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He was admitted into a NH last year because he could no longer look after himself. Then this year he had to be removed & admitted into a secure dementia facility because of his aggression. He can’t walk much anymore & spends most of his time in bed. Even sitting up hurts him & all he wants to do is sleep. I am just down at the moment because he is drifting away from me.

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My heart goes out to you. This disease is horrifying... and heartbreaking. I pray that you have Faith to see you through. My Faith in God is the only thing getting me through each and every day.
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I’m so sorry about your husband. It must be so painful to experience what you’re going through. It sounds like he’s in a good setting, though. Is he getting adequate pain relief? If not, I’d consult with his doctor. Do you have someone to help support you through this? This site is very helpful. I lost my LO to dementia last year. The not knowing can be very stressful. Take care of yourself.
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I am sorry you're having to go through this right now. It's hard. I know. I would probably recommend getting hospice involved at this point, as they will try and get his pain under control, and be an extra set of eyes on him in the facility. And just because you get hospice involved doesn't mean that your husband will die soon, as my husband was under hospice care in our home for the last 22 months of his life. Just make sure that you check out the different hospice facilities in your area thoroughly as not all hospice agencies are created equal. They also offer a social worker to help you walk through each step, along with a chaplain if needed. Please take care of yourself, and may God grant you His peace in the days ahead.
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It’s beyond sad that your husband now requires this level of care, but it’s also great that he’s in a place that can handle his needs. You’re now his advocate, though it’s so hard to see him as he is now. It’s often called the long goodbye, I’m sorry you’re in this place, hope you have good friends and family to bring positive things to your life. There are also caregiver and dementia support groups that may be helpful. I wish you peace
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