Another Day With Charlie

4 Comments

Charlie's up.

I just heard the thump of his cane across the floor, followed by the closing of the bathroom door.

And so begins another day with Charlie.

How long I will continue to hear the announcement of his morning ministrations is anyone's guess. Sometimes, after an especially troublesome day, I find myself wondering how long I can go on like this. I realize with a shock, that I am almost looking forward to the morning when there are no longer those finite sounds. The ones that warn me another day of coping with the poor lost soul that is my husband has started.

Almost.

It began five years ago with a startling episode of confusion, followed by several days of weakness, lethargy and depression.

The diagnosis was a small stroke – one that did not affect his speech or ability to walk – but rather left him with moderate brain damage and the ensuing loss of short-term memory.

Several similar episodes have resulted in progressive dementia, bringing on all the frustrations that accompany the thief that has stolen the very essence of who he is.

No, he hasn't put his glasses in the refrigerator, or left the house barefooted on one of our frigid New Hampshire mornings. But he has gone out in the car for a ten-minute errand and found himself in unfamiliar territory, 35 miles from home.

Except for an occasional drive to get his hair cut at the administration building in our senior living complex, his driving days are over. Even then he gets lost getting from the car to the salon, or leaves by the wrong exit and then can't find his car; the salon knows now to call me when he leaves so I can anticipate his safe return.

He recognizes family when they show up for a visit but he no longer remembers his daughter's married name – she's been married twenty-five years - or where she lives.

His days are spent with a calendar on his lap, hanging on for dear life to anything that will ground him in time and place. Even with the calendar in front of him, he asks me a dozen times a day, what day it is, what time is his appointment.

Who is Dr. Park, and why does he have to see him?

It's just another day with Charlie.

The most difficult part of this man-child relationship I am coping with is cleaning up after one of his increasingly frequent bowel accidents.

The doctors have tried to address the problem, but none of their "solutions" have been effective. Charlie is overcome with embarrassment at this regressing to such a degrading place in life. On the other hand, his mind can't understand why he should resort to wearing Depends on days when he doesn't have a problem.

I feel like an insensitive, wicked old crone for insisting that they are a necessity.

Charlie now walks with a cane, his mobility impaired years ago by an aircraft accident that left him partially paralyzed. To walk from one end of our cottage to the other is all the walking he can do comfortably.

Yet he is insisting that we take a ten-day cruise to Alaska, with its accompanying, two-hour bus ride to the airport, eight or nine hour plane trip, and shore excursions including kayaking, rafting and a long sightseeing train ride.

I gently, but firmly, tell him that it just isn't possible. But I am fraught with guilt for depriving him of something that he would dearly love, and looks forward to with longing and anticipation. His mind hasn't reached the stage where I can let him think I have made the arrangements; he still has enough recall to catch me on that little act of deceit.

Even his long-term memory is becoming affected by the creeping dementia. He insists that he has visited countries where I know he never set foot, tells me he was shot down in Viet Nam – not so. Although he served in Viet Nam, his accident was during the cold war in England.

I never know what he is going to tell someone we come in contact with about his past life, his current health, or his family. I just try to silently let them know that he isn't quite mentally competent, and they should therefore understand that he is to be agreed with, not questioned.

So now you know why I hear, with anxiety, that thump of the cane announcing his awakening for the day. I dread the day that I can no longer cope and he has to go into long-term care (or short-term, depending on how long his valiant heart holds out) because I know he will not go willingly.

He says he is going to live to be ninety-four, the magic age when his mother finally gave up her fight. I don't doubt that he is right. I have told him he will have to go it alone for ten years because my "magic number" is eighty-four.

In the meantime we will struggle on, me with my gimpy knee, him with his gimpy mind and legs.

It's another day with Charlie.

After all – these are the golden years!

Marlis describes herself as a “Gramma who loves technology and has a lot to say.” She blogs about whatever catches her interest: food, books, family and more. For AgingCare.com, she writes about the issues facing the elderly and her experiences caring for her husband, Charlie, who suffers from dementia.

View full profile

You May Also Like

Free AgingCare Guides

Get the latest care advice and articles delivered to your inbox!

4 Comments

Hugs to you Marlis!!! I have 'A Day with Bob'. My Bob is healthy in body but has AD.
No physical problems. No drugs / meds.
Once he awakes...the day starts and not always good. One step at a time to get ready for the day. What goes on the toothbrush. Shaving, one step at a time. Dressing, one step at a time. I have to talk calmly and with a smile to make things go smoothly for him. Then breakfast, one step at a time. The days are long if we don't go anywhere, as he will shadow me all day. So much so that when I turn around to change directions or rooms I can bump into him. He can not take directions or do any project on his own any longer. It is all me... He walks the house round and round...pases the floor while I get ready for my day in the bathroom... sits and watches me while I do chores. Afternoons, around 4pm, he is ready to close up all the windows and shades. Especially this time of year when it is so nice, I am not ready to be closed in!
Golden Years.... no, I more agree with Starshine14 - Tarnished!!! We work, save and plan for our "Golden Years" then these things happen...no longer able to go to Alaska or other travels that we/they would mentally enjoy doing. Travel, planes, trains, cruse ships, day trips all much - much harder for the caregiver now! They will forget all that we did to make it happen and we are left exhausted and missing the enjoyment we seek as well.
One day at a time...that is all we can do. :-) Take a deep breath and RELEASE!
Your story made me remember my father, who died last year. Each morning I would hear the walker -- THUMP, step, step, step -- going down the hall. I had heard this sound for over two years. He always woke up at 7:00 in the morning. I often wished he would stay in bed just once. When I heard the sound, my day started. There was a paper to bring in, coffee to make, and a breakfast to plan. Sometimes I miss that sound, but I enjoy the extra me-time in the morning now. My mother doesn't wake up until much later.
As I read your article I felt as if you were writing about me and husband minus the walking cane. All I can say at this point is to ask God for patience, understanding and continued compassion as we struggle with each day.