My mother had a stroke 2 years ago; she is now 87. I have been her sole caretaker from that point on.
Although she has not been formally diagnosed, she exhibits most of the signs of vascular dementia. I have explained her behavior (angry, delusional, depressed, verbally and physically abusive) to the doctors, but because they claim she is still competent, they cannot force any additional testing. Her primary dr has confirmed cognitive decline, but will not help me with enforcing the durable POA that I've been designated with.
I just want to get the proper diagnosis to get her the help she so desperately needs. My family is now trying to accuse me of emotional abuse because my mom is constantly calling the same family members (including my one and only sibling — my brother) over and over with wild outlandish stories of me picking on her, bullying her, trying to control her, trying to kill her, stealing from her, etc. The family has even gone as far as calling the cops on me, twice. Of course the cops agree with me and understand my mom's illness, but these particular family members do not.
If your family has called the cops twice, I'd let them all know Mom is never coming back to your home, because of their ridiculous behavior. Let them deal with demented mom, you sacrificed 2 years and they can deal with it.
Let them deal with Mom's demented behaviors and abuse. I'd flat out refuse to get near her at this point. I'd be firing her useless Primary doctor and find a competent neurologist. I'd consider dropping your POA and let your "Golden Brother" deal with Mom.
Don't mince words.
Say: this is how it is going to be now...
This daughter needs to feel worthy to voice her opinions, feelings, and most of all, her boundaries. And, yes, it is complicated - but then, what isn't in these matters? Gena
Your family sounds terrible. Give up that Power of Attorney and let someone else take the reign. There is no way that I would tolerate that type of abuse when I'm doing the heavy lifting.
I wouldn't waste one minute confronting these people. Calling the police is a guilt tactic to keep you in line. It doesn't give you freedom but works as the opposite by keeping you tied to this situation.
Get some therapy. Get a lawyer to send these people a cease and desist letter with their harassment and false police reports being filed.
Get APS involved. Let them know that you can no longer take care of your mother. It sounds like it's time for placement. Your mother sounds like a handful. She appears competent because you have been propping her up.
Your mother sounds like she is showtiming when she gets around her doctor and others. In other words, displaying her best behavior. I would start recording her behavior so others can witness what is going on.
Whoever keeps calling the police would get mom at their doorstep. It simply amazes me how people who do the least of nothing will be the main culprit calling police and other agencies. As if you don't have enough to contend with with managing her life, your day today and other duties.
Detach yourself from this insanity. I've already been down this rabbit hole of insanity being the caregiver for a disabled sister. I have had APS called on me by an older sister spewing lies about the care sister was receiving. Mom had set up care before she passed. I inherited my sister along with all of the other unfinished business. This caregiving will tire you out.
It sounds like you are finished with this situation. A very wise woman told me once you leave someone else will step in. I made sure that sister had a group home to move to. The social worker that worked with me was an angel getting my sister in a day program where she could me taught things. She learned how to feed herself again. Her teachers were astronomical with their teaching abilities. At home with just home care consisted of bathing and feeding. Sister needed a higher level of care that she received outside of the home.
I work as a home health aide and I see what an impact taking care of someone has on families.
Trust and believe, I can empathize what you are feeling. You feel unappreciated and frustrated for helping ungrateful people.
If you mother is still considered competent, mail her a letter copying your brother that you are resigning power of attorney and mother needs to appoint someone else.
So sorry this is happening but no good thing is going to come from your continuing to be her caretaker. A change is necessary.
As things are, they think they are "helping" mom by throwing obstacles in your way. They think it lets them off the hook of actual care giving.
As an added bonus, they get to dump all the blame on you and bask in their feelings of self-righteousness. It's a win-win for them.
It's past time for you to establish better boundaries for what behavior you will accept. They should be praising you to the heavens for the work you've been doing.
If it were me, I'd be telling my unhelpful family that I'm retiring from caregiving and resigning my POA and they have 30 days to find a new solution, because I am no longer the solution.
They'll probably fall all over themselves with promises to help, etc. if you stay. Don't fall for it. Unless they can help you get your POA in effect to where you can actually do something, let them have their turn at running the show.
* Why are YOU taking care of her? And others are not?
* Do you want to continue in this role?
You want to create a track record of behavior / interactions_____________
* When mother acts out
- call APS and ask them to assess.
- certainly track police interactions (date, time, who, what)
- write down interactions with family
FYI: I've been with clients with what I would strongly consider varying degrees of dementia 'only' to answer MD questions adequately 'enough' in a visit wherein the MD believes them... doesn't probe. In other words, the person lies to sound coherent and often it works. Clearly, your mother is on a spectrum of decline ... although we don't know which spectrum or where it is going or how soon ... this COULD go on for years. Up for that?
And perhaps she is (has ) a narcissistic personality disorder and has been like this all your life. If she has a history of psychiatric disorder(s), clearly as a child, you were adversely affected by her behavior / interactions with you. In other words, you are wounded / traumatized.
--- there is caring and then there is martyr-ism or mental health issues.
If you continue to take this behavior ('abuse'), then you need to somehow make peace with your decision. You would benefit from seeing a therapist now to sort out your feelings.
* It is very telling to me that you ask us if it is 'OKAY' to confront family member. That you are thinking this way ... wondering if it is okay instead of being royal pis--ed and angry and feeling justified to sharing explicitly and clearly YOUR TRUTH. This tells me that you are fearful, have little self-esteem ...
Ask yourself: Why am I asking others if okay to talk to the family?
If you want to continue to care for mother, then know that this is a package deal If you decide to continue, ask yourself why? What are the payoffs for YOU?
* Video some of her behavior. This proof may help you / her. It will certainly support your words explaining to others what is happening.
However, the question or situation here for you to consider is if you want to continue on in your role knowing how you are being treated by your mother and your brother/family members. Know that your mother may / likely won't change and her behavior may get worse; same with your family members.
Clearly, your family members - calling the police on YOU - know that they can (get away with that) ... they know that they can show this level of disrespectful towards you.
Know there is / are major differences between 'caring' for your mother and setting boundaries (self care, self respect). I wonder if you are caring for your mother due to her living with you (or visa versa).
Question: Do you 'have to' live wherever you are, if with her?
Are you self-supporting?
I'd strongly recommend that you get into therapy to figure out if you and to stop allowing this behavior from mother and family.
Learn to love yourself - a decision at a tme.
First know you deserve to be respected and treated with kindness, if not appreciation by your family. As Dawn 88 said, let them take your mother in and care for her.
Gena / Touch Matters
Notify your brother and other relatives that you can't do this any longer, due to the lack of support and it's up to them.
Notify social services, or whoever is responsible for vulnerable elderly wherever you live, that your mum has been deemed competent by her doctor but you don't believe she is; she's alone, so can they check up on her.
Nothing else will get done while you're propping her up. You need to stop.
And as already recommended I would just drop your mom off at these family members houses and tell them that you'll be back in a few weeks to get her. That should be enough time for them all to get a true taste of what it's really like caring for someone with dementia.
And of course if your moms care is getting to be be just too much for you, you may have to start looking into getting her placed in a memory care facility using her money of course. And if money is an issue she'll have to apply for Medicaid.
Don't be afraid to lose family over this, it usually happens more than you know. My brother says hey,we should get together some time. I said, I'll think about it. He said, what's there to think about?
🤣🤣🤣🤣 Really?!?!