First, the good news: Chuck is doing very well with his liver transplant. April 29 will mark the one year anniversary of his transplant at the Mayo Clinic. He's showing no signs of rejection, is off 80% of his medications, and his follow up tests and visits show him to be a super star. He's back to photographing birds every morning with my son, even in minus 5 degree weather, so that pretty much says it all. My avatar pics are of his birds.
Now for the bad news: I've mentioned before having a surface melanoma on my arm removed in October of 2021. An "in situ" mole of no consequence where all the melanoma 'was removed successfully'. This was a result of having a dozen beauty marks on both arms blow up like balloons after the 2nd Covid shot, grow scabs on them, and when the scab fell off, the beauty mark disappeared entirely. Except for the one. And all of it was not successfully removed after all, as a few cells must've escaped into my body and caused metastatic stage 4 cancer in my lymph nodes, liver, and bones. I went to the ER 3 weeks ago for excruciating pain in my left side where a CT scan with contrast was ordered. The cancer was discovered at that time, and I've spent the last 2 weeks in testing. The cancer is not in my brain, thank God.
The Oncologist told me there is immunotherapy available now for malignant melanoma. 2 types at once, administered via IV (no port) every 3 weeks x4. That's the goal. To turn on my immune system to kill off this cancer. 50% of immunotherapy patients are alive 2 years later. Idk what the percentage is at the 5 year mark. I've avoided doing research bc I'm overwhelmed enough already.
I'm having tremendous pain in my spine, ribs and liver, where the cancer is the worst. The Oncologist gave me some heavy duty pain meds and told me to wait it out until the IV starts kicking in to relieve my pain. He said I would live less than 2 months without treatment so my first treatment is tomorrow morning. The side effects can be gnarly and these infusions WILL kick my butt, he said. I'm ready, I think. Ain't no beauty mark gonna take ME down at 65! 😑
I'm useless at home, so Chuck is doing everything. Laundry, cooking, grocery shopping, driving to appointments. I have a housekeeper coming in to do the heavy cleaning and my stepson and his wife are cooking 7 dinners for us and bringing them by on Saturday. I have to make sure HE'S not overworked during this treatment process to where he gets sick. He's already overcome with worry and shock over all this as it is. I'll ask my stepson to repeat that meal making plan, too...they want to help & we need help.
We've had a lot to deal with the past year, and now my issues, which were there all along, just not apparent until recently. We wouldn't have been able to handle TWO of us sick at once anyway, so this is how it had to play out, I suppose.
The one bright spot I hold onto here is the dime I found on the floor of the ER room I'd been in ALL DAY where there was no dime on the floor. And when the gal was wheeling me back into the room from the CT scan, there it was. I kicked it across the floor to Chuck and he said, "what's that?" I said, "it's a dime from dad, telling me everything will be alright." He was speechless. Dad used to send me dimes all the time after he died in 2015, but stopped the past few years. I have a whole piggy bank full of them.
We can use all the prayers we can get right now, friends. I believe in prayers, in miracles and in signs from our deceased loved ones that they are with us in tough times. If you do too, please send up some prayers for Chuck and I right now.
Many thanks.
Boo on those dang steroids.
I pray that God gives you some sign of hope to end this week!
Through this ordeal, you have really found out what you are made of, haven’t you?
Years ago. I watched a television special on the Bernie Madoff Ponzi scheme. Several people were interviewed.
For me, one person in particular stood out in the show. He was a psychiatrist, was married and they had children.
He looked forward to waking up early, enjoying his coffee in solitude and reading the newspaper. Then his wife woke up and had her coffee. She worked in his office. They rode together to the office on a daily basis.
Anyway, their comfortable routine was abruptly disrupted by what happened after they invested with Bernie Madoff.
One morning, he sat down with his coffee, opened the newspaper and saw the headlines about Madoff.
They had invested lots of money with Madoff. When his wife joined him at the kitchen table he said to her, “Brace yourself, today is the day that we find out what we are truly made of.”
It’s tough, because no one is ever truly prepared for catastrophe in their lives.
Your situation is even worse than people who lose their life savings. You have had a different kind of crisis. One where your actual life is involved. I can’t imagine how difficult this has been for you.
Wishing for all of this to be behind you, so you can lead a normal life again.
We all love you, Lea!
My leg is sore and very bruised from where I fell out of bed. The skin is torn too. It'll be fine though, no big deal in the scheme of things.
I made an appointment for next Thurs for the IVIG and Aug 18th for my 3 month PET scan.
😊 Thanks for the chuckle! I love doing genealogy but I have no Brazilian heritage! LOL 😆 Predominantly British! Not Brazilian.
Sending a bazillion hugs your way today!
Please hear our prayer and have mercy on your daughter.
Amen.
You’re right not to push yourself. If you’re that dizzy, it’s impossible to do anything.
You have endured so much. I’m so sorry 😢.
Ccxmoody, amen to your prayer.
Lord,
Our friend is weary. Out of gas. Fed up. Desperate.
We beg you to come to her aid.
Intervene, please.
We’re asking for peace to reign in her brain. This cure has almost taken every bit of her ability to participate in her life.
Have mercy, Lord. On Lea, her husband, her children and grandchildren. They’re all suffering.
We’ll give you all the glory.
In the name of Jesus, amen.
Hope all is well!
🩷