She has dominated her childrens' lives with little concern for anyones' feeling but her own. She is now in a wonderful assisted living and her dementia (I think) has illuminated her personality into a person who I can no longer bear to be around. She has again managed to alienate everyone around her with her insults and insensitivity. She is nasty and uncooperative with the aids (who are wonderful) And complains, complains, complains about everyone, everything and blames my sister and myself for the air she breathes. I am sick of her and I don't want to visit her anymore and don't feel that my adult children need to be manipulated like I was and be around her negative attitude anymore. I hate feeling obligated to have her at my house as I have every holiday of our lives and force my children to "tolerate" her for my sake. The guilt is unbearable but I feel that now being 60 years old I would like to feel that this person does not dominate my whole life. I would like to have a happy holiday for a change and have my children WANT to come home (without Grandma always there)
There has never been any pleasing her before and now she sends me into bouts of depression that I have a hard time shaking. Am I alone? I feel like a selfish person but I don't like her now and never did before. The guilt is killing me.
I believe in the life of the world to come, but I also believe in not wasting this one! My Jesus cared about the tears and heartaches, even the ones He was going to heal and make right. We did what we could to make those last years, months, and days fill up with good experiences and good memories, even though there was not that much we could do, and it became less and less. Just for background, we Catholics have a doctrine of Purgatory that suggests there is a chance to get cleaned up a little (or maybe a lot) before being ready for the life of Heaven...not all of us can grow enough from what we go through inthis life to get all that "housework" done. Recently I have had more of a sense that my mom has made some progress there, just a little more peace of a deeper kind that is letting go of past hurts, hopefully on both sides.
Here's hoping we all live a life that leaves us and our loved ones at peace at the end, not a ton of regrets for all involved.
The notice board at the foot of her bed is full of pictures - the huge house she shared with my late father, them on vacation, cruises, Florida, her dogs, my old dog who was with us when I cared for her, my father in navy uniform before they married - memories. She feels she'll pass very soon and so do I.
Since changing my phone number and backing away I've not felt well, light headed and headachy, anxious, no energy, just staying home. Reflecting last evening I just found it so sad. She spent her life trying to be #1+, acquiring possessions, bigger and better, never lifting a finger to help anyone, not even her own parents, fighting with everyone for supremacy, including my father who she treated like dirt, yet she was never really happy with anything.
What a waste of a life. I came to this country with 2 suitcases, $100 and a roof over my head for a week and spent my life working my butt off. Now retired I plan to do some volunteer work and get out and about. I will not waste whatever time I may have left.
Mom saw a kidney specialist last week and her function is down to 25%. More tests are scheduled. This is due to refusing to eat right, ignoring her diabetes, and having high blood pressure for decades. She's on 19 meds right now, and expected the kidney doc to give her more. She will not comply with insulin, taking her 19 pills, checking her blood sugar, or not eating so much dairy & dark pop by the 55 gallon drum. The phosphorus in it is really bad for someone in her shape.
Ultimately, she is so stubborn and belligerent that she won't follow any instructions or rules, and she'll end up on dialysis when her function drops to 10%. I sure hope they can bring it to her. I can't and won't quit my job or use up all my vacation time for this. My time off is for my little family to use on our family things. Not doing something totally hopeless for someone who did not have to be in this shape.
BUT, I learned something interesting. When she was little, before starting school (between 1940-44ish), she had a really bad kidney infection (Bright's Disease, which is a lot like "Dropsy" in that it means almost nothing.) She was bedridden for a long time and had to be carried around. The neighbor lady brought her cookies all the time. She says this went on over a year, but who knows. What I did figure out is that it went on long enough to teach her that you have to be sickly and needy to get attention and love. She's carried this on ever since and gets pissy when people aren't paying enough attention to her because of her many conditions. Sad. The world doesn't work that way anymore. Nobody goes out visiting to sit with the sick and shut in like they did in the 40s. The world has changed a lot since then. Patients are supposed to be really involved in their care and own a lot of personal responsibility for their condition. Mom hates that. She has never really wanted to be well. She's got her wish and it's only down hill from here.
She also feels no control whatsoever over her feelings. Emotions are like random tidal waves to her and are somebody else's job to manage. So there we have it. The roots of a lot of really negative behaviors that have only gotten worse over time and won't change. She keeps saying the doctor has told her to stay calm and stop getting so upset over little things, but she doesn't think she can. Her feelings are a roller coaster she's just riding. All kinds of things really upset her, to the point of tears and hyperventilating. Seeing a sad dog on TV, the snowplow going by, or her socks being on backwards. Or finding out her 72 year old sister is in rehab care for a stroke. It could be anything.
I too keep my phone off overnight, since she has a habit of calling me at 10 p.m. to rant about whatever isn't making her happy. Mainly that the groceries filling up her fridge aren't the thing she's craving at the moment, which obviously means she's out of food and I have to go shopping. (Nope! Not this time. I went to a food & wine expo with my hubs today.) Nobody's called to say she died yet, so I assume she's just fine even though I didn't overstock her fridge with food that will most assuredly go bad anyway. Once it's bought, she stops craving whatever it is. It's like magic.
the trails, I see eagles, deer, bobcats. I love taking pictures and sitting by the water. Really is relaxing till it's time to leave. I really enjoy this website too. I have learned a lot.
Thanks everyone! :)
I was curious if you live in CA as I have the same across the
street? All this beauty, wildlife and fresh air helps!
HI Lynne, I hope your phone boundaries work out well. I suspect I will be in for the same challenge at some point in the future. Aren't nursing homes to some degree supposed to be able to handle things without calling someone all the time?
lynne - visiting is a nightmare for me too. I talked to the social worker and the meds have not made any difference so far, so I doubt I will see her. It is too hard. Once the ALF called in the middle of the night when mother went to hospital. As usual there was nothing wrong with her. I told them to call me in the morning after that because there was nothing I could do till then, anyway. Hope your storm isn't too bad. I was born in Ontario and in your are there could be some bad ones.
It's almost 5 p.m. and I'm about to feed my critturs and me. The phone just rang and I let the machine pick it up but there was no message left - likely someone selling something. The NH takes wonderful care of her but they call me for any little thing (policy), sometimes multiple times, which makes me crazy.
Going forward my phone comes off the hook at 5 p.m. and stays off until I get up in the morning. I'm no doctor, and if she falls, injures herself and is carted off to hospital I'll deal with that tomorrow.
We have deer, wild turkey, bunnies and frogs/toads in the pond. Come good weather I sit on the deck in the evening and drink in nature and peace until the light fades. Nature feeds my soul and will help me heal.
Once I googled the phrase "Leave me alone", as I felt that cry in my heart. It led me articles on dysfunctional, narcissistic, manipulative parents and that that is a common need amongst their children. A light bulb went on in my head.
I haven't been able to sort stuff much the last few months so piles have accumulated. Some years ago I read of children under stress doing not well in school because stress changes brain chemicals. I know that has been happening to me and it affects how I function. Sorting is not something that comes easily to me anyway. Started doing a bit more today. Must be recovering a bit. (((((((hugs)))))) to all do good things for yourself.
Met with the NH admin today and we've decided on fibs. If my mother tries to call she'll get "no longer in service" and staff will tell her my phone is out of order. That buys me a peaceful weekend. Next time I visit (bearing the usual chocolates, cookies, apple juice and bottled water) and she asks about it I'm going to say I rarely use it so I'm not going to bother and will just use my cell phone but there's no point in her having the number because I only turn it on when I want to call someone.
Of course I'll still visit, get her shopping and keep her affairs in order - she just can't get at me any more. Yay!!