Feel alone in our situation.
I have been unable to find other caregivers in the same situation as I am. Anoxic Brain injury. My daughter had what was finally called "Sudden Cardiac Death"... lack of oxygen after a heart attack left her with brain injury. This will be the 7th year come July. My husband and I have been caring for her in our home for 6 full years now. I gave up my job to caregive. It is frustrating not to find others like myself that care for their child. I am now 53 years old and my daughter is now 30. There is nothing out there for the young people.. I wonder why that is. Even "Life Care" facilities are all reared for the elderly. I have alot of fear. My daughter is very very healthy as am I and my husband.. but being able to determine what should become of my daughter if something should happen to my husband and myself is very unsettling. Just nowhere to turn for assistance.