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Lea, I'm so very happy for you. Hope you're sleeping very well tonight, all wrapped up in a blanket of love.

Chuck is understandably burned out. This whole ordeal probably is the hardest thing for him, I bet it's harder than his own transplant journey last year. But you both have gotten stronger, and your marriage is stronger too by enduring the hardship together.

We all pray for you, Lea, but I think many of us forget about Chuck. I will include him and pray for strength and patience for him, and complete healing for you.
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I woke up to this wonderful news. I’m so happy for you!!!!!
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Yippeeeeeeee! 🎉🎉🎉🎉

Happy dancing, here! 💃🏻💃🏻💃🏻💃🏻

Thank You, Lord! 🙌🏻🙌🏻🙌🏻🙌🏻🙌🏻
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I'm very glad to hear this news, as are so many others here! Even though I don't know you personally, it feels as though this news is coming from a dear family member or friend. I know you are still facing physical challenges, but at least your mind can be at some peace now. You can focus your energies on these challenges, but also hopefully can move toward some more fun and relaxation. I'm sure Chuck feels a load off now, even if he still has to help you more than either of you would like.
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Thank you all for the wonderful words about my good PET scan results!

PB, yes, I think people tend to forget about the exhausted caregiver while focusing only on the patient. God bless all caregivers everywhere, it's the toughest job out there. And, for us, it's been so incredibly RELENTLESS the past few months esp since the incapacitating dizziness set in, that there's been no reprieve. Thank God

Fawnby, I burrowed into my most comfortable nest last night and hid out there when the stepfamily showed up, conveniently, at dinner time 630ish, w/o dinner of course. They must have forgotten to bring in those grocery bags..snicker. Which drove Chuck out to buy pizzas at Papa Murphy's to burn in the oven for them. "Funny thing" too......SD made plans with my most loved DIL to cook clam chowder for dinner right before her dh decided it was time to leave and come here, so they took off leaving HER high and dry! Like I said, cant make this stuff up. But Chuck got to visit w his DD and 2 grandsons for 3+hrs. and he was happy. I did let SD come into my bedroom for a bit so we got to visit a little. I don't have animosity towards her, just little tolerance for her lack of respect for our time and issues in life.

NHWM, ty. It took me a long time to learn how to put "politeness " aside and speak my truth. I think women especially feel the need to put our feelings and needs aside to accommodate others.....at great personal expense, oftentimes. Then we wind up stuffing our emotions back in unhealthy ways, as I did for years with booze, cigarettes, etc. Once addictive substances are given up, that's when other means to handle things and cope must be found or else we go back. It's no easy road, any of this, but I feel like when we speak out truth with love (and less screeching 😂), we're "heard" more clearly and it's harder to argue. Although Chuck will always play his I'm Just A Big POS Card bc it's what he DOES 😑
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Lea,

It took me longer than it should have to speak my truth too. It’s hard.

Some say that pain is the touchstone of spiritual growth. Maybe so, but it is exhausting to learn lessons through experiencing pain.

I can understand that it is unnerving that Chuck plays his, “I am just a big POS.” card. I bet most wives can attest to one thing or another about their husbands that is annoying.

In all fairness, all of us have our shortcomings. I know that I have mine. Certainly, my husband has his. That’s why our marriage vows includes “better or worse!” As long as we have more good days overall, we are going okay. Perfection is overrated.

I hope that you are proud of yourself for overcoming obstacles that you fell into due to the pain that was in your life. Some people are never able to find their way out of their darkest moments. You found your way out and set a beautiful example for others to follow.

I can’t wait for there to be better days ahead. These past few years have been exhausting for you and Chuck. My biggest wish for you is to heal and be able to thoroughly enjoy your lives again.

What is the latest update about your precious grandson? I love hearing about him.
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Imo, what's more overrated than anything is the "for better or worse" marriage vows we hear repeated all the time. Whos thinking of such things in heated moments? When and if the "worse" outweighs the "better", then divorce is discussed. In the meantime, it's figuring out the day-to-day struggles to get through, right? 😁 If I recall, both of our mothers were the Perfection Queens so DEFINITELY thats not a trait to strive for 🙄

My grandson was 2 in March, shares the same bday as his dad! He's talking up a storm now and loves going to the little lake beach we have here locally. He's got big front Chiclet teeth and a powerfully heart melting smile when he flashes them....lol. It saddens me I can't babysit him, with being so dizzy, etc. I do get to visit though, and again on Sunday when both my kids will be coming over for Mothers Day. We have cause to celebrate this year, more than ever.

What's on the agenda for Sunday for you NHWM, and everyone?
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Lea.

I agree that if the worse outweighs the better in a marriage, it is time for marriage counseling and if that doesn’t work it’s time to end the marriage!

I bet a man wrote that part of the vows! LOL 😆 Who did write the first wedding vows?

Oh yes, my mom was definitely a perfectionist! It drove me crazy at times. I had to learn how to ignore it.

Your grandson sounds so precious! If I am ever blessed with grandchildren I am going to love them to pieces.

Two years old is an adorable age. Some say terrible twos and others say terrific twos! Hahaha What does he call you and Chuck?

I get such a kick out of hearing what grandchildren call their grandparents. I called mine, “grandma and grandpa” but that seems to have gone by the wayside.

My friend told her daughter that she wanted the children to call her “Goddess.” Needless to say that didn’t fly very well with her daughter! LOL 😆

I asked my friend, “Where did you come up with that name?” She said, “I saw it in a movie and I like it!! She told her daughter that she had “Goddess” embroidered on pillows and everything. Her daughter said, “Mom, I don’t care. “My child is not going to call you Goddess!”

We always go out Saturday evening for Mother’s Day to avoid the crowds on Sunday.

You certainly do have so much to celebrate this year! Have a very happy Mother’s Day!
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Checking in here Friday, pm.

I’m glad you’ll be able to see your grandson, LL! I bet he is just sooo precious!

Mine and my daughter and her hubby will come over after church on Sunday. She said that she will take care of lunch. 😊

Mine calls me DeeDee, NHWM. I wanted to be called Granny (I just loved it when QE2’s grandchildren called that.), but he just couldn’t say it, and would run in the house, yelling for DeeDeeeeee! So, it stuck, and I now love it! 💙 👵🏻
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I'm Nonna. My ex is Badie (the name grandson came up with). His wife is Machie.
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My grandson isn't calling either of us anything quite yet...just giving a toothy grin when he sees us. Grandma and grandpa are the choices, though. In fact, the little dickens refuses to say mama ! 😂
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Oh, Lea

Your grandson has an independent streak! I love that. That will serve him well in life. He is going to say mama when he chooses to! 😊

cx, I love granny too. I told my girls that I liked granny if they ever have kids. They cracked up! They said that I didn’t look like a granny to them. They called my mom and dad, grandma and grandpa. Deedee is cute.

When my daughter brings her Siberian shepherd over she says, “Tell your grandma hello.” She likes Grandma, not granny.

Barb, I love Nonna!
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Apparently Queen Elizabeth II was 'Gary' to Prince Wills or Harry 😂
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Geeeez! I am going to fire my auto correct! Hahaha 🤣

Should read Siberian Husky, not Siberian Shepherd.
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Beatty,

That is funny!
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My friend’s name is Sandy and her grandchildren call her Grandy. I’ve always thought that was clever and creative.
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Fawnby,

Did she give herself that name or did her grandchildren think of it? Grandy is adorable!
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My grandmother was Hungarian, and when I was learning to talk I heard my mom addressing her mom as "Anya" and her dad as "Apa" which mean mother and father in Hungarian. I started calling my grandparents Anya and Apa, as did my brother and cousins (I was the oldest). People in my dad's family also started calling my grandmother Anya; I believe they initially might have thought it was her name, as Anya is a name in Russian and maybe other Slavic languages. If I were speaking Hungarian I should have called grandmother nagymama and grandfather nagyapa; "nagy" means grand or great.
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Good morning, Lea. I am still basking in the wonder and glory of God and His mercy and healing. It is so easy after a miracle for us to just move on to the next thing on our list of wants. Bless God for His patience with us.
 
"give thanks to him and praise his name. For the Lord is good and his love endures forever; his faithfulness continues through all generations" Psalm 100:4-5

Your lovely grandson has that sparkle!

I am called Nan or Nana by my grandchildren. My mother was always Bestemor (good mother in Norwegian) to her grandchildren. and Oldemor (old mother) to her great grands. I rather like those names but didn't go the Norwegian route.

Praying daily for your continued healing and for Chuck and all your family. You all have been through some horrendous times which are not quite over. Bless God for His mercy on you and all of us.
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What we read in Synagogue today:

Jeremiah 17:14
Heal me, Lord, and I will be healed; save me and I will be saved, for you are the one I praise.
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Hi all. Funny Mothers Day story. My son's wife sent over a huge box yesterday from Harry & David......a brunch gift box for Mothers Day with frozen items, quiche, ham, side dishes, scones, etc. The box was too big so all the smaller boxes rattled around inside, mashing them up. The cinnamon rolls were thawed out, the ham packet was destroyed and covering the rest of the boxes, there were no cooking instructions or even a card to say who the gift was from. I had to call H&D to find out who sent It! So the customer svc rep said he'd ship me a replacement box free of charge to arrive here next week! I got right on the horn to my DIL and she was ecstatic to hear that I'll be giving her whatever she wants from my box tomorrow so we'll both get to try all these great items! 😂🤣😁 She said she'll drop our grandson off in the living room and be pigging out in the kitchen lol.

Golden, I'm still basking in the relief of the moment of healing I've been given, not looking for more wants. As much as I'd love to be rid of this dizziness, today is a better day and for that I'm grateful.

DD spent 3 hrs reading our insurance policy yesterday which explains we DO NEED referrals for all out of network care, meaning my doc and nurse at Kaiser are misinformed. Shocking, not. DD arranged a call with the plan advisor in my city for next week who sb able to clear things up AND advise my oncologist about HIS role in placing the required referrals. UC HEALTH wants to manage my IVIG treatments but Kaiser denied the request.....so I hope we can get this crap straightened out FINALLY. It's a shame when insurance is such a mess.

We did speak w the social worker from UC Health yesterday via video call but he wasn't much help. Except to advise us to change insurance companies at enrollment time. Meanwhile, when a friend's dh had cancer and they had a "great insurance company", she literally spent hours each day on the phone and filling out new long forms for EACH doc he saw and EACH test that was ordered. It was a full time job. It's all a racket, imo, so I'd rather work THIS MESS out than start a new mess.
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Lea,

My family and I are going out to dinner this evening to celebrate Mother’s Day.

Thinking of you and hoping that tomorrow will be your very best Mother’s Day with your family.

Tomorrow we are joining our friends who celebrate Mother’s Day with a big crawfish boil.

The high temperature tomorrow is supposed to reach 90 degrees! Will be a hot day, for sure. I will wear summer attire and sip iced tea.

Have a wonderful Mother’s Day!
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lea -funny about the goody box. A very nice gift from dil.

re more wants I was reminding myself more than anyone else.

Your dd is such a blessing sorting things out for you for you. In my experience, insurance is in it for the bucks they make and certainly not to help the people who pay the premiums!

Have a great Mother's Day tomorrow. You've earned it!
Happy Mother's day to everyone!
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Needhelp, re Grandy: I think Sandy’s daughter thought of the nickname.
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To Lea and all the moms. HAPPY Mother's Day! Have a lovely, peace-filled day.
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Happy Mothers Day to all of you!

LL, a blessing to share your journey!
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Happy Mother's Day to All!

I've been feeling BETTER the past 2 days and actually took a shower last night where I wasn't half dead afterward! Bonus! Lol 😂🤣 Idk if the IVIG is kicking in or the 3 month mark is approaching, and I don't care, just PLEASE HAVE THIS DIZZINESS LEAVE.

My kids are on their way over so I'll be back later to post.

Have a great day ladies😁
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Happy Mother's Day Lea!

And happiness to all who are 'Mothers', and all who have a Mother!
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Lea: Praise God that you were able to shower without being wiped out. Happy Mother's Day!
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Good morning, Lea. You are a walking wonder! So happy you had a shower and weren't exhausted. So happy you are feeling better.

Thinking today about big pharma and all the negatives we often say and hear about it. But - and that's a big but - big pharma has kicked a&& with your cancer. It really has, and it has supported Chuck's liver transplant. You both are waking wonders!!!

I wonder if there are any shower products with glitter in them. Then you could truly shower and shine!🚿🎇
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