ALS & caregiver financial options, any suggestions?

Hi and welcome to the forum. One of my (4) caregiving recipients had ALS. She was my 'best friend' for 32 years when she was diagnosed. Here is a rundown of what I learned from helping her.
Our local MDA assoc. had a loaner closet that gave her access to much of the equipment at no cost. Alternatively, Medicare will pay for one wheel chair, so she should be able to get the power chair that way.
For a ramp and bathroom modifications, try a local 'habitat for humanity' group or paralyzed veterans group. They often help other citizens, especially if there aren't any vets in need of help at that moment.
Try your Goodwill/Salvation Army thrift centers for equipment/lift chairs, etc. You might also make a few calls to organizations that help those with their disease to see if they have any ideas. (I was trying to donate a hospital bed and called around to all of the groups in my area. Through that, I learned that a local church had a 'durable medical equipment' ministry. They collected and stored it and lent it out to those folks who needed it.)
Medicare will give your wife a hospital bed. Presumably, she is being seen at an ALS/MDA center. They will write a script for that.
Some houses of worship have volunteers that help those in need of errands or visiting with the affected patient while the caregiver gets his errands completed. check if neighbors can help too.
When I called local hospice agencies to see what services they offered (in anticipation of needing them) I learned that some of them considered ALS an immediate need diagnosis. My friend had a strong network so she didn't enroll in hospice until 3 months before she passed. BUT the one we chose had the biggest array of services -- including a volunteer who came to read to her and write out greeting cards for her to send to her friends.
Have a friend make the phone calls to agencies and groups. Actually, try nursing homes, assisted living facilities or continuing care communities for those lift chairs.
Keep us posted, ALS brings changing needs. their website also has helpful ideas alsdotorg. Finally, how kind of you to return to help her at this difficult time. Blessings on both of you.

An eldercare attorney should be consulted. Miller trust can be set up. When here is a community spouse, Medicaid qualification is much more complicated and should be handled by a qualified attorney.

My sister has ALS and has had it for about fifteen years now. When she and her late husband agreed that she needed long term care they consulted an attorney. The attorney had them apply for what they called financial separation. It protected many things. But that will depend on your state, etc. Sis has been bed ridden for over ten years now and unable to communicate.
Best of luck to you both.

Check with your county Office of Aging to see if they can help with the ramps. Office of disabilities too. If you or her were in the service during a war or conflict, she maybe able to get Aids and Attendance.

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