Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I’ve tried so very hard for YEARS to help with, or do anything that needed to be done for her; perhaps I’ve done this to myself?? It took me over 6 months to find a place that was clean enough, organized enough and had services enough that I thought she could possibly like it ... well let’s just say that all that effort seems to be wasted as she hates it and reminds me of that every minute of a phone call or visit.
There was no possible way that Mom could stay in our family home. Recently diagnosed with breast cancer, needing a hip replacement, and suffering from the onset of dementia she was falling and hurting herself, burning pots into oblivion and forgetting phone numbers. On my weekly Saturday visits I was constantly berated for things I hadn’t told her, even though I had at least 10 times over. It’s been 7 years since Dad died and everything just stopped working for her, or was a stupid thing to her as she’s lost the ability to work microwaves and answering machines. I had a million post it notes everywhere with reminders and notes.
I know deep down I’ve done the best thing to keep her safe. I also know that this isn’t easy for her - neither is it for me. What I don’t know how to do yet is protect myself from getting sucked into the negativity, how to get rid of the constant lump in my throat, or even sleep the night through again. I’m hoping with time, and with what I’m learning here with all of you, is that I will find the strength to weather this. I refuse to lose my marriage, my job and perhaps even my own sanity simply to care for a very negative Mom.
I love him to death, and I also need help coping with this. This post and comments has helped me some but my situation is different because I live with my Dad. But yeah just hang in there because I DEFINITELY understand and I might just make my own post about this myself.
You don’t have the power to change her behavior but you can certainly change your reaction to it.
You can also break cycles. Don’t copy any of her personality traits.
If she isn’t willing to change her pessimistic behavior she will become lonely because most people will avoid her.
People like this are extremely difficult to be around. They will drain all of your energy.
I think you should do whats best for YOU, not your Mother. Pray and ask God to take the guilt away. You dont owe your Mother anything but as her daughter you can help when you can or if you want to but if its too much allow the professionals to do it. Step back and stay involve with her overall care as far as making sure she is being treated well. I wouldn't stress out over it. You have a life too. I PRAY it all works out for you.
My mom lives off of disability and SS from my deceased dad. I recently married my High school sweetheart and boyfriend of 8 years, and her family decided that her 3 bedroom condo was too big for her now that I am married and no longer staying with her. There were also several times over the summer where she left burners on, left the oven on. Once the fire department had to come because of the excessive gas from stove being left on.
My husband and I bought our house on November 22, the day after, mom has another stroke. Instead of moving to an apartment, she decided she wanted to live in a 5 star retirement community (independent with options for apartment care or to move up to AL). My family pulled many strings to make this happen as she was adamant on wanting to live there specifically.
Well, she moved in March 2, and shortly after, COVID came through and made everything a mess. I worked several hours for several days a week for many weeks helping my mother downsize and move into her new place. Something about the move, while I agree can be stressful, has completely turned her into the most hateful person ever.
My uncle helps us a lot (probably out of pity and care for me), and when he didn't show up one day, my mom called and cursed him out and was so offensive. I asked my mom if he specifically said he was going to be there that day -- nope, he didn't say he was. I said mom, you cant get mad at someone for not helping if they didn't say they would be there. She says - why dont you leave your husband and go hook up with him. My uncle. Still cannot believe those words came out of her mouth. It has nothing to do with my husband and everything to do with her insecurity.
She also recently said to me, how on EARTH did I manage to raise a daughter with the compassion of a mosquito, how? how?!!! And freaked out on me. Mind you, this was after hours of moving and organizing her belongings.
She has called me a b*tch so many times I cant begin to count. The thing is - I never get nasty with her they way she does to me, I stay calm cool and collected. I say, mom, sometimes I think you say things you dont mean when you are overwhelmed. It's almost like she wants me to spit fire in her face right back. I refuse.
RECENTLY, she has been getting into trouble, and even threatened the staff at her new living facility all due to this Covid quarantine business. She feels she is being treated unfairly, forget that thousands of people are dying and especially in her communities age group/health status.
My relationship with my mom has been take take take ever since my childhood. I can distinctly remember even trying to talk to her about things and she says, Im not your friend, Im your mother!
I see all of you who are sometimes in your 50's, 60's, and beyond with the same issues I face. Will this be my life for the next 40 years? What can I do? It's becoming too much for me to emotionally bare.
positive people now negative is hard for us to fathom. I have to remind myself that it isnt easy for them. They probably dont realize whats happened as they cognitively declined. I can understand how you feel about not wanting to visit her. Me also sometimes. Myself, I feel and think of how much I love her and how unhappy she is and how alone she would feel if I didnt visit her. Its sad I know I feel for you. They need to complain to us as they want us to feel there pain and scared of what is happening to them especially when they cant remember and wonder why they cant. Hang in there. Take care of you
I know dementia probably has a lot to due with this unpleasantness. It’s
hard when she constantly calls me names and cruel for putting her in board/care. In my mom’s case memory is a big issue. I placed mom in a facility close to me very easy visits and outings, but for now I’ve decided to limit my visits to give her time to settle into new environment. As crazy as it sounds it’s comforting to know others are walking in my same shoes. Let’s stay strong for each other.
My parent is that way just as her personality. everything is measured against her own likes and dislikes. Opinionated- not attractive and she has lost all her friends and other family from it. I protect myself and limit how often i see her.
So you know she is cared for there, she eats, then give yourself a break. Maybe less of an audience ( you) would cut down her verbal complaining?
Best wishes.
Dont be guilty. She chose her attitude. She is an adult.
If she has changed from being nice to angry then have her evaluated for dementia. That is a sign. In that case you cant talk them out of it either. You have to release the parent you knew to a brain disease.
I myself take Celexa and Abilify. The Celexa helps with my depression from taking care of her 24/7 and the Abilify helps me get less irritated with her. Both have really helped. Sometimes you can't do much to help them but you can do things to help yourself.
It's the same crap over and over and over. Oh, perhaps a slightly new twist on the same old tired out theme.
Negativity from others does really burst my bubble and bring me down very quickly.
I realize this is not an option for a person with dementia, but I read something about a grateful journal. I'm going to pull together more info and prompts and try to get her to do this and I'll do it too so we can, voluntarily, share our POSITIVE thoughts instead of the nearly constant complaining. So tiring.....
There really is comfort in knowing that my issues are the same issues others are having. Thanks to all for sharing!
I really like your idea of the thankful journal. I have done that with my own special needs daughter and we are doing 99% better than last year.
My problem mom is very negative and doesn't want to do really anything except maybe be taken to the casino. It is a big chore as it takes both my sister and me to get her into the car, but the biggest issue is the toilet once we are there. The handicapped restroom only has grab bar on one side and the back. Mom needs sister to lift her rear off toilet and I hold walker steady in front for mom to hang onto since so decent close arms near toilet there. We have done this a couple times successfully. Mom called last night wanting to go again but chose the one day all month my husband is off and he said he wasn't going. I explained to mom that he could stay home but mom didn't like that answer.
The saga continues and today is another day of it. I will definitely try your idea though and even if Mom doesn't want to write something grateful, maybe I can can model doing it.