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My mother, in a nursing home, needs a hearing aid. She takes it out and puts it away with no memory where it is or that it's out. We have gone through multiple styles of aids and strategies for staff. We found out they were worried about her losing yet another one, so were keeping it locked up and us having to tell them if we were going to call or visit - not okay with us because she needs to hear staff and have more than superficial conversations. Deafness is more isolating than blindness!!! Some staff have taken to writing rather than speaking, and you can imagine how far that goes in terms of meaningful time.


So my sister was finally able to go into her room last week, and had ordered another hearing aid and all was well with that. They then instituted a care plan so that an RN was to check that she has it in every three hours. So now a week in, and it’s gone again.


I’m sure there are many families who have had this frustrating problem, and I fear there’s no solution, but looking to see if there’s something we have not thought of.


Thanks for any suggestions.

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Ask your HA provider about hearing aid clips, they are devices that attach to the HA and clip to your clothes or a headband.
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Chris52 Jan 2021
Thanks! I fear that if the clips can be removed, she would do so, and then put the whole thing “away.” Still, it would create more bulk and might be easier to find.
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This is so reminiscent of when my kiddoes had mouth retainers--they'd take them out at lunch and forget to take them back off their lunch trays....nothing EVER worked, except writing in black sharpie on their arm "RETAINER?" and altho that seemed a little demeaning to them, they stopped forgetting their $300 retainers.

Someone posted a few days ago the idea that you connect a VERY thin line (like fishing line or clear sewing thread) onto the aids and connect THOSE to clips of some kind and then to the shirt of the wearer---then maybe ha's are at least mixed in with the laundry...

They also make 'device finders' (like the Amazon TILE) but they are bulky and designed for wallets, phones, etc.

If I were techie at all I'd design something like that, but tiny enough to go on a hearing aid and have it trackable. It would no doubt be expensive--but I know how much we paid for DH's hearing aids and I'd HAPPILY have paid $1000 more to put some kind of tracker on them.
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Chris52 Jan 2021
I had to laugh at the retainer analogy. Yes, how many besides my daughter’s were put on the cafeteria tray? And once she managed to swallow it!
The clip idea might be worth a try since it would make it more noticeable in trash or laundry.
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Here's a bunch of links & articles on the subject of loss prevention for hearing aids:

https://www.facebook.com/ItsHearOfficial/

http://www.getsafensound.com/

http://earstay.com/

https://shop.hearinglink.org/hear-ear----hearing-aid-securing-clip-10-p.asp

https://adcohearing.com/collections/ear-care-hearing-aid-supplies-clips-and-loss-prevention

https://www.clearliving.com/hearing/hearing-aids/best-loss-prevention-clips/

Good luck!
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Chris52 Jan 2021
Thanks! I’ll check these out.
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Been down this road! Mom moved into MC mostly "able", but she was already misplacing her hearing aid and/or forgetting to replace the battery. Before the move, she had misplaced it, some visiting relatives helped find it, but I think what they found was the previous one, that she had bitten/broken (funny part of that is she got so mad at dad for trying to bite her hearing aid, then she did it herself!) Anyway, the provider set her up with another. During the move, YB found one in her bedding, which is likely the REAL missing one. At some point the provider set it up so she had 2, but I think her hearing was already shot in that ear (otosclerosis is a progressive condition, where eventually the hearing is lost.)

Anyway, despite asking them to replace battery every 2 weeks, it wasn't being done. When I'd visit, I'd have to go search her room (on bedside table, on floor under bed, etc) or check and replace the battery. Despite the annoyance, we were managing... until it went through the laundry.

Previous provider was not responding to text, calls (mail box full), so it took me some time to find another. He set her up with a pair, both for the same ear, so we'd have a spare. It was just 3 years, so her extra insurance covered most of the cost. These were rechargeable, so I gave the charger to the nurse - take it at night, charge it and give it to her in the morning. That didn't last a few months, when it went AWOL (probably like the retainers, out with the meal trash, as she kept taking it out.) From then on, any time she took it out, the nurse would take it away. Sure, that protects the hearing aid, but like most "activity", use it or lose it. By not having it, the loss became more pronounced. It was so sad to have another resident tell me she thought mom was just rude or something, because she wouldn't respond. I told her mom had hearing loss, but she likely wouldn't remember it later. I did get mom a Boogie Board (LCD tablet you can "write" on with a stencil, and erase - saves finding a scrap of paper!) Staff even liked having that. Mom could often figure out what you were saying/asking, if it was minimal or you could pantomime, but anything longer, best to write it down.

I think the ideas of having a fishing line, or some stronger thin thread attached might have helped - like having eyeglass cords, but attached to the back shoulder or neck area, where she can't reach. Since it would likely have to be pinned there, attach a label as well, to help prevent it going through the laundry. It would dangle when removed, so the thread/line would have to be strong enough not to break. I do see on search for hearing aid cords, they do sell them, some which just go behind the head, attaching both together or with clips. I would have tried them, had I known they existed! I'd thought about those "tiles", but they seem too big... however, one site suggested this:

"Tether and tile
A solution that’s not as popular but very effective is connecting a tether and tile to the hearing aids. This method will help locate the hearing aid when the tile is paired to a smart phone. Most hearing aids can be modified to accommodate the tether. The tether when attached to clothing, provides added security."

So instead of or in addition to a tag to prevent laundering (label with name too, for easier ID), you could attach the tile to the tether, making it easier to locate.

Some or all of these ideas might help, but you'd still be reliant on staff to be more diligent.
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Chris52 Jan 2021
Your experiences sound very much like ours. I think some sort of tether sounds like the best bet (especially paired to a smart phone), so that it’s in as much as possible. One of our biggest challenges (going on for years!) is helping the staff to understand how important it is that she hear throughout the day, not just when they want to ask or tell her something specific. She is intelligent and needs genuine interaction.
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** Hearing Aid Retention Clip for BTE / RIC - Binaural, Gray Color (oaktreeproducts.com)

Google on this and your searching for hearing aids will be in the past.
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Oh wow! Did you bring back the nightmare. In over the course of two months dad lost three hearing aids. Getting them replaced, the cost and communicating with him was stressful for everyone.The main problem was taking the mask off an on. They were over the ear and would just flip off. The staff at long care could never find them and said that the cleaners probably vacuumed them up. So we had a mold made for one ear. It was more expensive but it stays in more securely. We got two small distinctive looking bowls, they look like blue pineapples. We made it part of his routine to put the hearing aid in it before bed or if he is having a shower. He has misplaced it twice but was able to find it. I wish they made them a bright fluorescent colour so they can be easier to spot. Good luck to you.
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Chris52 Feb 2021
Thanks. Colored would certainly be better!
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This is soooo common in nursing homes and AL facilities.  Hearing aides, eye glasses and false teeth are nearly impossible to keep track of.  They take them off/out and lay them down, they take other peoples, they throw them away...etc.  There was one case where one resident took out their hearing aid and handed it to another resident and they ate it.  It is crazy and the nursing staff can't stay on top of every move every resident makes. 

There are a few simple things like putting the glasses on a necklace with a big name tag on it and having a second pair made with a cheap frame that you keep just in case. Maybe the hearing aides can be attached to a brightly colored head set.  I would ask her doctor about that.  That would make them more visible and less likely to get tossed.  I don't have any suggestions for teeth. LOL  There is nothing more disgusting than one resident putting another residents teeth in their mouth, but it happens.

In the beginning it is maddening because there is so much out of your control.  You have to do the best you can and know that she is safe, she's warm, she is fed.  The other stuff is just a continuous puzzle that has to be worked. 

Good Luck Chris52.
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Chris52 Feb 2021
Thank you!
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I got sick of searching for hearing aids, and my mom was totally unbothered that she’d spent $6k on 2 sets... i read in another thread about a hearing assistance device on Amazon (looks like a hearing aid) for $39.99...so i bought it, and tested it myself. Worked perfectly and she could also hear. Please try this, it will reduce stress a little bit. Mom still lost or “disappeared” this one, but I at least have a solution. I get so dam tired raising my voice or having to shout for her to hear... it’s very frustrating. Good luck!
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NYCmama Feb 2021
would love to know the brand name
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Just a short term fix I've used with patients and when my Dad was hospitalized and left his hearing aids home. Buy a cheap, DISPOSABLE stethoscope to keep in the room, labeled with mom's name. I googled and there are some for $3.20-4.75.
As with my patients, my Dad was stunned at how well he could hear. Family and friends and staff put the ear pieces in and hold the end of the stethoscope and speak into that end. If medical personnel can hear heart beats and faint lung sounds, speaking voices are easy to hear.

Magic!
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Chris52 Feb 2021
Interesting idea - might suggest this to staff to try.
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Oy. Do we all have older relatives with this problem? One of my patients came in with an amplifier attached to earbuds, bluetooth capable, that he wore around his neck. It helped with the TV so it didn't need to be so loud to others, and with his cell phone. It was easy for him to hear me too. This was a few hundred dollars, instead of thousands, at Costco. There are many similar devices. The fidelity isn't comparable to real hearing aids and it can't be adjusted to her hearing loss but these are affordable to replace as needed.
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