I'm new here. Been lurking for a few days and signed up because it's me who is declining due to a rare condition. I'm all alone isolated in a motel that rents to long-term renters. I'm ready to go home to be with God. I'm 52. I know that's considered young but this has been drag on for far too long and I feel 150. Just need someone to talk to. I get nothing but abused and derision from my family. No friends.
Thank you for any words of wisdom.
Tomorrow is a new day, and a new beginning, and a new chance to make changes. Baby steps. First, make the calls to those agencies mentioned by JoAnn, then take it from there.
Office of Aging would be another suggestion.
Thank you for your reply. I like your username.
When I was first transferred from hospital to AL I weighed 78 lbs and was weak & my muscles had contracted and atrophied. So I was in a wheelchair for a little while.
I was on my deathbed in October of 2019 but my former friend threw me under the bus after telling me how to exit life on my own terms. I ended up in hospital where I was brought back to this misery. I am isolated, alone, see nobody at all all day & night. In pain and unbearable suffering. The condition I have causes loss of moisture producing glands. No saliva, tears, sweat. It's destroyed my teeth that I took impeccable care of and it's just intolerable.
Right now I'm very scared of living and wish to be home with God. This has gone on far too long.
Thank you for listening. It helps to get things out & off my chest.
It's not a very clean motel. They never clean my room and I'm not able to. It's quite lonely and the disease I have is so incredibly cruel.
Just trying to get over the anger of being forced to live past my time of dying with dignity and on my own terms before it got this severe.
Thank you so much for the warm welcome to the forum.
Please tell us your story and why are you alone and scared. Perhaps, we can help in some way. Even if we can't, it still feels good to be heard and understood.
I am sorry that your family is not bring supportive. Hopefully you can find some support here.
Our youngest daughter lived in an extended stay motel for a while. Are you finding it some what comfortable?