Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I can't say if that's you, but I can tell you, Turn your phone recorder on while you meet with your mom and let it run for an hour. Catch what you say and your mom's "bad" responses, and then review it later that evening or the next day, OBJECTIVELY. Listen to how you come across, as if you were an independent observer. Be honest with yourself. You may find you are just being taken wrong, and can figure out how to change your delivery. Usually the brain on the second time through an event is able to process things differently, see things it didn't see the first time, and then as you reflect on it, maybe replaying a section, the brain will provide you with more things that stand out. Then you have to use that, to change.
This is not to say that I mean you are the whole problem, but that this is a problem that does occur for everybody. Have you never said, I know I texted that to you, but that's not how I meant it! because the person couldn't see your emotions and you wished they had seen your face so they would have known, right? Same kind of thing but this is just an audio issue, but like that. They hear or see the words, but they don't get your real intent, and I don't think your mom is lying. I think she's most likely just not getting your real intent.
If I treated you in the office, the best advice I could give you is to tape your conversation and follow the above instructions. If she also is contributing due to who knows what mental disabilities, at least this will help you, and her, to eliminate anything on your end of the equation. If this seems complex, it's not. You can do it. Let your recorder aid you. This divide between what we think and how we feel and are perceived often happens when we have high emotions about an issue we are talking about or trying to resolve. So remember to smile. A real smile. Even you are in tears, love, remember some wonderful thing she's done for you that always makes you smile, and smile, and that may make it come across completely different. But YOU will know after you reflect on the audio tape, and that change in you will help eliminate hopefully all of those negatives coming from her. If so, be glad you figured that part out. And don't blame yourself if you find the audio needs to be changed. You just didn't realize it like I didn't. My hope is it helps most of the negatives, and leaves you with less of them, and thus be more manageable for you both. Don't give up either, because I found that at the breaking point, my brain became focused on finding a solution so that I would not burn out, and it came through faith in myself and God that I would find a way, that there was a way, to make positives happen.
I recommend having her put on 1/4 reg Tylenol for general pain twice daily, esp. if it effectively replaces her already-prescribed daily NSAID; then change it from ibuprofen, naproxen, etc to acetaminophen (Tylenol). Most centenarians I know who do all their own business use nothing else but Tylenol for aches. There's a risk factor for liver conditions. But it's the only NSAID that enters the brain and it fights brain inflammation! Proven.
She was still capable of her evilness . She would lie and say things for sympathy like she did her whole life . She was still manipulating her children , causing us to argue . She could manage these elaborate games , but could no longer figure out how to put toothpaste on her toothbrush , and refused to shower. She died on Thanksgiving day 2018. I’m convinced she willed herself to die on her favorite holiday as her final guilt trip for putting her in assisted living
Fast forward to now . Now dealing with FIL in assisted living . He won’t shower either , wears same incontinence brief until it leaks . Can not get through to him either that he needs help with hygiene . We’ve tried everything , warned him about , infection , sores , falling in the shower if alone . The odor is so bad , We now are refusing to take him out for the dinner weekly as he demanded we do when we put him in assisted living .He made it out like he was doing us a favor by going to assisted living . He told us he would stay there but we had to take him to dinner every weekend . He tries to negotiate everything to get what he wants . He is stuck up , has a very high opinion of himself . He says he doesn’t belong there and he’s not like the others in there . Trust me , at least half of them are in better shape than he is . Took 9 months to get a dementia diagnosis . Half the staff and his primary doctor thought he was just being stubborn . I knew better . He’s getting less capable of hiding his dementia recently and yells at the staff to get out of his room . He used to sweet talk them, and get sympathy by saying he’s offended when they wanted to help him and he would tell them he’s on this earth longer than them . He used to have a sad face on or sometimes smile . He thinks if he smiles and says it in a sad way that he can say anything and get sympathy . Recently though , he’s nasty , He agreed to a cognitive test to prove he doesn’t need help . No surprise , he has dementia .
Don’t assume you are doing anything wrong . Sometimes nothing works .
How long has she been in her facility. Mine moved in in April and things seem to be getting better. Who knows what tomorrow will bring.
No, it likely isn't 'she just wants to complain.'
Google Teepa Snow. Read, listen to a few of her free offerings and some of her webinars. She is one of the country's leading experts on dementia. I studied with her for close to two years. Good information. Supports making educated, kind decisions - for both self and the other person.
Gena / Touch Matters
I was in a bad nursing home and left to take care of myself at home. My wife, now my ex, hated me for what little she did, like doing laundry and changing sheets every morning. I got sick of that and moved out.
Sounds like you are sick too.
Wish I had died instead of surviving a stroke.
And also DO NOT bring her to live in your home. You need space in order to retain your own health.
MISTAKE!!!
She has made my life living hell....every day is a battle that I have been recently been trying to my own sanity.
Take care of yourself 1st!!!
I don't think I will be able to continue the way I have living with my mom is making me depressed and I am starting to resent not having a life. I used to be able to find some humor in it but her negativity is draining me!
It seems "normal" how you feel but I would say hang in there. She just needs to vent her emotions on someone who loves her as you do. You just have to learn to shake it off when you leave her side. Good luck!
Her personality change is the disease. Whether it be dementia or alzheimer's. I recently (TODAY) have finally convinced myself of this very same thing. Things are progressing so quickly with my mother. We went straight to the nursing home in lieu of assisted living. The upbeat person I knew has been replaced with a negative Nelly.
Our Mom's who we knew are no longer the same. I am so sorry - I too feel guilty for wishing I didn't have to deal with it.
I read someone wrote on this site that their mother had the right to rot. I agree.
You can't let her live in your head. You will go nuts.
hug!
i hope things improve soon.
try to really find solutions, so your life can blossom.
try not to later think:
“i didn’t do X, Y, Z in life, because of person A. and person B prevented me from doing W. and…”
all these people you admire (whether actors, athletes, singers…)…whatever your taste is, in who you admire…
they went for it!
(some of them succeeded because they’re extremely selfish, just focusing on their own goals for hours and hours…ignoring everyone else in their way) (i’m not advocating to become an extremely selfish person)
and of course there are many factors why someone succeeds. and everyone defines “success” in their own way.
—
my point is,
go for it! go for your life!
find ways to be kind to others AND yourself.
plan your life/future, so that your elderly parent doesn’t, even unintentionally, plan/decide your future.
Sometimes, it's just lack of control, fear or both.
FMIL got cancer and FFIL had a stroke. FMIL was under the impression that we would be there every overnight but that wasn't possible. I was the one to bring up the idea of an aide, and she cried, then screamed at me, then offered to show me her checkbook about how she's helped out SO, then banished me "to my room."
Fortunately, she now loves the aide that Brother picked.
FMIL's cancer went into remission, but then it came back. She was offered an easier and newer option first, but they took that away at the last minute and said she would be getting a stem-cell transplant. A month in the hospital versus a week. No winter holiday season. The idea that a second caregiver be introduced.
SO asked her innocently one day if she'd started looking for this second person, and she BLEW UP. It was on speakerphone, and it was just ranting about MY HOUSE and I WANT and HOW DARE YOU.
SO said he needed to go and hung up.
Now the doctors are rethinking giving her the newer easier therapy. This reduces the hospital stay, makes it so that she can go to restaurants for Family Dinners, and obviates the need for a second or more skilled person, for now.
For now, she's gotten what she wants. And the defensiveness masking as grouchiness has dissipated. She's a friendly person again.
I have been trying for so long to keep my mother at home. She is 96 and times of her being negative and nasty are increasing faster nowadays. I know she has dementia, but knowing that does not help when she is being nasty to my daughter ( 39 ) who also lives with us and has been a tremendous support to me in caring for mom and has helped mom herself A LOT !!!
But tonight, mother being so extremely nasty in a paranoid way to my daughter (who is the sweetest you could want!!) is hitting the tip of the iceberg for me. My daughter was in tears and was worried I was upset with her (not in the least! and told her that) and went to spend the evening with her boyfriend. Meanwhile, my mom continued her nastiness. I plan to call her NP tomorrow to ask for other medication ( ? maybe Seroquel) to get us through until I can figure out moving her somewhere. We can't afford continual caregivers at home, or assisted living, and pretty sure she wouldn't qualify for snf. So I will be starting the "what to do" process tomorrow.
My mom is 94. I keep thinking it won't last forever. . .but it could.
I'm looking for respite care today. Nobody in my family can or will help me.
I miss my grandkids so much!!! I would never want to hurt them like this
Good luck to you
I always think these posts serve a purpose as the folks who answer find it therapeutic to answer regardless and others come along and read the answers and find some help in them. So, to me, it’s still a valid thread. Just my thoughts on it.