Hi everyone. Newcomer here. Have spent the last hour reading various entries... have added several votes for helpful comments. Wow, you all are here for one another.
I have been caring for my mom for the last 3 years. Initially this was pretty simple; not anymore! She is a medical nightmare with so many doctors that I have a folder on my phone for just them. LOL Saves time scrolling down the list.
At Thanksgiving, my mom had some vague chest/stomach problems. My mom was in and out of the hospital the entire month of December.
Hospitalist and cardiologist told me to, "take her home and get over it; stop bothering them. Well, good enough, but mom kept having chest pain and I kept taking her back to the hospital. On January 2, 2020, my mom had a catherization that showed her left main artery was 95% blocked.
My mom was transferred to a medical center where the artery could be stented. She was in hospital for nearly 2 weeks with complications. Mom was sent to a SNF, Monday, with a "little extra fluid." This meant swollen legs and belly.
Wednesday, I was seen by my PCP because of abdominal pain and vomiting. My PCP thought I had gall bladder ailment and she sent me to the ER. Turned out that I had an ulcer. In the grand scheme of things, this was great!!! No surgery!!! I had told mom that I would not be in that day as I was not feeling well. Mom called me while I was in the ER to say that no one was taking care of her painful catheter and she was now seeing red blood in her catheter bag. I called the SNF nursing staff and explained situation. Catheter was changed, so all good there. Phew!
The SNF doctor came in Thursday and said,"Let's watch leg swelling for a day or 2." Mom had an appointment the following day, Friday, with her regular cardiologist. Problem solved. LOL
Reason for cardiologist visit: hospital follow up and symptoms of heart failure. Mom had 10-15 pounds of extra weight over the last week. Her legs were swollen to the point that compression stockings were too tight & mom couldn't sleep in a bed because she got too short of breath. He doubled her dose of water pill and sent her back to the SNF.
Later that same night the SNF staff called EMS and sent mom to hospital for fluid overload and pneumonia. The SNF didn't notify me that my mom was in hospital. I was having a sleep study. I had told the SNF staff that I was not available and that hubby had my phone and was listed a 2nd contact. Saturday morning, mom left a voicemail that she was in hospital.
Monday morning I went to SNF and had an explosion followed rapidly by a meltdown. I was finally ready to have a respite and couldn't seem to find anyone, in the medical field, who was on board to manage things so that I could leave mom in their "care" and take some time to regroup.
So finally I come to my question: How do you all keep things from crashing down around you when you finally take your hands away? I can't imagine that I am unique in this experience. LOL It is too crazy to make up, so there has to be other people who have had the same sort of things happen.
As misery loves company, I would love to hear from you, how you recovered your composure to "take your hands away again". Thanks for reading! :-)