing their own personal care. if she remains in residential care it will need to be a skilled nursing facility

She's in a decent skilled nursing facility now. I'm just worried about after the 100 days, what happens with Medicare and other assistance.

I get too much retirement to qualify for Medicaid. We have an appt w an elder care lawyer soon

I was under the impression that the state goes by household income and not individual. OK. I see the atty Tuesday and will probably find out then. Thanks

Willy, best of luck to you. Let us know what happens. We're all in this together.