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Hi all - emerging from the depths. Sorry to hear that Ray is not doing so well, Lisa. I didn't see the nephew listening to the singing valentine card -can you post it to my wall? Glad you can enjoy your coffee without insults.

Kimbee - glad you dropped by, but sorry your mum is not doing so well.Look after you (((((((hugs))))

Jeanne - hope you are getting some good ideas about sleep, Insomnia is the pits. I am with everyone on the posts - yours are fine. Maybe a few people are suffering from the winter blahs. Hope you are feeling better.((((((((((hugs)))))))))

cat - you seem to be hanging on there...good!

austn - good to see you emerging from the blues

cmag -hi -always nice to see you posting here

marcia - can you get some help from social services, or the local Agency on Aging. Could your doctor help as he/ she will recognize that caring for your husband is too much for you/ Lisa (survivor2) called in social services and told her story.

vstefans - good advice, as always.

hi beanie - hope you enjoyed the Teepa Snow session

My friend had her surgery yesterday and they took two lymph nodes, both of which were clear, so it looks like the cancer has not metastasized. She was resting and comfortable last night. I am relieved. Thanks to anyone who prayed. I am finally shaking the flu, or whatever I got around Christmas. They often seem to hang on for me. Then I got an allergy "hit" this morning - aaaargh!!! Hard to tell what is a cold, or the flu, or allergy sometimes, but this morning was allergies.

Part of what sent me into the pit was reading a quote from Aubrey De Grey - "the first human who will live up to 1,000 years is probably already alive now"
my first reaction was "Oh my Lord, that would be mother!" It is enough to send anyone into a downward spiral!!! LOL Then I started to think that I would just have to be the second person to live that long, though I am not sure I would want to. What a thought!!! They better find a cure for wrinkles and sags if people are going to live that long. Not bad now, but after 700 yrs I may trip over something. ;)

Tonight we are going to my son and dil's to watch the PBS version of Les Mis. I gave them the DVD. Should be a nice evening.

♥, hugs and prayers, and a few laughs :-D if you can find them. Joan
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Joan, welcome back from the depths. Sorry you ended up there. I've been offline for two days because someone dug a hole right over a major fiber-optics line that our DSL and telephone is connected too. I'm so that to have set up my phone to forward calls to my cell phone.
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Dear Lisa, Jeanne, Cat, Kimbee, Emjo, Austin, and all of you lovely people in this discussion group - I've been absent a while, probably mostly due to an absence of insomnia, due to various factors, but insomnia is back and offers this opportunity to catch up a bit. The first thing is: Happy New Year. This group of awesome women made such a difference for me last year in starting to deal with Mom's increasingly serious aging issues. Those are still around. but more importantly, so are you. Thank you for your time and energy and caring.
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Hello everyone! We all seem to be slowing down here , myself included. And I hate that. Anymore it seems I don't know whether to scratch my head or brush my butt! So much happening. DQ drama again. The nephew went to visit her and traded his debit card for hers. Looks the same so she didn't realize it till she tried to use it for pizza. She went down to sw office and asked her to help her call the bank to sort it out. Wasn't wearing her glasses so when sw gave them the card # they informed her it was his card. He had it a week. 1400.00. She's in nursing home rehab now, but before they released her from hops someone from the prosecutors office came to see her and had her sign the papers. They are goingbafter him, but hey, u can't get blood outta a turnip. The nursing home has agreed to help her fill out the papers to get medicade started. Don't think she' ll be leaving there. There is a space open for her in the nursing home there. They will do the paperwork with her. They have asked me to take medical poa. I declined. Of coursebher checks will go straight to the nursing home and she will be given 40.00 a month. I have so much running thru my mind. Will I visit her? I honestly don't know. Will I buy her the things she needs? Can I get past knowing if I was sitting at a curb homeless she would walk around me and leave me there? So many will i's. I'm certain she will not make this move a success. Her presence at chapel house has been a disaster. I went to her apartment today with Doug and cleaned the filth. It made me angry because she is capable of doing what we did. But a lifelong habit of living filthy prevailed. Gonna hit the sack early tonite. I'll be back tomorrow to tell everyone about my new hat and what happened in the elevator today at chapel house. And no not that ladies. Get your minds out of the gutter. Hahahaha. Love you all dearly! Lisa
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Oh my, Lisa, sorry about the DQ drama, but you sound much better equipped to handle it this time. Were you able to keep a straight face and be polite when you said "no" to being medical POA?

And whatever you decide to do, don't you dare feel guilty! (My stepdaughter told me that if I ever started feeling guilty after her dad died I should let her know and she'd come whop me long side the head. I'd make the same promise to you if it weren't so dang far to come to do it.)

A sudden urge to work in the kitchen has overcome me. I'm trying new recipes and cooking real food. I take that as a good sign I'm on the mend. I gave my son Pat (who lives with me) three cook books and asked him to pick out something that sounded good. He took them into his room. I figured he might open a book at random, wait a half an hour, and tell me that was what he wanted. But half an hour later he emerged with a list of 4 to 7 recipes from each book. I take that as a sign that he is on the mend, too. Coy's death was really very hard on him, too.

Last week's new recipes were for cholent and a fancy mac and cheese. Superb! I also tried a mushroom soup recipe that wasn't a keeper. Two out of three isn't bad. Tomorrow I'm trying a crockpot recipe for Thai chicken with peanut sauce.

My mother, 92 with dementia, is going to spend one weekend a month with me, to give my sister some respite. I'm a little nervous. I wasn't able to help my sisters much with her while I was taking care of Coy. She moved in with my sister Pat (yes, my son was named for her) five weeks ago and dear Pat is already going nuts but doing a great job. We all know what that is like, don't we?

Can't wait to hear about your new hat, Lisa.
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Survived2, you ROCK ON! Would have loved to see the face of the person you refused POA to. Priceless! No Guilt!

Curiosity: wondering how she lasted til now, still holding onto an active debit card...
gotta be kinda like my drunk uncle...we even called the PD to get them to catch him driving, yet, they refused to stop him! We even scrambled all his keys, to make it so he couldn't find the right one to drive with...still failed to stop him.
Yet, he had a great trick to take Gma's license from her earlier in her Alzheimers: he arranged with the DOL to help her fail the drivers test they cooked up for her...that way, the DOL was the "bad guy", not Uncle.

SO glad you are taking care of you, setting limits on her use of you!
It's really hard to do that, but once the process is practiced, it gets easier.
If you have kids, you are also role-modeling for them.
Priceless!

I still have too many moments of profound grief over loss of family relations I never really had. I simply cannot get sucked back into their behaviors anymore, no matter how much I love them--it's such a trap..
Dysfunctional families are messy business.
But I think, maybe, those of us who stop buying into it, and change completely, that maybe, next generations can learn better, do better.
Hopefully to stop repeatinng dysfunctional history.
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Everyone who goes on these adventures, are simply awesomely strong people.
It takes such strength and perseverence.
Caregivers, no matter how it appears--we are the ones who stepped into the breach. That takes remarkable courage.
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Jeanne, about 20 yrs ago my uncle passed, he was my most favorite and I was his caregiver for years. I was his brother's only girl and the baby. When my own dad died he stepped up to the plate so to speak and made sure I had everything I needed as we all know those High School years can put a drain on anyones wallet but he never complained and I loved him for it. I loved my dad as a child loves their parent but Wes was different I loved him as an adult. Anyway after he passed I was having a hard time as he was the last of my dad's family. I started cooking actually baking . My husband and children loved it but I didn't eat it. When it came out of the oven I went for a walk. I lost 30 pounds that winter. I got healthier and my family put on a few pounds but they were all active so it didn't hurt them. Isn't is amazing how cooking is comfort.
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((((lisa)))) You are doing well. Declined MPOA - I guess! Cleaning out her room is over and above as far as I am cocerned. NH sounds like a good place for the DQ. I am glad they are going after the nephew. He has it coming. Hope Ray and Mary are doing OK.
Kentucky Kate - nice to see you again and thanks for the kind words. Keep in touch.
jeanne - good for you for getting active in the kitchen, and that Pat is interested in trying new things. I think cooking is a good sign. I am sure you will do a stellar job with your mum once a month.
chimonger, I really identify with this "I simply cannot get sucked back into their behaviors anymore, no matter how much I love them--it's such a trap..
Dysfunctional families are messy business". Indeed they are! Hopefully the next generation will do better, though, as some forms of dysfunction are genetic, some will be carried in down the generations, unfortunately. I see it happening in my family.
diavalon - what a lovely story about your uncle. Nice to hear about some good guys for a change. I find cooking is comfort too, and I go for things that are nourishing, and tasty - things I can eat,
Need more prayers here. Gary went south, before going west on business to, among other things, see his son with the head injury as he has not picked up well after the operation before Christmas. Then, yesterday, I got a phone call from Gary's dad that it looks like their home is sold, so Gary had some things he has to get out of there, quickly, but the bad news is that his mum is in hospital with an infection in her heart - she had bypass surgery 6 years ago, is throwing up from the pills they are giving her, and can't even speak to her husband. She is 87 and dad is 89 - neither in great health. The move to the ALF, though necessary really should have been done a few years ago, as it has been too hard on mum. The poor man was in tears on the phone, which surprised me as I don't really know him, and I wish I could do something. But there really isn't anything I can do, and I am stuck up here. I told him he could call me to talk any time. It is about all I can do and pray.
♥, hugs and prayers for all. Joan
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You deserve a HUGE HUG! Your family is simply amazing for helping out with your mother. Has she been diagnosed with Dementia or Alzheimer's? Because she sounds a lot like my mother who moved in 3 months ago. She constantly loses things and accuses my children and I of stealing them. She has also displayed paranoia, like we are plotting against her. During the holidays she got in an argument with my husband and went in her room, called her sister and said she wasn't going to be at their Christmas party because she would be in jail. She said that he had called the police and she was going to jail! In my family, there were 3 children. My brother and sister both took drugs and both died from them. My sister was 17 when she passed away and my brother was 26. My mom started to say that I was the "bad" child and that they would never had treated her as badly as I treat her!!! That is simply crazy! Anyhow, now that 3 months has passed, the holidays are over, my kids are back in college, she has calmed down a lot. She knows we are trying our best, I no longer wake up each day dreading how the day is going to turn out. I've decided to control the situation and no longer let it control us! We are looking into an assisted living community. I know my mother doesn't want to be a burden and she doesn't want her independence to be taken away. But, she does need her 10 medications dispensed properly and she does need someone to cook for her. She will have other seniors to interact with anytime of day, have a full list of activities to chose from depending on her energy level, and best of all she is excited about the prospect of it. I hope that you can take charge and know that your mom is a sick women. Your husband is so sweet allowing her to move in. But, you don't want her to ruin your relationship or your family life. You are an awesome daughter and I respect you immensely! There is help out there. Maybe your mom needs to have a doctor give her a thorough exam and figure out what is going on with her. Until my mother had the brain mri, we didn't know she had suffered a series of mini strokes. And trust me, her behavior was really bizarre. It explained a lot. Take-care of yourself.
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Well Jeanne I put this story of my hat on Facebook with a picture. Wish I could send a pic here but here goes:

I took ray and Mary to the VA hospital for his chemo treatment. On the way to the cafeteria we stopped in a room where they sell military caps, medals, etc. Well I saw a hat I loved. It was pink with the breast cancer emblem on it with the words BELIEVE. I asked the price and thought nah, I can find one cheaper than that. So we ate breakfast and went upstairs for the four hours of chemo needed. We leave after for the elevators and ray took off down the steps. I moved to go with him and Mary said stop. Leave him be. We get downstairs and wait and I'm panicked thinking he's hurt himself, he's fallen down the steps. I'm headed for the doors to go look for him and there he came. He walked out those doors with the Hubert smile on his face waving the pink hat I fell in love with. Now some may think dam Lisa, it's just a hat. Wrong. It's love in it's purest form. What it took for him to get down those steps just to surprise me. I still get a lump. Made me cry. In the car he said girl your gonna have to dry those tears up cause I'm too dam pooped to get us home. So there is the story of my new hat
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* out those doors with the Hugest smile!! :)
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Ah, thanks for sharing! Excellent! I'm so glad you have people in your life who treat you like the gem you are!
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Ah Lisa that story just made my day. I can just see a smile that big. They Love You and best of all you Love them Back.
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Getting out now is the best thing. Listen to what could happen (happened to me). My 90-year-old Mom knew how to dial 911 and report all the things she imagined to the police. I was able to keep the police from arresting her caregivers when she had them. When I took over the care, I realized after a long hellatious time that the same thing could happen to me, and there would be nobody to speak for me. Indeed, the police arrived to DEAL WITH ME, and it took a while to convince them that I was caring for Mom appropriately, and allow them to see for themselves that Mom was not "too tightly wrapped" as my Dad used to say about some people. Under no circumstances are you to ever feel that you failed you Mother. Promise.
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ShadowChild1....I believe you are right...COPD meds do cause altered behavior. I took care of a Pt whose behavior would change and she'd become extremely mean and overbearing (eventually I had to stop working with her because of it). "Mom" has a lot working against her...addicted to pain meds plus COPD meds are likely causing altered behavior. I'm appreciating this thread because it's addressing a lot of issues that even paid caregivers need answers to. There has been great support and advice in the posts.
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Lisa: You are a love. Glad you got the hat and know that it came from a special place.
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Oh my, this is a story that is somewhat familiar to me and I can tell you that you will never make her happy no matter what you do. This situation can destroy YOUR family. It is not fair to your family at all and, family comes first (your immediate family that is). I truly understand what you are talking about. I have been there and really I am still caring for my mother, however, she is now in an assisted living and I am slowly weaning myself from all of it.
You can only do so much. You mentioned that is your mother does a certain action then something else will happen....whatever your mother's actions, she will have to suffer the consequences...(taking into consideration safety of course), I have been in your situation and it doesn't matter what you do or how much you do, IT IS NEVER ENOUGH. The arguments over the pain meds and stuff, you probably don't have time for all of that. You probably want more than anything for her to just trust you and rightfully so since you are caring for her but from what I have learned they never get it. My opinion, I would look for her a medical facility or some place where she can be taken care of and you can get your life back. Just let her know that you love her and that is all you can do. However she responds, we have know control over. Good luck with your situation and just take one day at a time. Try not to project the future like I did, it will drive you nuts. Something good will come your way soon.
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I have a mean and hateful mother living me, too. She was also addicted to narcotic pain pills, and she would sneak extra ones even though I'd hide them. I kept going to the doctor trying to explain her behavior and thinking it was withdrawal symptoms between the doses. I also could see how she would act in front of others - nice and humorous - but not that way to me. I wrote letters to the new doctor I found for Mom, explaining everything. I thought they had fallen on deaf ears, until about a month ago, when I took Mom into see the doctor for (you guessed it) pain, and she fell apart, emotionally, right in front of the doctor. Then, all of the things aI had written in letters came out from the doctor's mouth and she got her into a geriatric psych hospital. During her 10 days, there, she is off the narcotic pain pills, and is more stable emotionally. She is still mean and hateful, however, so that part didn't change much. Lol. There is hope for getting someone off pain pills, believe it or not. I can't. I was so skeptical of it, but here she is with other medications for pain, but no narcotics. Mom has only lived her for 6 weeks and I am ready to pull out my hair. We are exploring all options, and in MS the pickins are slim, believe me. Good luck. It sounds like you have a good start!
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Ok KAW i have finally read and caught up.
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Survived2: I want to report that since reading and writing on the AgingCare forum, I have moved from guilt to anger to a quieter, more peaceful and stronger place, in such a short time -- a matter of weeks. My only advice to you now is to keep using the forum to express yourself, and read the diverse stories and advice from the participants, knowing that they are also in different placed on their paths. I feel so grateful for this forum for the help it has been to me.
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Hi to the couple of newbies to this thread, SusanJMT, Nancy and any others. If you read the thread through you will see that Lisa's mum left Lisa's home some time ago, and Lisa has put up strong boundaries to protect herself and her family. I think she would advise anyone in a similar situation to do the same. Good luck! Joan
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Hello everyone! Been a horribly busy 3 weeks for Doug and I. Received a call from hospital eg last visit and was told they would not release her to go home. She could no longer care for herself and needs a nursing home. Ok. Knew that was coming. So those sw's at the hospital got busy and found her one not far from the hospital. She has a social worker named Diane who I got off to a rocky start with. Once aunt rae set up her own little meeting with her they now better understand the situation, and no more pressure is being put on me to take guardianship or any type of poa. So Diane has become my rock thru this process. I have agreed to go to legal aid to set up the qit trust. Every medicaid form to be fille out is being handled by them.
For the last few weeks I've been going to chapel house going thru her things deciding what to take to nursing home and what will be given away. She's of course already accusing me of stealing her things and handing them out to the grandchildren. She's shown her ass several times to the staff because things she wants brought there isn't possible. But finally there's my new rock Diane who does her job. She's told me this is what she's trained for. This is her job. She will handle DQ, Doug and I do what we need to do. In front of me she has told mom how much she likes me. Mom just looked at her and said, and here I thought you were an intelligent woman. There's lots more drama, but I received a phone call yesterday from head nurse at nursing home. She fell. She has broken her femur and hip. She disobeyed the rules. Never take off your oxygen and always wait for the aid to transport her in a wheelchair if she wants to go to rec room or beauty shop. The hospital did their own xrays and confirmed the nursing home xrays but with a twist. She also has phnuemonia so they can't do the surgery yet. they were very candid about how dangerous this is for her. They are calling in her pulmonary specialist because they are certain she will need to be on a ventilator for surgery. And then after surgery will she be strong enough to be weened off. Lots of what ifs. Already know you guys are thinking hmmm, wonder how Lisa feeling bout all this. All of you know of my life with this woman. So just know I'm fine. It is what it is. I came home last night and was really trying to think of how I'll feel if she dies from this. There's just no emotion. I have a job to do. Doug aunt Rae and myself will do what needs to be done. Aunt Rae had one emotional moment last night thinking this just may be it. She may not pull through this. She explained hers are tears of regret that her sister lived her life in hate and anger and has missed out on so much. Then I apologized that I just couldn't feel anything. My tears were shed as a child and there just aren't any more to give that woman. She just hugged me and said never apologize to me again over your feelings. So we took aunt Rae to dinner and amused everyone around us when the bill came . Doug won. I'm tired friends. Been going non stop and falling into bed every evening exhausted. Now this. Can't believe I actually hit a comfort zone the last year then boom. Here we go again. It's all good. I've had to handle worse. Have a beautiful weekend my angels!!!!
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Lisa:

Thank you for bringing us up to date. I'm sorry about your mom, but I sure understand your feelings or lack of feelings in this situation. It's good to know that Diane stepped up and took control. Here's to Aunt Rae for setting her straight!!!!!

I'm holding you close to my heart, Lisa. I hope you can get some rest this weekend. Please give my love to Doug and Aunt Rae. I'm so glad you have Aunt Rae in your life.

Sending love and white light,

Cat
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Oh Lisa, I'm so glad you had a chance to build up some strength for this episode. At the beginning of this thread you didn't even know if you could manage removing DQ from your home, and now look at you! You've come a long way, lady. I am also very very sad that you need all this strength just to deal with your mother.

Thank you so much for taking the time to give us an update. Hugs to you and to Doug and to Aunt Rae.
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Dam. Sitting here in her hospital room. They've decided they can't wait any longer. Taking her at 10:30. All telling me the same thing. Very high risk. Will be on a ventilator . At this point they don't know what will happen after. He just told me she's as high risk as it gets. I told him she's too darn mean to let this get her. Had to call desk and make them take phone from her. Called me repeatedly bitching about "the service here" like it's a dam hotel. Called the nurse a bitch while on the phone with me. Dougs on his way here. Think I'll be here often today.
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Lisa~Hugs to you and your family! It will be a long day for you. I hope the surgery goes well and it sounds like your mom will have long recovery. Her high risk is scary and all that you have been through with her, yet being the wonderful person you are, there you are at the hospital. Even in the condition she is in, she is still being the same difficult person. Update as you can, we are all with you today and many hugs to you!!
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Thank you sharynmqrie. They thought her blood might be too thin so now they are finally coming for her. I left the room for a long time. I've decided if this is it, I will not allow her last words to me be vicious. Doug and aunt Rae are taking the brunt of her fear and anger. Just have to let them do this. I've made my grocery list. I've spoke to my boss about the possibilities. Trying to keep my mind busy. I've contacted every grandchild individually except the 2 crazy ass nephews. None will be coming. And that's ok. Their feelings are their own. God knows I understand. I've been to the chapel and had a nice conversation with god. Think I heard him say he's got my back. ;))) talk to you soon my friends
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Sending you peace, Lisa. Don't forget to breathe!!!!! God definitely has your back, your front and sides too. If your mom passes, at least she will be free of her mental sickness and torment. I will keep you all in my prayers.

Love, Cat
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She made it thru surgery. Can not get her off ventilator as of yet. They have moved her to icu. I stayed till she was settled. They plan on her sleeping and will try again at midnight. Going to try to get me some shuteye for a few hours, then I'll head back up when they try again. Before they took her to surgery she looked at me and said Lisa I don't think I'm meant to make it thru this. So I asked her are you scared to die. She told me not dying, but what it will be like. I sat there a couple of minutes. Then I got up and took her hand. I just said mom, I can only tell you what I believe. I believe when you leave this earth Johnny, Theresa, and patty will be here to help you cross over. I believe all the anger and hate that happened here will be left and you'll be welcomed with open arms. No judgement, no resentment. It's been 41 years since you've seen Johnny. So if you don't survive this, run to your children and love them. Just tell them hi for me. Well that seemed to help her some. I can do that much for her. I have it in me. Then she started with the remember when..... All memories of Theresa and her children. No memories remembered about me or mine. So I listened and smiled when appropriate. Aunt rae was silently crying and when they took her down we walked with her to the surgery doors. In the elevator she said Lisa I know I haven't....she didn't finish, just looked away. And I'm glad she didn't finish. So now they will try to take her off the vent around 2 or 3. I'm home and showered and gonna try to get a few hours sleep so I can be back when they try again. Lisa
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