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Hi,


FIL has been picking his face and creating sores. It started 6 months ago when he fell and had a small scrape on his forehead, but he picked it until it was a very large sore. He eventually left that one alone and it healed but he has dozens of small sores all over his face from picking.


Here is what we have tried so far:


Reasoning with him about how we don’t want him to get an infection and end up in the hospital (doesn’t really work at his stage of dementia)


Distraction and redirection, but it only helps a few minutes.


Fidget toys, Rubik’s cube, and anything to keep his hands busy, he loses interest quickly


Giving home photos and coins to handle and look at, but that gets frustrating because of his poor eyesight.


Giving him lotion to put on his face when we see him doing it. Surprisingly, this has been the best deterrent- he doesn’t pick when he feels the lotion on there, but he finds a different spot to pick. Plus it requires vigilance to reapply the lotion dozens a times a day.


The doctor tried Depakote, but that made it worse and is trying Zoloft now in case it is due to anxiety or depression. No real difference.


He knows he shouldn’t do it, he stops if he sees me walk in a room. He picks wherever he thinks DH and I can’t see him, even pulling a blanket up to his eyes. I think he thinks we don’t know what he is doing. He now picks areas like behind his ears and scalp where it is not as obvious.


He gets defensive if we correct him, he will say he is just rubbing. He says he feels stubble, but we feel the area and there is no stubble there. His skin tends to be dry which is why we came up with the lotion idea.


Instead of correcting him now, we just tell him his skin looks dry and put some lotion on his face. We talk about our skin being dry and put lotion on our face and hands too, lol.


It is worse when he is stressed or bored, but he doesn’t want to do much beside watch TV and he is nearly blind.


I try to get him to pet the dog which occupies him for a bit.


It’s worse at night when we can’t keep an eye


There is no way he will wear those mitts. DH won’t even consider that one.


Have any of you dealt with this? Any other ideas?


Sometimes, I wonder if we should just leave him be as long as he’s not getting an infection. The sores are pimple size to pea size.

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Skin picking is a well-known disorder and people of all ages suffer from it. It falls under the category of body-focused repetitive stress disorders and Google is your friend here. But it’s very difficult for people to stop once it’s become a habit.

You might try inexpensive white cotton “inspection gloves” which are comfortable but make it impossible to pick. Having something to do with the hands helps, like coloring books. Pay attention to triggers...some people pick when watching tv.

The impulses driving the behavior are deep and subconscious. People often don’t realize they are doing it until you “catch” them and then may deny it out of embarrassment. It’s an intractable problem.
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covidfornow Mar 2021
I agree. It's just a problem that can't be fixed. Its annoying as hell. I think it has to do with a need for sensory stimulation and in dementia patients especially it can become the only way they can get this. I would try slowly introducing some other form of skin sensory experience if it's at all possible which it might not be. Like dry brushing (google it), or scalp massage. This may reduce the amount he needs to do it as a self soothing mechanism
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Since you mentionned trying to keep his hands occupied, here is a suggestion that works wonders for my mom , a robotic cat ( https://joyforall.com/ ) . She was not a cat person at all, but she just adores this cat. He could keep it on his knees and the purring ( with a soft vibration) and mouvements and sounds of the cat may help also distract and calm him.
I believe that at one point we have to keep our expectations at a comfort and health level, manage infection ...and let go of anything that is not a health risk...
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Lilfarmer67 Mar 2021
He has a real dog who wants him to pet him all the time. He is not interested. This has always been a thing with him - he was never affectionate with his kids or wife, cringes at hugs or being touched. Hates it when the dog wants petted.
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This question comes up from time to time. You can read through these posts to find that if nothing else, you are not alone in searching for answers.

https://www.agingcare.com/search?term=Picking

My DH aunt, 94 with dementia was a determined picker. Her ears got the worst of it. I had finally just given up and while it didn’t get better or worse it was easier on all of us when I just decided I had to accept it.
Then we tried one drop a day, under the tongue CBD oil. It seemed to work.
It’s antidotal of course, not scientific but hard for me to believe it was placebo only with her mental cognition. I didn’t start it with the picking in mind. I was not giving it for anything in particular, just as a tonic and that was the result.
When the pricey little bottle ran out I didn’t replace it thinking I would see what would happen. She started picking again. Now she has a bright red spot on her upper ear rim that she keeps bleeding. She hadn’t picked in at least a year, maybe longer.

I will replace the CBD oil.
The person I got the first bottle from switched to what she thinks is even better but I would have to order online and haven’t yet but I will if for no other reason than to see if she stops again.
BTW, I discussed with her geriatric doc who had no problem with it.
Another thing I discovered accidentally is that she loves the easy peel fruit. The Little Cuties. She will peel and eat three at a time. Tangelos, satsumas, tangerines. She’s been doing that for several months now. It’s a pretty good activity to keep her hands busy and a healthy snack but hasn’t stopped the picking.
I know it’s stressful for you and I did just block it from my mind after I had tried everything I could think of. lotions. Bandaids. Scolding. Once I showed her in the mirror and she started crying. She said she didn’t want to do that to herself. I realized then she couldn’t control it and I stopped mentioning it at all.

So I was pleasantly surprised when I realized she had stopped after starting the CBD oil.

oh and she does have some seasonal allergies and she takes allergy meds but it didn’t affect her picking.

Good luck with your FIL.
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Lilfarmer67 Mar 2021
Thank you, I will look at the link. I did read about CBD oil. Can he take that with Zoloft, or while he’s weaning off?
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The lotion should be thicker, a night moisturizer, or even vaseline. He needs to stay well hydrated. Skin care is very important. You can even use a variety of face washes, an astringent, etc. Maybe an exfoliant scrub and a facial clay mask. One thing I do for my mom is spa-care! I warm up a washcloth and wash her face after we do the eye drops. I apply creams.
I have a chronic skin condition and facial hair that requires a lot of work on my part. I'm already 72 and wonder how long can I keep this up. The sores are always flaking and irritating. If there is any possible underlying condition, he needs a dermatologist's assessment.
To encourage your dad to keep his nails short, get him some professional nail nippers (not only the clippers). Joke with him that he will be taking violin lessons soon and needs to keep his nails short for that (*I am a violinist). When I clip my mom's nails with the professional nippers, I always first apply vaseline to keep the nails soft and skin protected. He probably "thinks" he is doing a great job himself, but maybe you can find a calendar from a nail salon and circle the dates (e.g., every 2 wks) that he must trim his nails. Keeping his nails short is crucial for the face picking.
Another thing: My dermatologist gave me some "dot" bandaids to put over my chronic face sores. For a year, I wore dot bandaids in several locations on my face constantly. People and doctors kept saying "don't pick", but my take on it was that my body was telling me to get those flaking scabs off my face to relieve the pressure underneath. I also dabbed acne mediicine that has salycilate and peroxide. You can use acne preparations and regimens which may heal his skin. In the bath, I have a grapefruit body wash that is supposed to heal the skin. Olay makes body washes to heal the skin. There are many products that are over the counter that could substitute for him and relieve the sensations he is feeling on his face.Obviously he can't go out and shop for these (provide a catalog?). You could even use the face Nair, or have someone do a facial wax to remove hair. I have a battery-operated lipstick-sized hair remover (As Seen On TV) that would be a gadget for him to use instead of his fingers. I'd go this route, rather than medicate his behavior away. As a former RN working in nursing homes, it was the way doctors controlled residents' behavior: drug them into oblivion. Nobody questioned that.
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Lilfarmer67 Mar 2021
I like the idea of a hair remover you suggested... same sensation without the damage

We use Eucerin which I think is good for eczema. I also have a prescription lotion that we used on my MIL when she had cancer and the chemo made her face peel. I may ask the dr if that is safe to use on him.

He does not tolerate us helping him with shaving, washing, touching his face, or clipping his nails. I think these are things he still does for himself that allow him to feel normal and dignified. He is quite clean and well dressed. We are hesitant to take that away from him. It was much easier to do these things for my MIL with cancer and mom with ALS. They welcomed the hand and foot rubs, putting on lotion, hair brushing, sponge baths. They were so sick I think it was a relief to them. But for him it is humiliating and condescending and it upsets him so much - which makes him pick more.

I agree about meds. He has come off a lot of unnecessary meds (with dr approval) living with us and has been better off for it. He was almost a zombie before that. I would rather he not take Zoloft, it’s not helping anyway. Melatonin has done wonders for him and completely stopped his sun downing.

I like the idea of the dot bandaids.
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He probably picks his skin because it feels itchy. Lotions will help. Try adding a bit more fats and fatty foods to his diet as well. Switch from soap to bath washes with oils in them so his skin gets less dried out during bathing. Might also try anti-itch medications like anti-histamines. Try bandages on open wounds to discourage scratching/picking. Keep his nails very short and very clean to avoid infections. Be aware that impetigo is a skin infection that is easily spread by touching infected wounds and then other places of body. Distraction will work for a awhile - try playing music he likes, television, brushing the dog, ask him to sort laundry...
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Lilfarmer67 Mar 2021
He says it’s not itchy, but I will try an antihistamine. He does not tolerate us clipping his nails. Grooming is one of the few things he does for himself. He does clip his nails pretty short but somehow manages to pick or even rub. The rubbing is worse because he creates bruises. We do music, movies, walking, distraction, fidget toys. I have even seen him doing it while walking the dog.
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My stepmom with dementia would pick relentlessly. Mostly her face and ears. It was really bad. When we said anything, she would deny it. My dad, also with dementia, would yell at her which caused her to pick other areas like her arms and legs. That way he wouldn't be able to see her doing it (i.e. up her sleeve). Her doctor put her on a low dose antibiotic to prevent infection - she was also getting UTI's. She passed in September but she was picking even on her death bed up to the day she died. She even picked when she was in and out of conceiceness. I think in a (strange) way, it comforts them somehow.
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Lilfarmer67 Mar 2021
Thank you. It helps to know I am not alone. I do think this somehow comforts him. It is somehow a release of stress or boredom for him I think. I plan to try neosporin and bandaids and he can pick at those instead.
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I am sorry to put myself into this, but I am having the same problem with my husband. I am also doing pretty much the same things you are. Putting cream such as A! or some kind of cream, makes him feel that I care enough to put medicine ( he thinks it is medicine) on it and he stops for a while. After that I don't address it and he forgets about it for a while. Then we do it again.. when needed.
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Lilfarmer67 Mar 2021
I’m glad this is working for you, it makes my FIL angry, ashamed, embarrassed for his children to do these things. 😢
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On another note, tah dah...I was my dear, sweet mother's caregiver....and she, too, was nearly blind. She developed Mac Degen in her 70's, and over time, it got worse, of course.
She slowly became less able to do things that all of us take for granted, like, walking, finding her water glass, etc....I learned to become her eyes, yes, I was her "seeing-eye" daughter. And I goofed in the early days, but became very adept at seeing for her.
Later, in her 90's, my hubs insisted on her getting her eyes examined....she was living with us by then. And it was discovered that she had serious cataracts as well as the Mac Degen! Well, at 93, my brave, frail mom underwent cataract surgery, and recovered.....and she did get a little more help with her sight! She still had central blindness, but she could actually see a little out the sides! It did help, and a day or two before she passed at almost 95, she asked me, "Is it snowing out there?" I was amazed! Yes, I told her, it is definitely a snow event going on....but she saw it! Anyway, the cataract surgery helped, even tho Mac Degen really ruined her sight....she still could see, a little.
When is the last time, Lilfarmer67, that your FIL had his eyes checked? Cataracts are devastating to one who already has Mac Degen. Just to remove one obstacle to sight may make a real difference!
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Lilfarmer67 Mar 2021
I just saw this, sorry for the late reply. He had his eyes checked last year and has an appointment again tomorrow. I hope there is something they can do for him.
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Remember, as we age, our skin thins out and therefore dries out. Dad scratched at his arms and you could see they were dry; lotion didn't help much. His dermatologist suggested capsaicin lotion - the med techs couldn't get it off him fast enough - evidently allergic to and I'd not put it on the face. He would wear gloves off an on during the day. He was lotioned up several times a day.

As someone who picks at my skins imperfections, I also understand it is due to stress and since COVID my scalp has taken a beating. Sometimes I come to realize I'm scratching and have caused a skin tear.

Try not to stress to much over your FIL - it's probably also stressing him out more. Try and keep his wounds clean; keep up hydrating lotions and maybe an antibiotic ointment if the wound looks angry; check for allergens. Who knows maybe you'd have the same luck with CBD oil as 97yrold mom had.

Good luck.
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disgustedtoo Mar 2021
I am somewhat perplexed by this capsaicin being suggested by a dermatologist. I'd never heard of it used in a lotion, only as the basis for pepper spray - we've seen plenty of the effects of that! So, I decided to look it up. So far every page I've checked talks about it being used to alleviate pain. If your dad was just scratching, then what was this doc thinking? None mention anything about being itchy or picking at the skin, just various kinds of pain. Did he ever mention any pain?

Also, from one website it appears this should only be done carefully:

"The treatment typically involves the application of a topical anesthetic until the area is numb. Then, the capsaicin is applied by a therapist wearing rubber gloves and a face mask. The capsaicin remains on the skin until the patient starts to feel the "heat," at which point it is promptly removed."
(https://www.uspharmacist.com/article/capsaicin-risks-and-benefits#:~:text=Capsaicin%20is%20a%20chemical%20compound,nerve%20endings%20in%20the%20skin.)

This is rather scary too - how many would know what to use if this was used at home?:
"Capsaicin could be washed off the skin using soap or other detergents or rubbed off with oily compounds such as vegetable oil, petroleum jelly, or polyethylene glycol. Plain water, vinegar, and topical antacid suspensions are ineffective in removing capsaicin."

I would highly recommend any time some new drug, whether taken orally or applied on the skin, should be done on a test basis. Very often cleaning products say to test it on a area that won't be seen, just in case it causes damage to the material. The same should apply to anything we apply to our skin!! It's harder to test oral meds, as we can only observe and watch for any abnormalities.

Not all side-effects are the same for everyone. Heparin is a drug that has been long in use and has known side-effects, primarily lowering platelet count too low. In my case, platelets went sky high and even then they didn't figure it out until I ended up with a hematoma! This was all happening IN a hospital, with hematologist coming to my room to discuss the high platelet count, and me thinking YOU are the hematologist, I'm not allowed to eat, so anything going into me and affecting me, YOU docs are behind it, figure it out! Those shots were SO painful I was hoping they'd stop. nearly killed me with them! After hematoma, no more Heparin!
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Most dementia patients will develop a compulsive obsession behavior. It is impossible to break. It will continue until something else happens, or some other behavior replaces it. Just remember Alzheimer’s Disease never gets better, just worse.
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