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I will be honest. I hate being a caregiver. I don't take care of my husband. I take care of someone that looks like my husband. Lately, I stay so frustrated and ill with him. He told me to quit being ill with him and mind you there is nothing wrong with his mind. I love him, but lately I just don't know what to do about my attitude. I pray to God everyday to help me. Everyday I mess up with my mouth in gear. I need prayers for me and my husband.

The way I found this forum was one day I googled "I hate being a caregiver". I am not sure why I did that or what I expected other than I was feeling lonely, frustrated, resentful, tired, trapped. It led me to this forum.

I got on to a thread where this woman was literally suicidal, she was so depressed from caregiving and having no life. I realized there were others like me and that I was not a terrible daughter and wife. I wasn't suicidal but did realize I was experiencing compassion fatigue as well as physical fatigue and depression. I set the bar high for myself and kicked myself when I too, got snippy, snappy, crabby and shrill with them.

I had it in my head , well, it was put there with the assistance of many family members that I should be enjoying this. That I should be grateful. Happy even.
Did not know why my life did not look like all the glossy caregiving pamplets and commericials. I recall one commerical of a lovely elderly woman standing on the steps of her beautiful home with two beaming attractive adult children. The guilt line was something like "dad made us promise not to ever put mom in a home".
Yeesh.
So much is thrown at us, telling us how we SHOULD feel, and if you don't the guilt and self criticism sets in, which leads to depression...and so on.
I found so much help, hope and acceptance here. It's my sane place when my life gets too intense. Welcome and I hope you find support here as well.
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Christservant Mar 9, 2021
Boy do I know this to be true.
I tell men and women that make stupid comments like she is your mother so you have to take care of her or she is a good ol girl that I am more than willing to have them come in and take care of her for a month so I can have some time off for the first time in four years. It shuts them up fast.
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Sylvia, you are not experiencing anything the rest of us haven't, at one time or another. It SUCKS watching a stranger take over the body of someone you love. I am repeating something a dear friend told me, that helped me tremendously.
You have to acknowledge your anger. Stand in front of a mirror and look yourself in the eye and say "I am so angry this happened to my husband, and it's OKAY to be angry. I hate this disease and what it is doing to him. I know it's not his fault". Then ask for grace and patience to deal with the issues that arise. Do it as often as you need to. It does help. I used to yell at my husband when he would do something bizarre. By acknowledging that I was angry at the disease, I found acceptance that allows me to be kind and compassionate. Sending you a giant hug, because we all know what you are going thru.
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SylviaT Mar 6, 2021
Mapke3044
I thank you so much for your advice. I am not a bad person and I believe in God and am a Christian. I will try what you're saying and thank you for not being judgmental. Hugs back!🤗
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Sylvia,
I know how you feel. I too pray everyday for God to help me in every way. To give me strength, understanding, wisdom, to tame my tongue, and much much more! I am always frustrated, angry, resentful, exhausted and burned out!

I'll pray for you and you can pray for me and maybe together will get through this!

Hugs!!!
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Mom145 Mar 9, 2021
Please include me in those prayers. I will also include all Caregivers of AgingCare on this earth in prayer.
This is truly a challenging and exhausting career. I am constantly working on my attitude. I breathe a bunch! I truly work hard on not saying what I'm thinking. I call a friend. Heck, I have called customer service to just talk to somebody different! I drink a glass of wine occasionally.
I do not work for a company. I consider this caregiving my job, so I treat it as such.
I pray extra prayers for those who work for companies and also care for love ones too.

I incorporate creativity in my day as much as possible in caregiving. I play music, dance in the living room, watch movies or have tea time and talk. We color children's books, word search books or just take a walk to the mailbox. Sometimes we just walk from the front door to the back door inside the house. We write letters. I have learned to not push them.
I do seek help. No help is turned away. I've learned to relax. When they sleep, I sleep. When help is here I often go for a drive.
I BELIEVE, God WILL send what I need. If I ask. Not what I want but what I NEED.

Whatever I do for me. I do for my love ones. I do it today, I don't do it tomorrow. It is exhausting and there are often no rewards. Breathe.
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Thanks for your honesty. I also hate being a caregiver for my wife. She's had Parkinson's disease for 18 years but 3 years ago she was diagnosed with Capgras syndrome which is a dementia associated with Parkinsons and Lewey body dementia. The short story is she doesn't know who I am and accuses me of being an impostor. She says her husband lives someplace else and I should quit trying to be him. She knows everyone else in our family - our kids and grandkids, siblings, nieces, nephews and even her in-laws (my family) and they all tell her that I am her husband, but it just doesn't compute. It's really frustrating because her physical needs have gotten worse in the last year and it all falls on me. I basically can't leaver her alone for more than a couple of hours and, with the pandemic, no one will help me out to give me a break. Sometimes I absolutely hate my life. I love her but a lot of the time I really don't like her. She's just not the same person. It's really tough on me. My life really sucks!
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I think people go into caregiving for various reasons.

If caregiving continues for an extensive period of time, they will most likely grow to absolutely hate it.

Plus, how many people secretly hate it but for whatever reason they won’t openly admit that they hate it?

Don’t ever doubt that burn out is real.

People who don’t think that caregiving is hard, have probably never done any caregiving in their lives.
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I think the question should have been "Be honest, how many LOVE being a caregiver? There'd be a lot less replies to read.
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Jbird58 Mar 10, 2021
Good point!
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I don't think there's a person in the world who can say (in honesty) that they love the whole experience of being a caregiver.

When you are the only caregiver and live in the same house as the person you're taking care of, it is in a sense a kind of slavery. You are chained to the situation and your life is not your own anymore. Even the smallest every day things like going to the grocery store have to be planned in advance with arrangements made so you can go for an hour. Then add the total ingratitude of the person you're caring for, which is also very common. The often abusive and negative behavior that the person being cared for develops over time, and the two-cents offered from everyone you know about how you can be doing a better job. Then add the guilt we put on ourselves for feeling resentment. Someone on this forum said that when a caregiver is feeling resentment it is because they're giving too much of themselves. That is the God's honest truth right there.
You are giving too much and it's time for outside help to take over some of the caregiving burden. And it is a burden even if people say otherwise. Let paid caregivers take some of this burden from you.
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Sylvia,

You’ve come to the right place. Everyone here is a caregiver or has been a caregiver and in the past.

So we understand completely. Caregiving is exhausting! It’s extremely difficult to see a person decline.

I read your profile. You have a lot on your plate.

How long have you been caring for your husband? How much longer do you feel that you can continue doing full time caregiving on your own?

I feel for you. My mom has Parkinson’s disease so I know first hand what a challenge it is.

I will keep you in my thoughts and prayers.
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My father with dementia didn’t throw his old medication away the doctor wanted him to stop taking, he got it mixed up with the new medication and couldn’t remember which one to take. So he’s been taking the wrong meds. Today I tried telling him which medication to take and he gets smart with me and tells me I know what I’m doing you are the one confused! It’s so frustrating. I hate it. How can you help someone when they don’t want help? Who can possibly enjoy days like this?
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LillianS Mar 6, 2021
Sounds like my Mom.
You cannot help them if they don't want it. It's hard to watch them crash and burn, but sometimes that's what we need to do. When they get themselves into enough trouble, you stand beside them and help them through it.
If they end up in hospital or nursing home because of poor choices they made, take the opportunity to go through their place and clean out all meds, foods, etc that have expired. Put up a few "safety nets" in anticipation of them coming back home.
Also, get them to give you POA healthcare, or sign the proper papers at their M.D. to give you access to speak with their doctors.
Be prepared for them to reject your offers, but persistence will pay off eventually.
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Hi SylviaT. I will pray for you and your husband. Caregiving 24/7 alone is exhausting. In my situation, I find I get more frustrating when I’m tired. I’m working on biting my tongue and walking away when possible before I say too much that I surely will later regret. I also rest whenever I can so when Mom is napping I try to catch a few zzz’s also. Can you get a break for yourself to refresh even for a short time? Caregiving is so hard. That doesn’t mean we won’t continue and take it one day at a time. It just means it’s so hard. Emotionally and physically. Hugs to you.
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