Follow
Share

Has anyone had a good experience with paid caregivers? We are working with an agency right now that has sent a few good caregivers, several who sit around, and two people who verbally abused Mom. The problem is, my mother, who is lucid with no dementia, has always been a harsh and critical person, and orders the aides around in demeaning way. Worse, she's got a real clutter problem, so the better aides, between the clutter and being treated badly, report back to the agency. The agency then sends their worst aides--one threatened to force-feed Mom when she refused to eat the dinner that the aide had burned, another "accidentally" keeps hitting her with a broom. If we complain to the agency, their attitude is take it or leave it. Mom's behavior and the mess mean that none of their good staffers want the job.


At this point, we are looking for another agency. But Mom is unlikely to change. I am hiring, for the fifth time, a home organizer. I'm being bullied on both sides: I pay hundreds a week to the agency, only to have the dispatcher yell at me until I tell her that I'll take my business elsewhere.


Has anyone had experience getting good aides when it's not an ideal caregiving situation? The woman at the agency really crossed a line getting aggressive with me, when I am their paying customer, paying my life savings for aides who just sit around, at best.

This question has been closed for answers. Ask a New Question.
Two of the BEST caregivers I got were recent Community College Graduates, they had their CNA certification and were waiting for Nursing school to start after they had taken some exams. I hired them, both were able to study while caring for my Husband and they got some GREAT "on the job training" in a low stress situation that they would not have had if they took a job with a facility or an agency.
The fact that they had not worked in a facility or for an agency they had not developed any "bad habits" and were very careful about what they did.

So check with your local Community College or other program near you that offers a CNA course.

Now the crux of things.
You will have to follow rules and pay taxes, or at least I think it would be a 1099. I would also talk to your insurance company about workers comp insurance.
Under no circumstance should you hire someone that wants to be paid in cash or "under the table"

And you are the employer when you hire from an agency and there is no reason they should treat you with such disrespect. I would probably file a complaint if this is a Franchise agency and possibly submit a Yelp review.
Helpful Answer (1)
Report

We found help on care.com. We advertised and then interview and check references. Are very clear about responsibilities because we want it to be a good match. Its not an easy job but abusive behavior should be unacceptable. Good luck!
Helpful Answer (1)
Report

None of us have an “ideal” caregiving situation. All of our parents or spouses have multiple ailments &/or dementia/Alzheimer’s. But to hit your mother with a broom stick? I would immediately call police & have that aide arrested! Throw her in jail! & sue the agency. Call elder abuse agency. Do NOT deal with this agency ever again! Whatever your mother has going on doesn’t deserve this treatment. Please take her to ER ...& tell them you believe she has UTI ...& that you cannot do caregiving ...& you have nobody home to take care of her...& she needs placement. Hugs 🤗
Helpful Answer (1)
Report

Have you considered just hiring a private duty aid? It is far easier on you pockets, there is relationships built, and your mom will handle this process better, though it may take her time to get to know the person.

These agencies charge high amounts of money and only pay the aids pennies. Of course there is no excuse for mistreating an elderly person, bad pay or not, neither should moms behavior be a factor in providing good care.
Helpful Answer (1)
Report

If you/she can afford aides and she treats them horribly, why are you having aides when most likely she could be placed into a facility and let them deal with her. How are you allowing this behavior to affect you? Don't put up with it.
Helpful Answer (4)
Report

I would suggest prior to hiring another agency paid caregiver that you and your mother create a list for the agency of expected caregiver duties. Give a copy to the agency and keep one in the home. Make extra copies. Now to your mother's behavior. When my MIL required extensive private duty home care, my FIL was horrible to the caregivers. He was verbally abusive as well as denying them access to the refrigerator to store their lunches. My husband had to confront him regarding his behavior. What my husband said that while these caregivers were paid, they were paid to provide physical care not to be subjected to verbal abuse. I would explain to your mother that no one wants to work under those conditions even though they were being paid. Believe it or not, eventually all the aides in the current agency will become aware of your mother's behavior and not wish to care for her. My husband and I tried to compensate for my father in law's behavior by treating the aides extra nicely. I'm thinking that your mother has to at least attempt to be nicer. You know treat people the way you wish to be treated and you can catch more flies with honey than vinegar. Good, dedicated aides are out there!
P.S. Please keep in mind that the hourly fee you are paying the agency is NOT what the caregivers receive! They are paid much less since part of the fee is retained by the agency.
Helpful Answer (2)
Report

Hiring "good" care-givers is a bit of a crap shoot, even if you skip the agencies.

If/when you find good ones, praise up the wazoo to ensure they stick around! If you warn them up front that mom tends to be pushy, demanding, harsh, critical or whatever and that they should just smile and agree and continue what they were doing, hopefully you can find some who have a bit thicker skin. WE have to deal with it too, more often than they do, and generally WE are not getting paid!

It is a little confusing that your profile says you are caring for your mom in your home, but it sounds like you are hiring people for her own place? If in your home, certainly the care should be restricted to what mom needs and follow the agency or private care-giver rules. Having a to-do list which falls in line with the rules would be useful, so the aides KNOW what is expected. It it too easy to say some kind of cleaning or what have you didn't need to be done. Do it and check it off (if not really dirty, should be a snap!)

De-cluttering if possible would be helpful, for everyone. Since she isn't cognitively impaired, that could be touchy. Reorganizing, perhaps with her input, might help. Clear totes was a good idea. With mom, out of sight was generally out of mind, so when I needed to get all paperwork out of her place (she was digging out old stuff and thinking it was new!), I had YB take her out and "swept" the place of any/all paperwork. I had already taken over bills, etc, so any papers were just old news! Some needed to be kept, some tossed.

Our care-giver journey didn't last long due to mom refusing to let them in, so I can't help much there other than to say some are self-starters and industrious, others not so much. Other than that, I also question why you need to spend YOUR life savings to hire people to help mom? If she is low income, she might qualify for assistance (Medicaid, VA if dad was a veteran, etc.) You don't know what your own future might bring, so you really shouldn't tap into your own savings. Consult with EC attorneys and ask questions. Generally most will give a free half hour or so to ask questions. If she can afford the cost, hire one to explore her options (Her funds should be paying for this, not yours. If she doesn't have enough assets, there are some that will work on sliding scale or pro-bono - keep looking, they are out there.)

(I also agree that having some cameras can be very helpful to monitor things. It will help determine if someone is doing what they are paid for, and if mom is overly abusive.)
Helpful Answer (3)
Report

Not sure if you witnessed the person trying to force feed or hitting her with the broom. You might want to get a covert camera installed in the rooms your mother uses so you can see first hand what is going on with the employees when dealing with your mother. You will have proof for their agency OR something to show your mother that it did/did not happen.

Get the organizer and the caregiver to work on the same day at the same time. Once it gets cleaned up again, there should not be that much involved for the caregiver to keep it picked up and orderly. With so many people addicted to the phone these days, it is difficult to find people who really want to work for the hours they are paid - have this discussion up front with the agency. Cell phones should be used for emergency (just like a job in an office, construction job, etc) and should not be out and used throughout the work hours employee will be paid. Then use the cameras to monitor what is going on, how many hours of day someone has been on their phone and not earning their pay).

If, however, your cameras (and audio) let you know that mom is hindering the work of caregivers - tells them not to move things, clean up, etc - then you are dealing with another problem. You and mom may have to have a chat about what they are paid to do and her alternative may be to leave her home. Perhaps she would become more compliant.
Helpful Answer (0)
Report

It's a long commute from Heaven. Do you cover mileage:-)? Just kidding. But sometimes I think that is the only place we're going to find good people, and you have a real handful. These aides, the majority from what I've experienced and read, and like you have, don't want to do anything but be paid. They are nothing more than glorified baby sitters with background checks and they come with no sense of integrity but their own entertainment systems (phones). I am very glad you are looking for another agency; I know there are multiple pitfalls in hiring on your own, but wonder if you might not do better getting a tax consultant to guide you through the process and then paying an aide a higher wage directly rather than paying what you are to the agency that ABUSES YOU, who is paying the aides far less. That said, I fear your mother's cluttering is lower level hoarding at best...and how you find anyone to tolerate that (because it seems and appears so hopeless to work in that) plus her personality issues...you've got a perfect storm. I think I would check around (elder law attorney? hospital social worker? local office on aging?) to see what agencies they suggest, and then be up front with them in a nice way. This badgering the good daughters must be a trend. You may not have seen a prior post of mine where I wasn't seeking an opportunity to convey my feelings but was connected to someone who wanted to know...and when I used the word "sh=++y" to describe the work, it was "fixed" here on this page and I was told by the agency rep how she'd appreciate it if I "watched my language". Well, I'd appreciate it if they sent people who followed the care plan they had me spend time doing! Wishing you luck. Lots of it.
Helpful Answer (3)
Report
HopefulD Sep 2019
These are great suggestions. It's true: the eldercare staff and even hospital nurses pick up on who's a family "Cinderella" and some attack when they see your family bully you. They figure no one will stick up for you and you're used to it, so you won't defend yourself. And for a long time, I didn't.
When you do stand up to the nurses or staff, they'll first escalate. But the next crew will treat you like a human.
(0)
Report
We installed Nest cameras when mom refused in home care to check on her and these have been a great help. Now we have caregivers and the cameras are out in the open as a security measure and to check on things. If your mom is abusive but has the capacity for reason so can stop herself then I would give her the choice of reigning it in or not having help. If she can’t help it then you may want to speak with her doctor about this to get help. I think another’s idea of clear tubs to store her stuff while still in view is great.
Helpful Answer (1)
Report

HopefulD, I am so sorry your mother has cancer and you are having to cope with these care giving problems while you deal with her illness and continue to work. It's a very hard road but it does get easier as you gain experience in balancing care giving chores and other life duties. It's never easy, but you will get to a point where things do not seem overwhelming, at least between "events".

We recently had a post about unreliable caregivers that may also give you some good ideas: https://www.agingcare.com/questions/how-to-cope-with-unreliable-caregivers-452245.htm?orderby=oldest

One of the big challenges of decluttering is what to do with the stuff, particularly if the clutteree is around when you're trying to do it. When I engaged care givers from an agency while working on getting my father into an MC, I asked if the care givers would be willing to "pack" the visible clutter in my father's room as time allowed and they agreed. Dad's room was not dirty, but he did have over 100 medicine bottles sitting on the dresser, books and trade papers stacked on tables and the floor by the desk and dresser, etc. I purchased clear storage totes and asked them to label them with the content but to not throw anything away unless Dad agreed it was trash. The storage totes were stacked in a corner of the room where Dad could see them; because they were clear Dad could see the contents were still there.
Helpful Answer (3)
Report
NeedHelpWithMom Sep 2019
Clutter is a problem. I hate it. My mom had the same, clear storage containers so items were found easily.

I just find that for myself the older I get the less materialistic I am. I don’t want a bunch of stuff to have to dust. I would have never taken away mom’s things. They were sentimental. I appreciate experiences more than things. I do understand that items can be a symbol or memory of something though.

I find cultural differences fascinating. Look at the Egyptian way of life. They took it all with them. Oh and then there were the grave robbers. Crazy, huh?
(1)
Report
It's a challenge for sure, but be sure to let the agency know the difficulties the care givers will face going in. And if your mom doesn't have dementia she should be told to not be abusive. I think my difficulties with the home care people that were sent by agencies was at first that I believed my mom when she complained about them and also that my mom insisted she didn't need anyone's help but mine. As time went on with changes in agencies and care givers she started to accept them. I wanted to have the same person come if possible so that I didn't have to constantly give directions and to have my mom get used to the way different people did the work. One lady stayed for a year, but loved to start dramas and fights with me. She ran my mom's car into her own in the driveway, disliked having anyone in the house but her and my mom, lost money, stayed extra hours not asked for and wanted paid for it, etc. When I moved out and my son and grandson moved in to be there at night to help their grandma, this care giver would actually yell at them. They followed the schedule for the kitchen perfectly, but she did not and would get angry at them if they appeared in the kitchen to make their dinner while she was there off schedule. I put up with her, calmed everyone down over and over, and dealt with all her drama. Then she quit abruptly telling the agency I was too difficult. She had asked me to pay her for time off record and I refused. Then we got a series of very bad care givers. I changed agencies and got the best person possible on this earth. I hope you find one too.
Helpful Answer (2)
Report
CaregiverL Sep 2019
Artist, that caregiver who liked to start fights with you...I would have thrown her out with the garbage after that first fight! She sounds like she wanted to take over the house with nobody to answer to. She had an ulterior motive. I hope you made her pay for all damages including your mother’s car?!?
(0)
Report
My mother is a very difficult nasty person, who lies at the drop of the hat.

Several years ago I hired a helper for her from an agency, coming in a few hours a week to tidy up, do laundry and so on, my mother said she stole from her, the next one, just sat around, the next one broke a vase on and on it went. None of this actually happened, she later admitted this to me, and laughed. I stopped the service. And no longer pay for anything for my mother.

If your mother cannot afford to pay for help or go into AL then why not apply for Medicaid?

Certainly do not understand why any one would use their life savings for care when their are other options. That of coarse is your choice.

It is up to you to stop the bullying, she is not going to change, the ball is in your court.
Helpful Answer (3)
Report

I can't pretend this is something I feel free to air at work just yet, where my ideas on the subject would go down like a lead balloon, but I believe that part of being a good aide is trying not to allow your personal preferences to affect the quality of care you offer your client.

Of course, it is not humanly possible not to like some people more than others. Some little old ladies are sweethearts, some elderly gentlemen are true gentlemen, and others are... more challenging, shall we say. But whether you get smiles, thanks and co-operation or not, you are there to support and assist and that is all.

If a client is abusive or obstructive to the point where you really cannot do your job or your personal safety is at risk, then your employer should not send you to that workplace (or not alone, at least) and some other solution will have to be found. But rudeness, harshness, criticism, complaints are all attributable to the personal difficulties your client is facing, and it should be possible to let them wash over you and focus on the task in hand.

Which leaves you, HopefulID, with the question: how good were the aides who refused to go back? And did they actually refuse, or was the agency showing some sort of partiality in selecting aides for the role?
Helpful Answer (4)
Report
HopefulD Sep 2019
We had a stellar aide from this agency. She got assigned to a new client when Mom was hospitalized for a month. It really looks to me like the agency is sending us their "less pleasant/productive" aides because they only have so many excellent ones.
(0)
Report
It is perfectly legal to install cameras all over your home and monitor the activities of hired help, since this is YOUR home. I have quite a number of cameras all over my home--inside and outside. When the hired help know they can be watched anytime, their behavior tends to be improved. What you are describing above sounds abusive--no person has the legal right to strike another. While it is also important to realize the accusations may be false--if it is caught on camera is quite another matter, and the video can be handed over to law enforcement. Usually by pointing out cameras all over the house is sufficient to get best behavior of hired help.

I really love my camera setups because if I have to go shopping I can see mom on my smartphone...actually the entire house inside and out. It was well worth the investment. I had the same cameras for years. PS: Get your cameras installed PROFESSIONALLY--hire someone to wire it up. Do NOT get wireless. Wireless goes into sleep modes so it can miss things while "waking up" from movement. Wired cameras never go to sleep and any movement is instantly recorded. If you do get wireless, they do have the advantage of CLOUD storage, which hard wired ones generally don't. The advantage of cloud storage is that even if the unit is stolen or destroyed, you still have the videos on the cloud. Consequently I have both hard wired AND wireless in my house. If you go wireless, get the kind that PLUGS into the wall. Battery operated cameras will go flat in no time due to infrared recording at night.

Regardless installed cameras are no substitute for care. They are merely helping aides. They monitor. There are times you will have to leave the house for short periods of time such as grocery shopping and errands so these cameras are absolutely God sent. And they will monitor the activities of hired help. You can review their activities during the entire shift and see what they have done.
Helpful Answer (6)
Report
gdaughter Sep 2019
Wow..I wish I had your tech knowledge!
(0)
Report
I'm sorry, I'm going to tell you say it like it is here. I've read some of the responses here and am somewhat appalled. If I were a caregiver, working for close to minimum wage, or even for more than, I would simply not stand for mean, nasty and especially racist language and behavior. Most especially if the person I'm trying to help is not demented but just a miserable low human being. Of if the person hiring me is. To the person here who would be a "bitch" to work for, I pray you can find something in your heart to make this world we all live in a better place. But OP, I do wish you well in your struggle and I hope Mom can continue to evolve and grow in this life and the next. You do not have to be paying your life savings by the way but that's up to you.
Helpful Answer (3)
Report
katiekat2009 Sep 2019
Agree. The caregivers can pick and choose. They don't have to stay with nasty, demeaning clients and/or their difficult families. Perhaps it is time this patient went into assisted living?
(1)
Report
Much good wisdom offered below. When I needed an aid for my 97-yo aunt w/dementia (and totally broken "filter") the manager/owner of the agency came out in person to interview her (and her caregiver sister). Since I have their durable PoA I contacted this manager myself and explained that my aunt says horrible, racists things so they should probably not send anyone who would be offended. Also, she is hard of hearing and slower comprehension, so no one with an accent. After a few flops they came up with the perfect person, going on year 5 now and they adore her. She also does light housekeeping (like ironing), helps with bathroom needs, plays cards with them, drives them to appointments and is a Godsend. You should let the franchise manager know they should send out a seasoned aid with specific skillsets and don't stop rejecting aids until you get the right one. Hoping you can find the best person!
Helpful Answer (5)
Report

TG I didn't have to hire an aide. I am big on professionalism. When you work for someone, you show respect even if you get none. Not that an aide can't set boundries but it can be done without being nasty. I would ask if the aides are certified. Be upfront, tell them Mom is not easy so send an aide who can handle it.

Hate to say it but I think this is our world today. Everyone has attitude. Instead of being glad they have a job its "I don't make enough money to put up with this". So they act the way they feel. I would be a B*tch to work for. These aides would be fired.
Helpful Answer (3)
Report
NeedHelpWithMom Sep 2019
JoAnn,

With your attitude I think you would make a wonderful boss of an agency.

My dad taught me a strong work ethic. It was a powerful gift. Those are the gifts that I cherish most. You know, the gifts that can’t be wrapped up with a pretty bow but are priceless.

I am not saying that I don’t appreciate all gifts but it’s the meaning behind the gift that counts the most.
(1)
Report
See 1 more reply
Call agencies and see how their caregivers are trained to help the clients. See if you can find one that will match as closely as possible to your needs. Ask what services are provided. I did not overstep with any of the caregivers by asking for a service that isn’t a part of their policy.

Does your mother live with you in your home? Until recently my mother lived with me in my home. I had a caregiver through Council on Aging for awhile. They hired people through a local agency. Some were not so great and others were fantastic.

It is frustrating when needs aren’t met and when someone is disrespectful. Respect must go both ways. They deserve respect as well. You have a right to complain if the job is not done to your satisfaction or if they do not have the proper attitude. They have a right to implement their policies.

It sounds like you have tried to address the situation with your mom and it fell on deaf ears. I’m sorry. That is difficult for you.

When I had an issue I politely told the agency that I was not pleased with the service given. If it continued I asked for another caregiver to be sent out. Some are unreliable and simply don’t show up without even calling or giving the agency a good reason such as an emergency situation.

The agency told me that employees are told from the beginning not to take rejection personally if they are not a good fit for that client.

Caregivers are for the clients and their needs. They shouldn’t be playing on the phone, watching television or whatever if the client has needs to be met.

Having said that, caregivers are not mind readers and perhaps don’t wish to overstep in their duties. This is where making a list is helpful. It should be a list pertaining to the client only. Some people don’t like their things touched. Others would like assistance with dusting off objects. They do provide light cleaning. Light cleaning means just that. They are not maids. There are limitations. They are not housekeepers for the ‘entire house’ if the client lives with an adult child.

I was surprised once when the question of caregiving responsibilities was asked on this forum as to what caregivers should do in their spare time and saw answers like, ‘cleaning out the fridge.’ I would have never asked a caregiver to do that. How is that part of caring for the client? Hire a maid to do jobs not related to the caregiver. If a caregiver offers to do anything extra they are being generous and I would express deep gratitude to them. I spilled something on my kitchen floor once and a dear caregiver offered to mop the floor for me. I politely declined and did it myself but thought of how dear she was and told her so. Some caregivers have beautiful hearts.

A caregiver hired by an agency can assist in bathing a patient and keeping their room in order if they live with family. If they don’t live with family, then ask the agency if they will assist with other tasks that are needed. If they live alone they may do additional tasks for them.

Consider the personality of the client. Some people want a companion, someone to chat with or play a card game, crafts, whatever. Others do not want a companion. Explain this to the caregiver.

Some people are naturally self motivated. They see that the client’s trash in their room can needs to be emptied and automatically do it. Other people do better with a list. So ask the agency for a self motivated person, if not make a specific list.

A list can be helpful for the client and caregiver and may cut down on the criticism from the client. The caregiver can politely respond by saying that chores are being checked off the list as they are completed.

I hope this info helps in some way. I wish you well and hope that in the future you will be blessed with a good relationship with your caregiver.

Obviously you care or you wouldn’t be reaching out to a forum. Take care.
Helpful Answer (6)
Report
HopefulD Sep 2019
This is very helpful! Mom can be very charming at first, so when she turns into a completely different person, it's worse I think than if they understand from the start.
I'm also going to look into hiring a cleaning service. It's easy to understand that seeing what needs to be done might be out of scope for aides.
(3)
Report
See 3 more replies
HopefulD, first of all do NOT pay out of your life savings unless you are a multi-millionaire. If your Mom cannot budget for the caregivers then other arrangements need to be made. See if your Mom can apply and be accepted by Medicaid [which is different from Medicare], and see what programs are available in your State.

For my own Mom, I called a nationwide Agency which was quite professional. They sent over excellent caregivers but my Mom [97] felt she didn't need anyone looking after her as my Dad [94] could catch Mom if she fell. Don't think so, Mom. The caregivers lasted only 3 days, even the Agency's best caregiver who could deal with anyone, my Mom shooed out the door. Mom was down right mean, spiteful, and some times racist to the caregivers.

After my Mom had a major trauma fall and was placed in long-term-care, my Dad called that same Agency to help him. He had zero problem because he was a sweet gentle soul.

What was interesting, the caregiver my Mom snipped, snarled at, and shooed out of the house, came to take care of my Dad. At noon time she would drive Dad to visit with Mom at long-term-care, and the caregiver made sure it was noon time so that she could help feed my Mom. Talk about karma.
Helpful Answer (11)
Report
gdaughter Sep 2019
Wow. And one of the aides we had a couple times, mom was decent and appropriate with...and then as I was walking the aide to the door she quietly laughed and said she heard mom say "Get Lost."...we're not sure whom that was meant for, me or the aide!
(0)
Report
See 2 more replies
Rarely is there an "ideal caregiving situation." At the least you should expect a hired caregiver to be kind, capable, and a self-starter and for the agency to be eager to work with you on finding some great caregivers that your mom likes.

All agencies encounter difficult clients and often those clients are reported to the agency by a caregiver which usually results in that caregiver not going back. Then the problems becomes who does the agency send to that client and trying to work with the family to resolve the issues.

This is how it goes if you're dealing with a reputable agency. There are a lot of agencies that are non-reputable. If you're not satisfied with the agency you're with can you try another agency?

Many caregivers sit around not so much because they're lazy (although I'm sure there are caregivers that are) but because they don't know what to do. That's why I mentioned someone who is a self-starter. A caregiver may be expecting the client to let her know what her duties are and oftentimes a client doesn't know what to ask of the caregiver. This isn't so in every case but it happens frequently. There are also clients who would like the caregiver to be doing something every minute she's there. When I worked in hospice I had a client who collected flashlights and he asked me to test all the batteries and replace the dead ones with new ones. He also asked me one time to organize his hundreds of zip ties. I didn't complain, I was glad to fill the time. But about 30 minutes before my shift would end this client would come up with some time-consuming task that would run me over the end of my shift and I resented it after a while until I realized that my client was lonely and staying past my time didn't bother me as much then.

There are all kinds of caregivers and all kinds of clients and if you don't like one caregiver ask for another one. A reputable agency will try to work with you but will inform a new caregiver if the client is difficult. Not enough to scare the caregiver away but enough to let the caregiver know she may have to adjust her work to accommodate a difficult client.

You should be getting better service from your agency. Try Googling agencies in your area and paying attention to their ratings and reviews.
Helpful Answer (4)
Report
gdaughter Sep 2019
Yeah, they don't want to send the caregiver back because in order to retain the caregivers they have to keep THEM happy too.
(2)
Report
This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter