Follow
Share

My 92-year-old mother has multiple myeloma and has had it for a couple of diagnosed years. She had treatment for two months in the beginning but it was too much for her body, so she stopped.While I was doing my last year teaching (after 29 years) she was in a senior living facility so I knew that she was safe and could have emergency calling while I had work every day and that worked out great.(She had a pendant she could push).Fast forward to August 2025. I moved into a one-story house with the intention for my mother to move in with me and for us to spend time togther until she got sicker and of course, you know what happens in the end.At the end of November, right before Thanksgiving, we had a rare meeting with her doctor (he's very hard to get a meeting with) and he suggested hospice. Now, from reading what hospice is, it's when the doctor thinks th epatient has 6 months or less to live.The decision for hopsice was accepted by my mother, knwoing that there would be no more doctors, no more blookdwork anmd no more knowing exactly what's going on with her health.Only hospice nurses coming twice a week to evaluate and "make sure she's comfortable".The hospice decidison wouldn't have been mine because of that, but it was what my mother chose.Fast forward to now. Up until recently, my mother has been able to shower herself, clothe herself and feed herself. It is becoming more difficult to do so and she has just now started to ask about possibly getting help for thise things.A note about mother: she does not liek to ask me for help, ever. It's just a pride thing, I think. She will, hoever, ask and tell other epople exactly what she needs and exactly ow she feels. I think she tries to protect me from having to do too much.I am realizing now this will be a long post...sorry.So, neither of us imagined, thought, dreamed of her passing in the house. We always assumed (both of us) that something would happen, she would go to the hospital, and she would pass there. I (as well as she) never imagined this is the house she would die in.So now one of the choices is stay at home and hire caregivers 24/7 (because eventually I won't be able to handle the "hospice" part of it where I have to do everything and care would be hired I figured at about $12,000 per month).Or assisted living, which we've already toured a nice place, spoke with the manager, etc. and my mother liked it, as well.The manager understands that she is basically going there for 24 hour help and eventually to pass away.We would use assisted living basically like a hospital.The problem comes with my mother's decision making. This morning, she woke up and said she made a decision that she wants to stay here. Then I sat and talked with her about "what if something happens to me?" Who would take care of her? or "What if we need to get out of the house quickly (gas leak or fire) and I can't get her out", etc.At times she has said she wants to stay in the house. Why not? She has everything she needs: Spectrum DVR, coffee and breakfast and cleaning up, dinner and cleaning up. I don't find doing those things at all. It's the medical side that I can't do. She's addicted to TV and so I think that';s a part of it, but I also think she does like it here.One of the problems is that I have contamination OCD and have so far had to clean up 3 diarrhea accidents all over the floor and trailing to the bedroom and bathroomI tell her that I want her to make a decision based on what's the best thing for her and what is the best thing for us in the long run (when she gets bedbound and needs for care).So, I feel like the decision is mine because as much as she wants to stay , she also wants to go somewhere where it will be easier evntually.My father died 3 years ago and boy do I wish he could be here and help me with this. Although somehow I don't think he would have handled it well.So, basically I'm conflicted. Staying at home would mean spending more $$$, which isn't a pro

Find Care & Housing
This is your third post at least about this, so I think you know that you need to place her in a facility. The medical parts are only going to get messier and more challenging, and that would stress anyone, but with your contamination OCD it may very well become unbearable and cause you psychological harm. She can get all of those same things, TV all day, coffee, meals, and cleanup, in a facility, plus the medical care she needs. And you will be able to return to being a kind daughter rather than a stressed and anxious one. So just go ahead and do it.

(Btw, there are some excellent facilities for contamination OCD with cognitive behavioral treatment, such as the OCDI at McLean Hospital. If your mother is not living with you, you can work on improving your own mental health, since this is such a challenging way to live. I wish you peace)
Helpful Answer (6)
Reply to MG8522
Report
Rosered6 Jan 18, 2026
Third post and consistent answers to all three: It's okay for the OP to move the OP's mom to a facility.
(2)
Report
The problem is you weren't honest with mom. You gave her a choice of living with you or going to AL (where she can have hospice AND watch TV all day long) without telling her you cannot clean up her accidents or handle her passing away in your home. So she chose staying with you and now you have a choice: be honest with her or keep her living with you until she passes and figure out a way TO deal with it.

Best of luck to you.
Helpful Answer (5)
Reply to lealonnie1
Report

Yes I agree that you need help with the personal caregiving part of things. You can either get help in the house or in a facility. You want her to go where she feels comfortable with the care she's getting without being a burden to you, And you want to make sure that she's safe and happy without stressing yourself out. It's never going to be perfect but just do the very best you can.
Helpful Answer (2)
Reply to Hrmgrandcna
Report

It's time for placement. You can dwell on the positives of the facility and let her know it's the only option now.
Helpful Answer (2)
Reply to JustAnon
Report

Hospice does supply an aide a couple X a week for bathing. I read one of your previous posts. If Mom is not wearing pull ups, she should be.

You need to tell her that there is no money for in home aides. It would be cheaper to go to an AL. That you can't do the caring for her that she needs. My Mom lived me for 20 months. She had an explosive BM that took me 3 hrs to clean up after cleaning her up. I said then, if this happens again, she will be placed.
Helpful Answer (1)
Reply to JoAnn29
Report

Hospice should have a CNA that would come at least 2 times a week to give a shower or bath to mom.
The CNA would also order any personal supplies that are needed. Incontinence supplies, gloves, wipes, soaps, shampoo.
You might also want to think about getting a caregiver that could help you out. Even 3 days a week for a few hours each day can make a big difference.
It will get more difficult as mom declines so if there is any possibility that you can not manage the time to move her to either Assisted Living or Skilled Nursing would be sooner rather than later.
you can discuss this with the Hospice social Worker and if there is a need to apply for Medicaid the Social worker can help with that
Helpful Answer (1)
Reply to Grandma1954
Report

This is not working for you , that’s why you keep asking similar questions here , nor will it get better . Even with aides coming to the house you will not be able to totally escape the medical things ( smells , body fluids , including urine and diarrhea) . Just the fact that it’s in your home will bother you . And when an aide doesn’t show up for a shift , the hands on care will be back on you .
It is time to tell mom that you are very sorry and that this is no longer working out , and she will need to go to assisted living .
You are trying to get Mom to agree to go
on her own . That’s not going to happen .
Your mother can remain on hospice in assisted living should she choose .
Helpful Answer (0)
Reply to waytomisery
Report

If the finances would allow, honor her wishes. Or talk it over with her. We can only suggest here. The two of you are the ones holding the cards in the end. Man, these threads are tough..
Helpful Answer (0)
Reply to Slart26
Report

Ask a Question
Subscribe to
Our Newsletter