Hi tx camper, I hope you realize that I was writing in gratitude--not sarcasm. I was just in a funk and wondering "how long?????" when I read your reminder--and truly, it lifted me right up! I need to forget about "when" and focus on enjoying today, and it is many hours later, and I did enjoy the day.
Hello Rayjays - Well, you've come to the right place, but we need to know a little more about what it is you'd like to learn. You can start by doing searches in the search box on the top right about the topics that are of most interest to you, or you can expound upon your post by listing some of the things you want to know about. There's a lot of us more than willing to share with you!
If u work, see if they have a program that helps u in this type of problem. If she worked or ur Dad, they may have a program that helps the retirees. Good luck.
So, according to your profile, you are caring for your wife. How far along in the disease do you think she is? Are you just starting out, or has things changed and she's getting worse.
I've got a little saying that I say sometimes, that it's a marathon, not a sprint. By that I mean, try to pace yourself because it usually goes on for years. Caregiver burnout is a real thing. Try to take care of yourself, make sure you eat and sleep enough. Get as much help as you can. Let your wife do as much as she physically can for as long as she can. Everyone likes to be useful. But be prepared for the day when she will not be able to cook, or make decisions. Be prepared to simplify the way you talk to her, but not talk down to her. Just shorter, simpler sentences. You, or someone, is going to have to get all up in her private business. Toileting, bathing, dressing.
I hope you come to realize that this is a good place to ask questions. You may not always get a bunch of answers, but, given enough to work on, we try to help in any way we can. There are all kinds of people on this site who are dealing with all kinds of situations, so ASK AWAY!
I hope you realize, Salisbury, that I don't mean that to be depressing. It's just a reminder to me (and to anyone else who cares) that we need to pace ourselves and not wear out at the beginning of the process.
I would start with a nice daycare, some pick them up also. Then, I myself use care online or sittercity. You can get their background checks and find some great people but you have to weed through them. I found that someone in their 50's seem to be best and most loving but others are good as well. I would also put up cameras, fake or not, to keep them in line. IF they are honest people, it wont bother them a bit. Good luck, hope this helps.
https://www.agingcare.com/Alzheimers-Dementia
Hi tx camper, I hope you realize that I was writing in gratitude--not sarcasm. I was just in a funk and wondering "how long?????" when I read your reminder--and truly, it lifted me right up! I need to forget about "when" and focus on enjoying today, and it is many hours later, and I did enjoy the day.
I've got a little saying that I say sometimes, that it's a marathon, not a sprint. By that I mean, try to pace yourself because it usually goes on for years. Caregiver burnout is a real thing. Try to take care of yourself, make sure you eat and sleep enough. Get as much help as you can. Let your wife do as much as she physically can for as long as she can. Everyone likes to be useful. But be prepared for the day when she will not be able to cook, or make decisions. Be prepared to simplify the way you talk to her, but not talk down to her. Just shorter, simpler sentences. You, or someone, is going to have to get all up in her private business. Toileting, bathing, dressing.
I hope you come to realize that this is a good place to ask questions. You may not always get a bunch of answers, but, given enough to work on, we try to help in any way we can. There are all kinds of people on this site who are dealing with all kinds of situations, so ASK AWAY!
Thank you!!!!!!!!!!!!!!!!!!!!!!!!!!