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just visit one time a week... You pick the time is most conventient for you. You can call and ask the nurses how mom is doing. You know the saying.... Give her time, she may miss you more.
Thyroid meds are a big deal. I didnt think so until I started reading up on the stuff. What a nightmare... Throid is a big deal.
You are close by... Take comfort in that. You can still drop in, talk to the front desk or head nurse... Bring treats for everyone. doesn't hurt and they may like it. Cookies, a pie, a bag of random candies. Pumpkin pie ,,,, etc.. you know what looks good to you, so you buy it and let someone else eat the calories...Don't Judge Me. It Works! I buy it, drive it around to its final destination, and drop it off. Sneak a bite of it, wash the fork, and be gone :_) It's perfect. :)
UTI's and THYROID issues...WHO KNEW!!!!
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I am going to ring in regarding your therapist being an hour away. Mine is as well and on the days that I can't get to her we have a phone call. It's not perfect but it truly works. Ask your therapist if they will do this with you. I still have the same amount of time with them and the pay is the same. It's very helpful.

Remember. Put your oxygen mask on first.
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My experience is not to completely trust NH to WATCH your mom! They always tell me that but she has fallen 3 different times. I came in the other day, they told me she was sleep. When i got to her room she was sitting up on the side of the bed, trying to get up. I have tried to get her somewhere else but because of her age and condition she wasn't excepted
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my2cents Nov 2019
Deelockhart speaks the truth!!! Never trust a hospital or any kind of facility to watch the patient.
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I don’t have an answer but wanted to tell you how sorry I am you are going through this heartbreaking situation.
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I have no advice but am so sorry you are going through this. Our parents become different people because of growing old and getting dementia. I feel for you! What thick skins we have to have while they break our hearts too. I hope you hang in there; this too shall pass.
Sending serene thoughts your way...
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Surprise, your comments make perfect sense to me; WHY are the doctors giving drugs that extend the lives of ALZ and Dem patients who have very little quality of life? I am certainly NOT for euthanasia, but artificially extending the lives of people who are miserable and making others miserable makes no sense.... Going to make sure my husband doesn't let that happen to me - or him, having to care for me.
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cherokeegrrl54 Nov 2019
I agree 100%!!!
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I am one who thinks the drugs are not proven to do ANYTHING at this point. There simply is no cure for dementia and I don't think it stops progression, a claim that cannot of course ever be proven. However, Mom does sound as though she needs medications to calm her. Clearly the sitter has been of little help with her. You will have to take this a day at a time but it does sound as though she needs medical evaluation.
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I would be less concerned about the dementia meds. After a while most do not do much. They are said to help slow progression, not stop and I doubt you will see much of a drastic decline if they are discontinued. (with a doctors ok, stop them, if there is a drastic decline restart them)
Adjusting anti anxiety medication may help.
But there comes a time when safety is more important.
If you, your family or the caregivers are not safe it may be time to consider placing her in Memory Care.
If she is not safe it might be time to consider placing her in Memory Care.
This is not a "failure" it is the disease and the progression of the disease.
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Hello Theras,
From your description, it sounds like your mom needs her meds adjusted.
You are doing the best you can in what sounds like an untenable situation.
Good on you for seeing a therapist.
My heart goes out to you, I wish you well.
R27
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Unlike other people, I would not be concerned about the BP meds, but rather the anxiety meds. My mthr is in severe dementia now- can't walk, can't say more than one word, can't feed herself. All the life extending drugs like statins and BP meds simply allow Alzheimer's to progress farther. I'd rather go out earlier than later if I'm going to have Alzheimer's like mthr's.

The anxiety meds, on the other hand, would make what life I have left much more pleasant. To me, those would be my preferred drugs if I have Alzheimer's.

If hospice is involved, have they talked to you about comfort measures only? Our hospice is so gentle talking about the end of life. They have done a great job managing mthr's problems with antipsychotic meds. Even though she can barely do anything, these drugs keep her from fighting about simple things, like being fed or changing diapers. They are wonderful.
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NeedHelpWithMom Nov 2019
I agree with your answer. I’d rather die sooner too.
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You say your therapist is an hour away. Surely in your town there are therapists who are close by. You might want to find one closer by, not an hour away.
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jacobsonbob Nov 2019
Although I don't know where Theras lives, I can believe this to be the case. After my parents retired, they moved back to the little village in PA where my mother grew up (and my father grew up in a neighboring village). There were many services for which one would have to drive nearly an hour to access.

In Thera's case, it may be that any closer therapists were tried but were not particularly helpful.
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Theras, if you are in any way a "trigger" for you mom, I think that you would be well advised to stay away. I know that you care for her and want to see her get the best care, but from what I've seen, sometimes the "best loved" child sets a dementia patient off in ways that aren't really explainable. And that the best thing is to stay home and be in touch with the staff.

Again, I'm so sorry that you are going through this torture.

((((((hugs)))))))
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Midkid58 Nov 2019
The 'best loved' will ALWAYS be there, will ALWAYS forgive, will ALWAYS take the abuse, will ALWAYS smile and make the best of rough situations. And go home and cry for hours b/c the COST of being 'best loved' is not worth it.

The 'not best loved' doesn't hang around for the abuse.

Throw dementia in the mix and you just can't win.

I'm a trigger for my mother so I simply cannot see her. She triggers me and I trigger her. It's a no win.

Yet I keep trying--it's been 4 months since I spoke to her, 7 since I saw her. I'm debating whether or not to make this permanent.

Theras--is it mandatory that your mom have a sitter while she's in a NH? She's just too much to take? My heart breaks for you. I can step out of the ring and there's 4 sibs who can step in.

And everything is harder over the holidays isn't it??

Hugs to you---your mom sounds like a harridan!
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Thank you for the understanding words. Nurse comes every morning to NH. Hospice is in and out now so I think (hope) they're on top of it. Will inquire though.
So painful to try and visit her so thinking I'll just have to go even less now.
BTY...I could write a book too, just about the last 13 years with my mother.
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Can't they crush her psych meds and put them in pudding or applesauce?
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Theras Nov 2019
Not sure but will ask about that tomorrow. She thinks the food is poison also and not eating much. Says she's on a starvation diet.
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At this point, I would only worry about the BP meds. Have a test done on her Thyroid and see if her numbers are in the regular range. If they r, don't worry about the med. Have them run the test every few months (I think its 3) If her numbers change, they can always start the med again.
This is what they did with Mom. I was also told, the elderly process meds slower than younger people do. Meaning, they stay in the body for longer. There comes a time trying to slow the Dementia process with Meds no longer work. The only meds I would worry about would be those for anxiety. It not fair for her or staff to have anxiety 24/7.

I don't see why Mom needs a sitter if she no longer enjoys or abuses her. A UTI symptoms can continue days after the UTI clears up. And can also come back. At this point, I would go with the Nurse. She says they will check on Mom. You don't have to see Mom. She is in a safe place being cared for.
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Theras Nov 2019
Yes, the BP meds do concern me but the dementia meds didn't seem to be helping as much lately. She definitely needs the ones for anxiety though.
I don't think she even wants to see me or the sitter at this point.
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My father with vascular dementia was difficult and often stated he wished I was dead too (and how painful he wanted my death to be). I didn't think there were many more difficult old folks out there but sounds like your mother has my father's antics beat hands down. My father would at least take his medications in MC, in fact he was generally much more compliant for the MC staff than the family.

Although I kept an eye on my father and communicated with the staff a couple of times a week to daily as his physical health failed, I limited my visits with my father to once a week for no more than 2 hours. If Dad started in on a rant, I told my father it wasn't good for him to get so riled up and I would see him next week as I walked out the door. The MC had cameras so I could observe Dad without him knowing I was there when he was having problems.

Is there anyway you can bribe your mother with goodies? Cookies or candy? Ice cream sunday or milk shake? I also took Dad a eatable treat when I did visit and he usually behaved himself at least until he had consumed it.

Remember dementia is not your mother's fault or yours either. She is safe and receiving as much care as she will allow. She neither needs or appreciates your visits, so there is no need to present yourself as a target for her disease's rants.
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Theras Nov 2019
My mother wants to see me suffer too, says she hopes she's here to see me like this. Thought about bribery but she's so verbally abusive I can hardly even get in a word.
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You are doing the right thing - your mother is in a nursing home, she is being cared for. If she rejects the sitter, then I would not have the sitter in attendance at least until the nursing home suggested it might be OK.  And I would not expose myself to her abuse.  The nursing home can quickly reach you in a real emergency. But remember, dementia is not curable at the present time, it advances and you are not to blame for any of this.  Take care of yourself.
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Theras Nov 2019
Thank you. Upon the advice of my therapist, I've reduced visits to only twice a week for a few minutes. Looking like it's going to need to be less. Thanks so much.
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Just ((((((((hugs)))))))).
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Theras Nov 2019
Thank you. They help.
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I have no 'stern words of advice' for you, just a big HUG. What a terrible situation you're facing, especially as an only child (which I am also). It's just mind boggling to me how horrible dementia/Alzheimer's is and how it effects people so dramatically. I work as a front desk receptionist in a Memory Care community, and I can literally write a BOOK about the antics that go on there! I've witnessed things that are truly unbelievable, and behaviors from 'loved ones' that are anything BUT 'loving'.
So I feel your pain, my friend. If you can't tolerate your mom's behavior, don't go in for a visit. Remember that this is not your REAL mother you're seeing now but the victim of a disease that has robbed her real mind and replaced it with one that doesn't work properly. Don't take things personally, but don't stay around to get verbally attacked, either. I don't think it's wrong to have the sitter stay away.......the NH will look after your mom as they said they would.

Just to throw ONE thing out there.......did the doc check to make 100% certain her UTI was fully cleared up? Sometimes, the UTIs either don't fully clear up or they come back. Sometimes, the antibiotic has to be changed and another round has to be administered. Just on the off chance that's what's contributing to this agitated behavior.

Best of luck!
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TaylorUK Nov 2019
Most UTIs are not cleared up 100% in the elderly - you have to battle to get at least a double length course, ideally at double normal dose. They just dole out pills as if it were someone younger with a simple infection. I am assuming they have had full lab work done to identify bug as well as this seems to be the case is very few situations, the Drs solution being to treat the infection based on a dip test.
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