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My grandma has severe headaches. It used to be just when she was low in sugar. That was manageable. Then it was when she was moving around. Again manageable. Now the last few weeks, it has been all the time. It has gotten worse. She sometimes tells me she can't see but denies seeing white spots or anything. I wonder if it's a migraine. I mentioned it to the doctor and he sent us to get iron shots. She had one on Friday and the headache didn't go away. I'm debating on taking her to the doctor's but he always seems to follow what I think and I'm out of ideas. This isn't common to dementia right? Anyone else dealing with this kind of thing and did you have any luck treating it? She's on extra-strength tylenol every 4 hours. She can't take anything stronger because she's on blood thinners and has blood blood pressure. Morphone and oxycodone does not agree with her. She gets hallucinations and doesn't sleep. I can't handle her at home on those things and I can't see that helping with a migraine anyway. Any suggestions before I go bug the doctor?

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I think you should go to the doctor and explain your concern in the same or more depth as you have here. He should engage you in a way that provides you with more information and gathers more information from you. If he does offer real testing and concrete solutions find a new doctor. I would think a CT scan at minimum is in order. Also looking for medicine interactions would be important. Too much Tylenol can cause liver failure too. It sounds like you should be pushing the doctor and not accepting the status quo.
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Time to dr swap. I'm a firm believer that they often get to a point where they don't look at the problem with fresh eyes especially with difficult elderly people. Yes it can be hard to persuade your gma to swap, but tough love needs to kick in from you. Great suggestions from others but you need a dr who can tell YOU the diagnosis. Good luck
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Although this might not be her problem, please see her doctor immediately, just in case. My mother (87 years old) had very similar symptoms (headaches and nightmares) which sent her to the hospital several times.

No one could figure it out, and they thought she was having anxiety attacks. One Another symptom she developed with jaw pain (she wasn't eating well because of it). Her dentist referred her to an oral surgeon, who asked to have a blood test to rule out "something" before he went forward.

That something was "Giant Cell Arteritis" (Aka Temporal Arterites). I won't go into details, but the blood test checks "SED rate" and one other item. If positive, it indicates an inflammation in her system. It is not definitive, but if the doctor suspects GCL, he will immediately start her on Predinsone.

This condition caused inflammation of the arteries, generally in the head (temples and optic nerve). It is very serious, because it can cause irreversible blindness or double vision and to a lesser extent, stroke or aortic aneurysm.

For a more definitive diagnosis, a temporal artery biopsy is done. Unfortunately GCL is not always detected in the biopsy either. My mother had a "bilateral temporal biopsy" and it was positive for both!

GCL is more prevalent in elderly females, and for some unknown reason, people of northern European descent (My mother had grandparents from Norway).
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She likely needs a CT scan to determine if she is having any vascular incidents.

Oh, and find her a new doctor...

The when you're taking her to is a schlub if s/he is ONLY following your direction !!!
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Migraines I know something about unfortunately. I never had a headache before going into menopause. Then Imitrex self injections were invented and they have been saving my life for 23 years! When I know one is coming on I will take a Zomig 2.5 mg tablet to see if that will stop it. Imitrex tablets made me really ill, so I switched. Imitrex injections will stop a migraine in about 15 minutes. One needs a prescription. The other latest migraine treatment is Botox (if one suffers 15 days or more per month). Medicare covers that treatment and you have to have a neurologist inject the 14 + injections in the neck, forehead, depending on your symptoms. Because these treatments are about $2,000 every three months you need insurance unless you have the funds. I tried 3 treatments, but found the side effects too great and went back to Imitrex. The injector "pen" is simple to use, but most doctors do not know how to work it or have seen it. So, get to a neurologist who specializes in migraines/headaches. My best to your grandmother.
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Wow, what wonderful information!
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My ex-hub has giant cell arteritis -- he's 77 and lives in Norway (I'm in Canada). Mrl3ill's advice is good.
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Just for your information--a side effect of Tylenol is rebound headaches. I've experienced them. They are horrible. Maybe a change to another medication is needed. I empathize with you about the doctor. I have gotten the same response from several. Please do ask him/her about the rebound headaches.
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Wow my mom who is 87 is going through the same thing. She has dementia and is complaining of headaches everyday which makes her dizzy. She has confusion, etc. and she just had an EEG and a CT scan and will be getting the results today!
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Oh my gosh.... Please take her to the ER immediately!!!! She is experiencing symptoms of Giant Cell Arteritis and she will need to be on high dosage of prednisone to keep her from going blind! If you don't trust this answer, take her to her eye doc right now who will tell you the same thing or if she has a Rheumatologist, he will tell you to get her to the hospital so as to get an IV started to arrest her Arteritis! Good luck. This is an awful disease that is rare but seen in elderly women. Please take her now!
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