Anyone caring for non-Alzheimer's/dementia loved one?

My husband doesn’t have dementia but has some aphasia from a previous stroke. He is also bedridden. I am his 24/7 caregiver.

No dementia with my dad, he’s dealing with end stage congestive heart failure and very limited mobility. He uses a rollator for every slow, fragile step. Also has frequent bladder and bowel issues.
It’s wonderful that your husband continues to exercise! Encourage him in that all you can as it will be huge in keeping that mobility going as long as possible

I manage care for my 100-yr old Aunt several states away. Sharp as a tack, full memory long and short-term. Healthy but not very mobile, doesn't get out much as she lives in her own home so I'm always trying to think of what would help her/please her. I recently got an offer for free print version of the Wall Street Journal which I sent to her address. My aunt called my mom to say she was worried the subscription might stop! Now she reads the WSJ 6 days a week. So glad I found something she values! Moral of story is to never underestimate, never make assumptions, never stop being creative about how to bless our LOs.

My brother has a probable early Lewy's Body Dementia by his symptoms alone and by an MRI with some white matter changes. He is 85. He also has a benign brain tumor, likely there for a period of a decade or more, affecting his balance. Something like a scheroma. I am not heading to the files to look up again. It presses on his medulla, ruining balance and his gait, though he has yet to fall looks a bit "drunken" (I am knocking wood along with you as he will not use a walker). Recently a woman wrote about her husbands Frontal Temporal Dementia. His periods of apparently seeming well juxtaposed with rage. Many have people they love with vascular dementia. And we learn as we go what some of the symptoms are. The more you read on the forum the more you will become informed by so many on so many cases. We are learning how different countries serve (or do not) the needs of those suffering various forms of change through the aging process. Recently I read an article about the differences in hallucinations from Parkinsonian and Lewy's and one can begin to see how we are on the cusp of beginning to learn. Before Robin Williams and Ted Turner I honestly never heard of Lewy's dementia. I wish there was so much more support out there. Where are the "Villages" they promised us, where we could share care and provide together for one another in age. I think with our aging populace that may comes as well.
So much to learn out there. I am quite addicted to this forum and all I have learned here has helped me enormously. Sometimes I also think, since I am not doing hands on in home care giving that I am steeping myself too much in the subject of aging, my own, my partner's, my brothers, our friends. That I should spend more of the time back in the garden, sewing and reading and museums. I am new to it here and here only since February, not willing to give it up yet, or even cut down I guess; it has been an enormous support to teacher for me. I am really enjoying seeing the responses from caregivers here, who have always been so helpful with answers. I know more about them by what they are doing.

yes. My husband’s got DX ALS since 2013. Dying slowly before my eyes. He’s very sel centered. And just so bossy. I hate ALS. Im his only caretaker. ( except for a bather. ) He is 56. I’m 60 and disabled for 20 years .

I’m caring for my mother who doesn’t have dementia. She is a fall risk though. Sometimes i feel like she is experiencing some depression and has kinda given up on everything except watching TV. Of course she denies it, but I can’t help but wonder.

Not a hands on caregiver to my parents, but gain valuable information from here.

Mum is 85, has some short term memory issues which she is aware of and uses a calendar and notepad to keep on top of things. She is in the doesn’t want to sell her home camp, but since stepdad died 10 months ago, really needs the $$.

Dad is frail, starting to lose the plot, and still driving at 90. He passed his driving medical earlier this year. When I saw him a couple weeks ago, he could not remember how to answer his phone. Dad is a hoarder, is developing extreme views on international economics and I am sure heading down the road into some form of dementia.

People who know Dad think he is highly intelligent, which perhaps he was, and enjoy conversations with him. His long term memory is phenomenal.

My folks divorced decades ago. Both remarried, step dad died last fall. Step mum is in NZ and due to their health issues, neither her nor Dad have been able to make the trip since 2015.

I think that most of us deal with husbands that have multiple issues. The thing that sets dementia apart is that you are emotionally loosing your loved one and it can’t be reversed. I am happy that you aren’t dealing with this now. Do what you can while you can. A word of encouragement. Years ago I took a cousin who had Parkinson’s on a trip to Europe. She could have never been able to go alone. Once we got there we took a bus tour all around. It was wonderful everyone helped us and the tour guides were great. Everything was planned ahead and all we had to do was enjoy ourselves. You will need help as you go through this but as long as you both are willing you can do so much.
Blessings to you
eloise

I am my husband's caregiver and was my Mother's before that, however keep thinking, "If I had only done this years ago, life would have been so much easier." I keep hearing the words repeated in my head....Don't swet the small stuff!!! Oh so true and more so as we all age!! I don't know if it was how I was raised and heard my parents, but I don't need to react to EVERYTHING! Or it's how I react. Both can make matters worse and wears me out. I don't hold in feelings it's just that all that small stuff can be let go. I really learned this with dealing with Alzheimers, but could have used it years ago. What a difference. The other thing I have found has been wonderful, a gift to myself, was to get the TV wireless headphones. (The ones that cup your ears, not the ear buds) The headphones give me the feeling I am in a theater, for sound and eliminating most of the room sounds. I can really enjoy programs, including concerts at my volume, without disturbing anyone at anytime and even if we are watching the same show. I don't need to hear each rinkle of the newspaper, his trip to kitchen, etc. Yet can hear if really needed. Lastly, we make sure we go out every two days at least to do something even if it is for an ice cream or lunch, followed by a different area of town, surrounding area to see. Amazing what sights in one's own area we take for granted and never view or visit. Hope this is of help. Remember....Don't swet the small stuff and enjoy every minute of everyday!!

have someone come in to assist, get him outside and watch someone help
. its to much on just the spouse assisting doesn't mean doing everything for him its good for him to try and do as much as he can him self . I am a skilled caregiver my self i work independently. looking for work.

We too are saddened by what we can’t do, but just enough to alter our lifestyle to enable us to do more. I am 61 and now the full time caregiver for my 78 yr old husband of 38 years. We have done so many different things in our lives that another adjustment is not a big deal. He is 98% blind and has mobility issues. I am a retired teacher so Its not in my personality to coddle him or enable him. For him to remain out of the nursing home, he MUST be able to get out of bed and get dressed on his own, he MUST take his meds everyday without prompting (I put them out for him in the morning...he has all day to get them down), He MUST be able to get up in the middle of the night and manuever on his own to the bathroom or he will have to wear Depends at night (his choice). He MUST be able to feed himself. I have to clean him up after a bowel movement because his hands dont work good and neither one of us want that mess to deal with. He can’t make coffee or use the microwave because he cant see the buttons or controls. I even have to set his tv channels for him...BUT...what he can do, he does for himself. His job is to feed the wild birds and our ducks in the evenings, I take care of the watering. Because he cant go down into the yard area, we built a big deck and have his bird feeders hanging from the trees, around the edge. He holds on to the railing and can feed his birds. We also continue to cruise every three months as long as he keeps up his responsibilities. Lol...I’m so mean...I wish I could post pictures if you want to share ideas about getting him back outside and keeping the life you both love, Im here and on facebook.

Yes. My DH did not have any dementia. He was old. At 96.8 he needed assistance more the last few years - but he was tested annually and never had dementia.

Caring for husband with relatively young onset vascular dementia. (he is now 70.) He is in later stages and it is so difficult knowing what to expect. All sources say vascular dementia is stairstep and there really is no predicting how it will go.

My husband has multiple health issues but no dementia and I am his only caregiver. We previously cared for my Mom and his parents, all of whom had dementia or brain issues, so this is very different. He has the desire to go places and do things but just can't, physically, and it frustrates him. I can't leave him alone (fall risk, among other things) so we try to make the most of any of our "outings" - which pretty much consist of doctor's appointments and grocery pick-up. By the way, thank goodness for Walmart and other places that have that available now - order online and they load up your car with the groceries! A life saver for us. We have friends who will stop by to visit every few weeks, so that helps, but we just try to enjoy what we can when we can. Yesterday, he felt well enough to go to a restaurant for lunch after his doctor appointment so it was a good day! Best wishes to you

I have a neurological disorder ( I don’t produce aerobic energy so it affects every system) and basically am housebound . I got sick in 1988 and have been bedridden to housebound, to some what limited and back again but never well since. It stinks to be honest. Now at 66 yes, medical POA to a narcissist mother with vascular dementia lol. (🙄🙄🙄🙄🙄)
the only thing I can tell you is try to maintain some kind of enjoyable hobby. I’ve spiraled down physically but keep replacing what I can’t do any longer ( gardening, photography, refinishing furniture ) with things I can do, recently started crocheting and freeform crochet. Imo to keep your sanity you need to do something “ useful” and enjoyable

TiredSue The wireless headphones are Sennheiser and on the side of headphones is HDR 120. I think I ordered them from Amazon but can't remember. Have had them for 1 year or more and use them most every evening. No batteries, very comfortable and have never run out of charge. I place them (hanging on) the charger stand every night when we go to bed. I had the ear bud set before these and they hurt my ears and no where near the quality. With the Sennheiser headphones I even walk to the other room with them on and when others walk in front of me and no interruptions. Glad I have them.

- Elder refusing to leave home
- Elder refusing to leave state
- Elder living alone
- Elder legally blind, has CHF, A-Fib, worse ever case of wet Macular Degeneration, Incontinent both ways, arthritic
-Elder making daughter move in from seven states away
-Elder having 100% blocked one carotid, even though checked by cardiologist 4 months prior to passing of an ischemic stroke
-Elder falling and not telling
-Elder starting fires in home
-Elder fibbing to doctors

My father does not have dementia at this time, for which I am very grateful. Though disabled from an accident three years ago, he makes jokes, is polite, is interested in things, has answers for 'Jeopardy' and is basically the same person now at 84 that he has always been. I feel thankful for this every day.

"We're both sad we can't do things we used to, especially travel long distance, but we're trying to figure that out." Day trips? Extended shorter trips? Find any activity outside the home that might interest both (more for him, so long as you can tolerate whatever it is!)

"He also really misses all the work he used to do outdoors." Probably involves a lot of yard work, but if he likes growing things, can you set up any kind of indoor garden? Herbs? Plants? I get satisfaction being able to start/grow/maintain plants. The current house I am in has a "sun room", which I use for plants, including a place to start my tomatoes and peppers. It is also a safe place, the cats can't get into the dirt or chew the plants!

Perhaps also, for at home, find small crafts, etc that he or both of you can work on together. Visit pet shelters, provided neither of you are allergic, to give some love/attention to those waiting for a home - cats might be easier, less chance for a dog to jump/knock you over, but all these poor animals generally welcome free attention!

While it isn't a lot, take some comfort in the fact that he DOESN'T have any real cognitive issues! Sad to have to curtail once loved activities, but dementia adds a whole new dimension to care-giving, which you have seen when reading posts here!

I’ve been taking care of my 93 yo mom in her home for about 12 years. She is mentally alert although often depressed because she doesn’t move around well.
Anytime anything is a little hard for her to do she doesn’t extend herself to try.

She’s given up on most everything, perfectly content to let someone else take over her responsibilities.

Physically all she does is get herself dressed and feeds herself breakfast. Everything she needs has to be at waist level for her. She can’t lift a gallon of milk.

Once she has breakfast she sits in her recliner and watches the news or reads the paper. She doesn’t get up for a snack and only rarely goes to the bathroom.

The good news is I just got a car! It needs repairs but I will be able to take her out just for a drive if we want soon. This will be life changing for us if she’ll just hold on a little longer.

By the way, her only medical problem is type II diabetes in control. All else is just weakness and arthritis pain. I have a baby monitor I can hear her theatrical moans and groans all day.

She has two chores: put the clean silverware away and fold the small items in the laundry. She always has an excuse for not doing the laundry lol.

Charlotte

My mom lives 15 minutes away and her severe arthritis leaves her in a wheelchair. Her mind is sharp and at 86 she watches Wheel of Fortune and Jeopardy every evening.
The other night we took her to hear live jazz which she loves.

If you can't get out as much as usual, invite others in to discuss their recent travel experiences, a movie everyone has seen on television or the theater, a book, etc.

Would your husband be interested in teaching younger neighbors home repair? One of older neighbors did this for us when we were young and couldn't afford a plumber. It saved us hundreds.

We share with you all the activities. We used to travel,go for walks and spend time outside, but no more. My husband is 97 and he was always very athletic and active but for the last 3 years he,we( 88) can not do much. We sleep a lot stay in the house way to long. If you find a good solution I would like if you can share,but Iwish you patience ,love and good luck.

I am so sorry.it must be so difficult, When you look over the fence you realize your own problem is not that big. I wish we ,I could help more. But we can converse if that helps.
simona

Here in US, most of the state parks have handicapped accessible trails. Morris Arboreum, Chestnut Hill PA has a lovely elevated walkway that extends out into the surrounding trees. How about some new, challenges? If you have a computer, check out YouTube for cycling videos that provide a virtual reality bike run as well as endless videos from unexpected sources. HGTV offers numerous shows about home improvement. Old black and white, full length tv series.Numerous game sites (Jayisgames) that offer free “locked room” puzzles that challenge your problem solving skills. Yes, these last suggestions are not the same type of physical, outdoor activities that you enjoyed in the past. combined with some accessible outdoor outings they can be entertaining.