She has dominated her childrens' lives with little concern for anyones' feeling but her own. She is now in a wonderful assisted living and her dementia (I think) has illuminated her personality into a person who I can no longer bear to be around. She has again managed to alienate everyone around her with her insults and insensitivity. She is nasty and uncooperative with the aids (who are wonderful) And complains, complains, complains about everyone, everything and blames my sister and myself for the air she breathes. I am sick of her and I don't want to visit her anymore and don't feel that my adult children need to be manipulated like I was and be around her negative attitude anymore. I hate feeling obligated to have her at my house as I have every holiday of our lives and force my children to "tolerate" her for my sake. The guilt is unbearable but I feel that now being 60 years old I would like to feel that this person does not dominate my whole life. I would like to have a happy holiday for a change and have my children WANT to come home (without Grandma always there)
There has never been any pleasing her before and now she sends me into bouts of depression that I have a hard time shaking. Am I alone? I feel like a selfish person but I don't like her now and never did before. The guilt is killing me.
Now mom is so aphasic from Alzheimers she can barely finish a sentence and has become clingy and needy.
Not a scary bully anymore.
How did she not alienate you?
A person who has lived like your mom has all of her life is not going to change late in light. They are who they are and that is very sad.
To top the cake we now have my father GreedSer too; mean viscious and won´t give us a penny for his expenses, he also HATES me & even accuses me of having contributed to my youngest sister´s death (she had ca spread to liver)...he seems to be demented, but has pety normal behaviour when strangers are around...I want out, but yes, the killer guilt doesn´t just vanish! We do, however, have to stand up for our rights; I´m 58 (abused since childhood), and at this age one fooot is alreading entering old age; if these abusers last 5 more years, we´re done! We have a life to live! Neither of my parents ever had to care for their elders; it must skip a generation! Hugs to all
There are studies from 2009 that show the typical caregiver is female, unpaid, near 50, and has 20+ years of caregiving without pay ahead. The financial sacrifice is in the billions of dollars. Not only is it a social well being matter, a matter of conscience, but a huge economic problem for everyone concerned.
With typical being near 50, that means there are a lot of people well beyond that age doing unpaid caregiving, as well as below that age. People in their prime earning years who are not earning, not saving, and in no way prepared for their own old age.
Think also about the training factor. How many home careproviders have had any training whatsoever? Safety training? Medical training? Personal attendant training? Mandatory precaution training? My estimate is very few have. What risk does that put the caregiver and receiver at for contamination, illness, or injury?
I found on my journey through this that if you don't know what to do, it's very difficult to find out. I learned the most from this site and people on it. Who looks out for the home care providers who don't have the education, access, or ability to go do their own research?
My theory is that there are an awful lot of elders out there who are living in substandard conditions with an unprepared care provider. Think about the potential for abuse in both directions. Who will know if the elder never goes out to see a doctor or has anyone come into the house for care work? This is not a good situation for anyone.
Those may be considerations for other purposes. Determining treatment needs, like PT, OT, in-home help, care plans. But Medicaid doesn't do that assessment. Maybe somebody told you it was for Medicaid just to avoid the complicated explanation.
YOU need to STOP paying. You are only hurting yourself. It sounds like your mom needs to be in a dementia care facility, not a retirement home. It sounds like this is too much for you.
There is assistance to get her placed in care. The facility business office and the social worker are there to help. Next time she goes into the hospital, don't bring her home. You don't have to. There is no law in the land that requires you to do in-home care, especially when it's emotionally and physically too much. The hospital will find a place that can take her, and I strongly suggest you let them.
Your mother's funds pay for her care, and when she is out of funds and assets, Medicaid kicks in. I assume she also gets social security pay and Medicare health/drug coverage. Medicaid will pay for long term care for the indigent.
You have options. You have to take control though and make it happen.
Minimally, control your own TV. Maybe her contact with the news & talk-TV ought to be eliminated.
It sounds like your mom has dementia and needs to be in an environment structured for dementia patients. Get your house back again and enjoy life. You only get this one.
Cannot pay it and pay her medical, pharmacy and doctor bills. Not to mention all her living expenses. Having her living with me is the worse mistake I have ever made.Nothing pleases her everything I do is negative. She sits and sleeps most of the day and watches horrible races news!! She dwells on anything that is bad and seems to enjoy it. I stay away from her as much as possible! It is like dealing with a nine year old!!!
My sister and I have had enough, I went to the nursing home today and told her that myself and my sister (who lives 800 miles away in another state) will no longer take her abuse, we are done. We will not be seeing her anymore from this day forward. I felt SOOO MUCH BETTER to get that load off of my shoulders and now feel like I can continue my life with my husband and adult children without "mom" hanging over my head and worrying about what she is going to do or say next to hurt me further. My real father died in 2000, mom remarried in 2004 to man we knew. He was ok at first, but he is also causing problems within our family so we have disowned him as well, due to some of the stunts he has pulled since mom went into the nursing home. Distance yourself from the pain and hurt coming from your mother...you will feel much better about yourself.
He is still allowed to speak to them on the phone. I cannot talk to her as she becomes so verbally abusive. It seems the older she has become her bitterness has grown. She is breaking my heart now and feeling like I should stay away. Do I let her once again get her own way or move and hope she will accept that I want to be close to my dad. Thank you for any suggestions
She is ungrateful, she is disagreeable, she is selfish, self-centered and uncompassionate. She has no friends and no interests. She has pretty much been a child most of her life.
Do not feel Guilt, she is being taken care of. The full circle has come around, so now she is where she should be and it is Karma. I had to go over this with myself. People who are unable to show warmth, respect, gratitude, love, compassion, etc toward others do not deserve those feelings back. WHY should they get anything back, because they exist??? And how does it benefit you to give someone love when they kick you in the face each time you do? When people out there continue to say, "oh she is old, she has dementia, she still deserves care, etc.... they are asking you to accept abuse. People who abuse continue to abuse if they are allowed to do it. It will not end. WE tell children not to accept abuse from anyone. Why do we now tell caregivers to accept abuse from their elder parents??
My husband and I stopped it after a year and half. My mother got to the point that she was saving up her poop and deliberately going in her pants ever 3 days, so that she could watch me clean her up and laugh at me while I was doing it. She started collecting knifes from drawers and hiding them and sneaking up on us while sleeping holding the knife. She began fishing garbage out of the garbage can and putting it back in the refrigerator. We experienced so many bizarre behaviors that were both dementia related and mean-spirited that we put an end to it, by sending her to a geriatric center and then on to assisted living. Time to end the madness when it is dangerous to your family even if it is mostly mental. It still does great harm.
There are some really good things on setting boundaries in this type situation. The main thing is to recognize that you are worth it, and that what you need to do matters. It can be so easy to look at the other person and what they need to do, but in situations like this one it is better to look at ourselves. We deserve to be healthy and happy and not pulled down into the pit with someone who needs to help herself -- something she may or may not be able to do. You may find you love her more if you're not being pulled down by her.
I am so glad that things are different for you. I don't know if she drank a lot when you were young, but I know it wasn't easy for you if she did. You may have had a lifetime of taking care of a drinking mother. As adults, we can be torn. It is hard to watch someone we care about hit bottom, but many times if we prop them up, they just continue the self destruction. I wish I had some solution, but I watched my brother go down the same path to his death. There was nothing anyone could do, because Jack Daniels is the only relationship he really cared enough about. He caused a lot of hardship along the way. The only thing we can do is step back and not get caught in it.