Follow
Share

To me, this is the biggest emotional drain. All 7 of us siblings agreed about getting guardianship after Dad was evaluated in a long hospital stay and it was determined that he did not have the capacity to make his own decisions. He has vascular dementia and was sleeping on the floor in his apartment. He was unable to make his phone work, or his cable TV. He was hoarding, wouldn't shower, wouldn’t let anyone come in to clean. He refused to take the senior shuttle. He was walking miles to vote, or to go get payday loans, had so many bills that he refused to pay, because everyone was wrong and he was right.


So he was in a pretty good nursing home, he had access to an outdoor space. But he removed two alarms, and left the facility three times. Once he said he walked the 6 miles to a woman’s house at two in the morning and no one knew where he was.


Then the nursing home said they could not keep him. My brother had to make a snap decision, and Dad was moved to the worst possible place for him. A locked ward on a behavioral wing of a not nice facility.


Now he cannot go off the ward unless there is a staff member to take him. He cannot go outside. He is extremely angry at all of us. He is also getting aggressive to the other residents because “they are all crazy”.


My sister goes to visit him every week, and he puts her through an hour of calling her stupid, a criminal.


All of us keep talking to each other with the “what if’s.”


“what if we would have left him in the apartment to die there?” “What if we would have let the state appoint a guardian? “ He is 91 now, and he is in hell. He is delusional at times, then at other times he has perfect memory. His memory about all the events in the past two years is not accurate at all. He really doesn’t understand why he is where he is.


It just seems like however much we talk to each other, we still are saying “What if.”


Before someone says we never should have put him in any nursing home-know he is an alcoholic with brain damage, very aggressive. None of us could even be in the same room with him for more than an hour.

This question has been closed for answers. Ask a New Question.
Find Care & Housing
Why on earth is there second guessing? With all that you said about your father, there was one solution - put him somewhere where someone else trained for this crap could take care of him. There was no way he could stay home - why would you even consider this? You did the only right thing - you put him somewhere and this is what must happen when people start acting out.
Helpful Answer (0)
Report

My mom passed away less than 24 hours ago. Advanced ALZ. End of life terrible graphic images.

I am starting grieving.,I can finally take my finger out of dyke and cry.

As someone said to,me in a PM, you have run a long race. And it catches up with you. I wish our mom would have crossed the finish line differently.

I know exactly where you are.,I think all of us do and will reflect on decisions we made, and always wonder if they were right. And we will never know. That particular unknown haunts us. And it prob will for a bit.

Take care of yourself. Practice self care.,I am,learning to in last 12 hours.

You are not alone here, at all.
Helpful Answer (3)
Report

Forget the what-ifs... as the saying goes, no sense in crying over the spilt milk. It is already spilt, work on the cleanup.

BTW, it is GREAT to hear that you all work together on this! Especially with 7 of you! Refreshing, as many have no-show siblings, or worse, buttinsky siblings!

As others have suggested, is it possible to search for a memory care place and move him rather than keeping him in the behavioral wing? It probably isn't the most appropriate place (but understandable that necessity required a quick move!)

While searching for another, better place, perhaps dad needs to be seen by a specialist for an evaluation or two. There might be some meds that can alleviate his aggressive behavior without leaving him 'doped' up. Also have a full checkup done.

When I first read so many suggesting UTIs for some behavioral issues, I was skeptical... Once mom got one, not so skeptical!! She is normally quiet, even tempered, easy for them to care for. With the UTI - raging she needed to get out, had guests coming, tried every alarmed door setting off the alarms, basically out of control - this went on for some hours before they finally got her back in her room with a magazine. They had called me to come help, but what did I know about that??? She was in her room by the time I got there, and I decided to leave the quiet beast alone! The worst part is that this happened on a Friday evening - NO access to doctor to get medication, the referred nurse-line at the hospital said they could do nothing. We were stuck with this until Monday (generally it only reared up at night/evening, aka sun-downing, but still, having no medical support sucked!)

A very minimal dose of Lorazepam would calm her down. It doesn't take time to build up in the system, and within 10-15 minutes it would kick in. Since it was generally evening, she would usually retire soon after, but it did NOT leave her doped up or at a high risk for falls - it was just enough to take the edge off. We only use it as needed, so she hasn't even used up the first Rx (once the UTI calmed down, the "issue" went away too.)
Helpful Answer (2)
Report

Rehashing what could have been is not helpful to any of you. Good grief - he likely could have died walking such a distance in the middle of the night!
Helpful Answer (1)
Report

“what if’s” are more harmful than helpful...“what if’s,”unfortunately, aren't a logical approach to needed actions that were taken to protect your father. He needs to be in a memory-care lock-down unit; achieved -safety-issue solved. His memory care facility provides both care and protection, whilst preventing your father from roaming "elopement." Based on your post a locked memory care place is where he must remain to stay safe. What else are you thinking could have been done? Remember, alcoholics have very self-centered behaviors, whilst yelling at and guilting everyone for making any decisions(every decision made that blocks an alcoholic from alcohol is automatically WRONG). Your family is in a very emotionally unsettling volatile situation. In reality his brain was damaged through his excessive alcohol consumption. Alcoholics will lie, cheat and steal to get booze into their systems, alcoholics usually don't care about anyone else, other than themselves and how they will get alcohol into their bodies. It's a harsh reality that has more damaging history than most families are willing to reveal.
Helpful Answer (5)
Report

At some point, you need to acknowledge the best decision was made in the moment with what was known in that moment. Later we have more information, sometimes about the illness, sometimes about the options, sometimes about the treatment results - all things we could not know in the moment the decision had to be made. Forgive any imperfect decisions and/or any imperfect results. Forgive your father for the choices he made that contributed to his current circumstances; forgive him for the behaviors the disease forces without his choice or consent.

Try to focus on the presence circumstances and any future choices. Can you find a affordable facility that allows your father a little more freedom (at least the appearance/feel) than he has now? Are there things that would provide/provoke moments of contentment? Would you father enjoy receiving a "treat" package with some favorite cookies or a box of ultra-soft kleenex or some socks? Would you and/or your distant siblings feel better for sending a package periodically? Does the facility have a store/canteen where you can arrange delivery of a 'treat" (like ice cream or a soda)?

When vascular dementia and other health issues forced my father into MC, I visited once a week because that was all I could take. I took offerings of his favorite foods and other stuff he needed (soap, lotion, clothes). I know Dad did enjoy his treats, but I think I also prepared and took them because doing something/anything was comforting for me.
Helpful Answer (5)
Report

It is human to run through life decisions and question "What if..." Some of that is good, at least at first, because frankly, this is how we learn. But at some point it becomes a form of negative feedback. I know, because it happens to me. Although I rationally know that I did the best I could, the what ifs can intrude. I think the best thing for you and your siblings is to find some sort of meditative activity that guides you through a form of positive feedback. This meditation should acknowledge and affirm your worries. That's okay, but then takes you to a more positive place. Guided meditation can work wonders in helping you gain or maintain perspective. There are even simple phone apps that can help. I found one called The Tapping Solution. Very simple, easy, accessible, and free! Hope this helps.
Helpful Answer (1)
Report

All are giving great advise. Just want to add a hug to you as you are going through this!
Helpful Answer (3)
Report

From the little bit you shared I wonder why he is in a "Behavioral Unit?" It sounds like what he needs is a "Memory Care Unit." They are very different. A behavioral unit is for individual's with mental health issues where a memory care unit is for individual's with memory issues such as dementia. Individual's with dementia can have behavioral issues but the way you go about dealing with these issues is very different from how you handle an individual with behavior issues resulting from mental health. Staff in a memory care unit go through specialized training on how to work with resident's with dementia.

If your dad is that angry with you and your siblings, why do you feel like you need to visit him? Instead of visiting with him you can stay in touch with the facility staff to make sure he has everything he needs,

Finally, with the behaviors you described in your post your dad definitely needs to be in a long-term care environment for his safety.
Helpful Answer (0)
Report

For as long as you live, you will always say, "what if."

My DH passed last May and I still ponder what else could I have done. But thankfully, I still believe I did the best I could. I allowed him to pass when his body started shutting down and it prevented the pains that can come with that. He was only on Morphine the last 2 days and only drops, never a lot.
Helpful Answer (1)
Report

Im sorry that has happened to your family. You did the right thing. He needs to be in a locked facility because he is a danger to himself. He is also very smart to be able to escape and walk that far. Hes a real 007. Lol.
Id see if I can help brother find a better place. It still has to be a locked facility because he can escape. Ive heard of people on the news leaving the facility in cold weather and getting lost. Not good. You dont want that to be your dad.
Id ask doc if he/she can do something. Your dad may have depression. It doesnt always manifest as crying, sad, loss of interest. It can come out as rage, cursing, anger all the time, resentful, blaming others, physical altercations etc. May need to add/adjust meds. Isnt it better your dad be calm and happy then angry and rageful at the world?
Your dad has moments of clarity where he knows he is in failing health. Sometimes they want to blame others. It is easier than confronting the reality that their health is failing. That can be very scary.
I dont blame your family for not visiting. It is stressful to be berated, or cursed at. Dont feel bad for wanting to protect yourself from that. That is soul crushing and no one should be subjected to that.
If you can find him a place where he is cared for then that is all you can do.
Helpful Answer (8)
Report

There are Memory Care facilities that are nice(er)
The one where I had my Husband for Day Care as well as for Respite was locked but there was an outside area any of the residents could go to. Most of the Memory Care facilities around here have the very same thing. The resident can not leave the fenced area though. ( there are outing that they go on supervised of course)
Look around for a facility that is still secure but has an outdoor area where he can walk.
As to the aggression is it possible that it can be controlled with medication? It may take a while to find the right medication and or the right dose but it is possible.

Also you say he is delusional but at times his memory is perfect...but then you say that the memory about the last 2 years is not accurate at all... This is not perfect memory. This is the way Dementia is.

Main goal is to keep him safe and secure..keep others safe as well.
Part of the broken brain..he will rage out..he will "hate you"...he will try to escape...
You did the right thing to keep him safe from himself.
You want to make decisions with your heart but sometimes the decisions must be made from the brain. (when caring for a loved one sometimes these two organs seem to be contradictory)
Helpful Answer (10)
Report

I too am so sorry to hear about what you are all going through. It is so very important to be kind to yourself as you navigate this most difficult of journeys. Try to practice saying to yourselves and each other, “We all have been and are doing the very best we can given the circumstances,” each time the “what-ifs” start. The truth is, nothing is ideal. You’ve all experienced enough abuse from others, try not to heap it on yourselves (easier said than done...takes practice to break old habits). For some of you, the best you can do is support each other, and that matters just as much as anything. Also, any one of you may experience your own best will vary from day to day. That’s OK too! One thing my sister and I have done now that our parents’ dementia has progressed to the point where nothing brings them joy, we have signed papers asking for nothing but “palliative,” or comfort care. If pneumonia takes them, so be it (the uncomfortable symptoms will be treated, but not the illness itself). We have stopped the meds that protect agains heart attack...if that is what takes them, so be it. I don’t know if this would work for your family. I’m just putting it out there as something to consider. Sending you wishes for wisdom, clarity, comfort, and peace. (Hug each other every chance you get. It really helps.😊)
Helpful Answer (6)
Report

Get on the Same Page, No Rage...There is 7 of You....Responsibility Goes with Guardianship.xx
Helpful Answer (1)
Report

If you could possibly be a little happy if you were living there, then do nothing.

If you could never, under any circumstances be happy there, get him out.

Do unto others as you would have them do unto you.
Helpful Answer (2)
Report
LoopyLoo Jun 2019
Sorry, no. They didn’t do this to be mean. Their father was happy living in filth in his apartment. They did the right thing by getting him outta there. Where he is now isn’t great but he is kept safe and can’t wander off.
(14)
Report
See 1 more reply
Oh I feel for you. I think you have done what you need to do to keep your dad safe and by the sounds of it everyone else safe too. Its a sad situation for you all. Take time out to take care of yourself
Helpful Answer (8)
Report

Your father is leading a dog's life. He is very angry about it. He is a risk to himself and others. He's there because the alternatives, certainly at the time of deciding, were worse.

There is a very famous cartoon from World War One, of two soldiers standing chest deep in mud in a shell crater. Bill is saying crossly to his younger companion "well if you knows of a better 'ole, go to it!"

What's your better alternative? What your family is going through is horrible. I think the best thing I've read about your situation is that the seven of you are agreed that you will do your best and pass no judgement. If there were better options, you would agree on that and take them.

There just aren't, and it is not the doing or the fault of any one of you. God willing, as time moves on, your father's mental state will alter and he will adjust, and there will be a phase when more of you can have contact with him. I hope that's something to hope for, but even if it never happens it *still* isn't something you can help.
Helpful Answer (10)
Report

"What if's" are SOOOO hard to get rid of.  We humans have this terrible tendency to relive & relive & relive AND rethink & rethink & rethink EVERY decision we make.  Unfortunately, sometimes we need to "JUST LET GO!"

Even though your Dad "was in a pretty good nursing home---he removed two alarms, and left the facility three times".  That is a HUGE liability for the nursing home (AND for the RNs and LPNs) as they are responsible for him.
"What if" he had gotten sick or hurt or died while he was gone, your family could have sued the nursing home (and the RN or LPN "On Duty") for NOT DOING THEIR JOB! 

"What if" after your Dad removed the alarms, and another resident had gotten out the door while the alarm was broken and had gotten sick or hurt or died--That family could have sued not only the nursing home and the RNs or LPNs working when that resident left the facility; but also YOUR FAMILY (because it was your Dad that broke the door alarm).  The facility could have lost its license and be forced to close its doors. The RNs or LPNs working when your Dad or another resident left the facility could have had their RN or LPN licenses put on Probation or Revoked, thus no longer being able to work as nurses.

More than once, I have lived the nightmare of a resident at a nursing home walking out a door that had a broken alarm.
For Example: 
One night around 1 AM, a resident wearing only a nightgown opened a door to the outside that had a broken alarm on it (none of the nursing staff were aware that the alarm was broken).  She was looking for the bathroom and got confused.  At 1 AM, it was snowing out and the wind chill was minus____ degrees.  The resident walked around the building and tried to get into the building through a different door.  Luckily a nurse heard the resident knocking on the door and was able to drag the resident inside that door.  Even though the resident was outside for approximately 10-15 minutes, she suffered frost bite to her toes (she was barefoot) and her fingers. 
(Wouldn't you feel terrible if something like this happened because the reason the alarm was broken was because your Dad broke the alarm on that door?)

I know that this is NOT what you want to hear-- 
Your Dad has to be in a facility where he is SAFE FROM HIMSELF and from HIS OWN ACTIONS!  He has to be in a facility where the OTHER RESIDENTS ARE SAFE from your Dad's actions. 

Your Brother made the best choice that he could at the time.  If you and your siblings can find a better facility that can keep your Dad safe and prevent him from removing alarms or from doing something that could result in injury to the other residents, then talk it over and make a decision.  Don't keep moving your Dad from one facility to another as that will only make him more angry and confused.

Tell your sister that she does not need to visit your Dad as often or as long because she is not his "verbal punching bag".  Your sister needs to take care of herself.

You and your family have a very, very difficult situation to deal with and no matter what you decide, someone is going to second guess that decision.  Allow yourselves the privilege of accepting the fact that your Dad's brain is broken because of the alcohol and that you are doing the best you can in a terrible situation.🌷

{{{HUGS}}} and Prayers 🙏
Helpful Answer (21)
Report

I think that you just have to realize that you did the best thing you could.

What if's are so useless imo, what if he walked in front of a car that swerved to miss him and killed all the people aboard 3 children and their grandparents? See what I mean?

His choices have led to this consequence. He will not be okay or happy anywhere, his brain is broken.

It comes to a point that we can only provide for their needs and disregard their wants. Nobody wants to be in a facility, nobody wants to have dementia, but it happens and we do what we must.

Stop beating yourself up. He's fed, safe and warm, that is good.

Tell your sister to stop subjecting herself to the weekly abuse session. She doesn't deserve to be beat up for caring. Make sure he gets a visit that is short and rotate, with 7 of you it should be pretty easy to only see him every couple of months.

Good job protecting him from himself, it is difficult but the right thing to do.
Helpful Answer (18)
Report
PrairieLake May 2019
Thank you for the good advice. When I said 7 of us, 3 of us live far away. Only my one sister goes to visit. My brother who is guardian goes to the nursing home, but does not visit Dad. Dad has pushed him, taken a swing at him, and my brother keeps talking to Dad like he is a rational human, trying to use reward and punishment. My other sisters won’t go because of the verbal abuse. And they suffered plenty when they were young.
The one that is going said she will go as long as she can stand it.
(8)
Report
See 1 more reply
I am so sorry for your painful situation.  None of you deserve to have to make a decision like this.  Fact is, something had to be done and your brother did what he felt was best at the time.  Stop second-guessing.  If you collectively decide on another arrangement, fine.  If you decide to leave him where he is, you need to accept your decision and try to move on.  That's easy for me to say - I'm not in your shoes.  I pray you can find peace through all of this.  ((Hugs to you PrairieLake))
Helpful Answer (7)
Report
PrairieLake May 2019
Thank for your hugs. It helps to know how other people deal with the hard decisions.
I think I need to go back to the support group. Even though I am 900 miles away, I still love him and hate to see all of us suffering. We all agree to remain a united non-judge mental group. That is the easy part.
(9)
Report
See 1 more reply
Ok.,deep breath. Oh the what if.,I know that well,most of us do.

What was in your power to change this? Help, finances, logistic arrangements?

Many of us have made the noble promise, only to find we could not keep it.

Stick around. You will get some good answers from the trenches

Take care of you. By all means.

Eta.

You are going to get some shock therapy here. A real dose of reality.
Don't run off. This is hard. Really hard.
Helpful Answer (9)
Report

This question has been closed for answers. Ask a New Question.
Ask a Question
Subscribe to
Our Newsletter