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My mom has been in AL since March 1st. She has been horrible, mean and so much more. Life is even worse then before. Too much to describe right now. I finally got her placed with an ALW which was a miracle! Already, I feel like she is going to be kicked out for her nasty behavior (demanding , not wanting to follow any rules).
Since, COVID has been lifted, she refuses to go down for meals. She does not have the money for $5 a tray for every meal. She says she doesn’t care. I talked to the administrator and he tried talking to her. But she doesn’t care. I told them, I don’t have the money and won’t be paying for even one tray. They said they can’t not feed her but they also weren’t able to persuade her. So now what? I am a loss. Just when I think things can’t get worse, they do!

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My mother refused to go for meals in her first place, too, so they delivered them. Her reasoning was that she didn't like watching "pitiful souls" being fed.

She wasn't in the correct type of care (she was in a skilled nursing facility) and needed memory care. I moved her after seven months once I figured out her memory issues were more important to focus on than her health issues.

Problem solved.
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I'd tell her she was going to pay the $5 out of her money, whether she ate or not was her own decision.

She's playing some kind of game--who knows why? The pandemic was really, really hard on seniors who were so locked in for so long.

My mom went back to BINGO today, I had to talk hard and be so firm with her that the lockdown is basically over and the ONE joyful thing in her life was back. She said "no" for 2 months to going back, and then suddenly changed her mind. I took her today ( a huge 3 blocks from her house) and picked her up and it was like magic! She was like a kid going to kindergarten, she was so anxious.

Maybe your mom is anxious and scared for some reason. Fear will rear it's ugly head as anxiety, bossiness, refusal to 'obey' the rules--a lot of unpleasant personality traits can really be called "fear" or maybe 'anger'.

Be sure and let her know she's NOT moving in with family if she's being a pill.
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JulesNeedsHelp Apr 2021
She is on Medicaid, she does not have the $5 per tray.
I told the facility that if she doesn’t go to the dining room she doesn’t eat and they told me they can't not feed her.
Yes, she has fear and high Anxiety.
Im hoping someday she will have a moment like your mom did. Thanks!
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Retired teacher here.

Our schools couldn’t refuse to feed kids, either. So, there were always Peanut Butter and Jelly sandwiches.

Perhaps, you could get her sandwich fixings like that? Or, deli meat and packages of cut up vegetables? Maybe some Ensure?

Also, paper plates? Maybe she will get bored of these choices and decide to go?

She would be “fed”, and you wouldn’t have to do her bidding.

Best wishes.
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JulesNeedsHelp Apr 2021
Sounds like that is what I will have to do. Sandwich makings or such.

Thanks!
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Why doesn't she want to go to the dining room?

Nasty behavior, not wanting to follow any rules are your answers, not hers - what reasons does *she* give?

And meanwhile, what's been happening? You don't say how long ago they lifted the restrictions but in any case she can't not have eaten, presumably. Does she have basics in her room/suite like a microwave and a fridge?
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JulesNeedsHelp Apr 2021
She does not want to get dressed to go for meals is her reason. She prefers to stay in pajamas and not leave room, she also thinks she is a queen and she wants what she wants no matter what. There is no kitchenette in her room but I did buy her a refrigerator.
Since March they ate in their rooms, two weeks ago they opened the dining room up and she has refused to go . Unbeknownst to me they have been giving her trays assuming she or I would pay for them.
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Tell your mother that you will not be paying for $5 trays and however that much puts a dent into her savings, that will be on her and not you. And that if she gets kicked out she will not be moving in with you so either she goes along to get along or there is nothing you can do to help. You need to be proactive and manage her expectations.
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JulesNeedsHelp Apr 2021
I had that talk with her last night. Even asking her what belongings she would like me to sell to pay for her meals. That did not make her happy. I then let her know that if she was kicked out she would probably end up somewhere that was ten times worse And I would end up having to walk away. I would Not move her, pack her Talk to her, I would have to be done. Living with me would never be an option.
Hugs!
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Sounds like she needs Memory Care, since her behavioral issues are so intense & in your profile you list her as having 'dementia/Alzheimers. Does the AL have a Memory Care wing/building she can transfer into?

If not, my mother had a fridge and a microwave in her apartment in Assisted Living and was able to fix her own simple meals if she didn't want to go to the dining room for meals. If your mother wants to eat and doesn't want to go down for meals, perhaps she can fix her own? If not, when she gets hungry enough, I suppose she WILL eat. Sounds like she's trying to punish you for placing her, huh? Let her know that you won't be paying $5 per meal for her temper tantrums, one way or another, so it's up to her if/when she chooses to eat.

It's one thing after another, isn't it? I'm sorry you're going through this. Sending you a prayer for a good resolution to this dilemma.
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JulesNeedsHelp Apr 2021
Sounds crazy , but my mom is the most normal I’ve seen her in years, so much so that I find myself doubting her dementia diagnosis. I think she is where she should be as far as AL versus memory care.
She has always had high anxiety and now it is way worse.
lealonnie, you are spot on, She is punishing me for placing her and she never lets me forget it!
I did get her a refrigerator and thought about a microwave, but knowing her , that will bring on another whole set of problems . Dirty dishes, no sink, spilling everywhere, having to run to the store and get her meals......etc.... But, that probably will end up being the solution! Like I said, she has no money and the facility can’t not feed her. I had told them she doesn’t eat if she doesn’t go to dining room but it sounds like they can’t actually do that. Thanks for your always great responses and prayers!
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You will tell her that if she does not do this she will run out of money. She may or may not have the capability of understanding. Tell her that when the money runs out she will be on medicaid and will not have a choice in any matter whatsoever. Tell her you cannot fix everything for her. Then recognize that is the fact. You have done what I would have suggested. There is nothing else to do. A Board and Care may be better for Mom and administration where she is may be more interested in keeping her and just may have the aids "escort Mom" to the dining area for meals in interest of "keeping her funds" if you tell them you will have to look into other care, perhaps board and care facilities where dining is close in to rooms (they generally only have a few patients, often 6 or so).
I really think other than that you are just where I told you to tell Mom you are. She will run out of funds; she will be somewhere less nice.
I am sorry you are going through all this.
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JoAnn29 Apr 2021
Can't run out of money she doesn't have. Medicaid pays for her care. OP would have to pay the $5 per tray.
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My Mom had a little kitchenette. She had cabinets, a counter and a sink. Plus a small fridge with a small freezer and a small microwave. I had the microwave removed. Mom could not have used it anyway. I had put good paper plates, plastic forks and spoons in the cabinets. If she had wanted to, I could have brought in cereal, milk any breakfast type foods for her. Lunch would have been just as easy. Soups, a sandwich. Snacks. Dinner would be the meal that she would have needed to go down for. Unless, the big meal is in the afternoon.

What would they do if Mom had no one. How would they charge $15 for a Medicaid recipient?
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JulesNeedsHelp Apr 2021
They are “justified “ because she can go down for meals, it would be her choice to ask for and pay for trays. :(
Mom just has one room no kitchen, no cabinets , no counters. I can only imagine the mess she would make, but I think that is going to be my only option.

Thanks!
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Jules, why is this your problem?

Are you mom's guardian?

This sounds hard, cruel and cold, I know. But if your mom has not been declared incompetent, then this is between her and the facility.
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JulesNeedsHelp Apr 2021
Hi Barb,
Because I put her there against her wishes. Because if she gets kicked out there will be nowhere for her to go. Living with me will never be an option.
I am POA, But if she gets kicked out I will be resigning from that and there is no one else in this world she has.
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If she's on MA then she should qualify for a waiver. Talk to her case manager about covering the cost of meal delivery to her room.
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