Where can I find good information about Hospice and/or Palliative Care in the state of Connecticut?

Now that Mom is doing better would be the perfect time for the conversation about palliative care with Hospice. It will be less stress and easier to understand options. Palliative care is not end of life and Hospice is a great resource for you and your siblings and for Mom. My family struggled until we had no choice but Hospice House and it has caused great strain on relationships since my Dad passed. If we could turn back the clock palliative care with Hospice would have been a better choice so that when the time came we were all on the same page and trusting those decisions. Best of luck to you and your family!

Ba8, use the search box in the upper left corner of this site to find articles on palliative care. Following the search you can choose between questions, discussions or articles. This is a link to one of the articles that is on this site.

https://www.agingcare.com/articles/Palliative-Care-How-it-Can-Help-Your-Aging-Parent-Achieve-Quality-of-Life-136281.htm

Doing a google search for "palliative care and vascular dementa" will probably provide you information directly related to your situation. Sites like the Mayo Clinic that deal with these sorts of health issues may be very valuable. Good luck.

I think the best thing would be for all of the siblings to meet with admissions RN from Hospice. You can decide at that time if you want to go ahead with an admission or tell them you are not ready yet.
Make a list of all the questions you have and keep asking till you get the answers you want Agreeing to hospice is not a final decision. If at any time you feel they are not doing things you want continued you can discharge her and continue the treatment you feel is necessary, for instance with draining the pleural effusions. If it is something done for her comfort they will probably continue as long the proceedure is not more stressful for her than just letting nature take it's course.
It is often hard to make these decisions but keep in focus just what Mom wants. if she says she can't do a certain proceedure again please honor these wishes even if you know her decisions will probably shorten her life. Hospice is all about quality of life not quantity.
As far as being taken to the wrong service on Sunday if you are that worried about it go and take her yourself. otherwise leave it in God's hands after all we are all God's children what ever religeous label we choose to stick on our selves. Just be thankful that the Jehovah's witnesses are kind enough to come to the hospital and give up their time to take the patients to the services. just have brother talk to hospice and ask his questions. Good Luck this is not a final decision by having hospice you do not loose the abilty to continue to make decisions for your mother.

thanks for all your answers. Fortunately, mom seems to have turned around (Again!) and is doing better. Just so everyone understands, there IS no other service in the NH; just like there is no basement to flood, but she's always telling us that the basement is flooding (our basement at home flooded a lot). When we arrive to take her to Mass, she generally declines the offer. I was just offering examples of her confabulations/confusion. Thanks again!

There are websites such as the Centers for Medicare and Medicaid CMS that explain the regulations and services provided under Hospice that will help you. There are books, such as mine, that explain Hospice services and palliative care.

Someone does not need to be on Hospice to receive palliative care. Palliative care is just a multidiscipline approach to control symptoms of a disease and its treatments.

Just because your mom is doing better does not mean that she might not benefit from Hospice care. It is better to investigate all of your options and get everyone on the same page before it becomes an emergency.

Ask her doctor and yours who they'd recommend. Also, if you have several Hospices in your area, you might want to interview them all or more than just one and that's it. They all have a little different idea(s) about how they handle things and you will find out who you and your loved one feel most comfortable with.

Contact you local Visiting Nurse Assoc.

Hospice will only come in when death is closer (not sure of exact time frame but it is measured in months at the most I think). We had a wonderful palliative care doctor evaluate my mother. Best thing I ever did. He suggested taking her off a few of her 12 medications. He was very thoughtful and had a long talk with us about death with dignity and what treatments are good and what artificial measures prolong life in a negative way. We had his official notes put in my Mom's medical file and insisted they follow his orders. She lived 4 years on palliative care.

In the end we had her on comfort care at the nursing home. We loved our comfort care nurse practitioner and would have lost her if we switched to hospice. She knew my Mom's history and was concerned and responsive to our whole family. We felt included and comfortable through her last days.

I think finding a practitioner you trust and like (and who you can reach when necessary) whether it is through hospice, palliative care or specific nursing home programs is the way to go!

Upper right corner, guess I am not completely awake yet.

So, Mom is back at the nh, very weak when I left yesterday afternoon. The docs at the hospital talked to the palliative care team and they all agreed it's too soon to go there. And I'm hesitant to push this issue right now as POA brother who lives closest to nh is going to Europe for two weeks. So I'm going to kick this can down the road for that time. My mom has vascular dementia, but scored a 15/ 15 on her last mental. This does not make any of us feel as though we are enabled to make those life and death decisions for her yet (beyond dnr/dni/no feeding tube) the pacemaker was a grey area, continued chest taps, transport to hospital when she falls. Just venting here; poa brother and I will has this out in two weeks.