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My mother periodically is convinced that the man that is with her (my dad) is not HER John. That HER John has left her. She gets very upset and crying. And, of course, it's upsetting to my dad as well as they have been married for 47 years. My mother raised me not to lie and I rarely do so. Today my dad called and asked me to lie to her and tell her that I had seen dad earlier and he was running errands and would be right back. I did. And when she wakes up from her nap, she will be fine again. I feel horrible lying to her, but if it calms her, is it okay? Or am I setting myself up for her distrust of me?

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Don't think of this as lying, think of it as entering into her world. In her world things are different. My grandmother lived far out in the country and had reverted her understanding of the world life as it was like when she was young. She had forgotten there were cars (she was blind) and so when I would visit she would ask which horse I'd ridden over, or, if I had my children with me would ask if I'd brought them in the wagon so they could sleep on the way home. I would answer appropriately - "I rode Blackie because she's my favorite" or "I have the wagon all set up with quilts for the ride home". We would chat about family and friends, living and dead, if they had just been to see her because in her world they'd visited just a few days ago. It comforted her. Nothing about making her part of the current world would have been worth her distress. Being part of her world was a blessing.
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MargaretMcKen Jul 2020
This is really very touching. I've just read it to my DH. Thank you so much for the story. Margaret
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Please don't think of these necessary untruths as lies. Your mother taught you not to lie because it's harmful to others, or a way to gain something. These fibs we tell our loved ones with dementia bring comfort, not harm. Anything we can do to relieve their agitation is a gift.
Gold luck to you all.
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Make your comments truthful and they will be easier for you. “I spoke to dad earlier. He will be home today.”
or “Dad will be right back”.
You are speaking to soothe and comfort her. Like a beautiful song or poem or lullaby. You are allowing her to envision a scenario that brings her peace. A lie is meant to deceive for your gain. It’s not your gain, it’s hers. Think of her as being blind. She is blind in a way. She can’t recognize him now but she can envision him in her heart with your assurance that he has not left her. That he is near by. Write some replies down so that they come easily to you. Or you can use the same one over and over as she will not mind. When you know you are bringing her comfort it will enable you to speak with love and not feel conflicted. That’s what she will trust, the love.
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Please don't apply YOUR rules of logic or 'morals' to a disease that your mother is suffering from. Otherwise, everybody loses. Use common sense and 'lie' to your mother as often as necessary to keep her as calm as humanly possible. To do anything else is what should make you feel 'horrible' or to make you question your morals. Chuck everything you know & have learned right out the window now and focus on learning all you can about Alzheimer's and dementia by reading and watching Teepa Snow videos. THAT is the best thing you can do for your dear mom.

Good luck!
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Oh my, you and your dad are in quite a fix. What is your goal? Telling the truth (what about Santa and the Easter Bunny?) or helping your mother cope with a life that is shutting down cognitively?
You probably were also taught not to speed. But if your mom was bleeding and in need of urgent care, would you drive over the speed limit? Of course you would --and should.
Don't you think your dad has also been dealing with goals vs. reality? Actuallly it is a very kind thing to help your mom sort out confusing situations. Give her a big hug when you tell her.
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Sometimes you have to. Mom is currently hospitalized. Yesterday I had her plumbing fixed (she ignored and refused to fix it), and I'm having the house cleaned tomorrow. Also her kitchen and bath painted. She had already picked colors and told me who she wanted to do it. The plumbing she will never notice. Nor the clean house. I am going to tell her I paid for the painting (with her money, which is not scarce). Hoping to squeak in a carpet cleaning too. If she were in her right mind she would not hesitate to do any of this. Lying when necessary to keep our loved ones calm and content is unavoidable. POA in this instance is a godsend!
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NOT A LIE, and not a time that will benefit your mother’s welfare or yours, to speak a “truth” that causes her discomfort.
Lucky you, that your dad has the wisdom to encourage you to do exactly what she needs. He must love her, and you, SO DEARLY.

Set aside how YOU FEEL if this causes you discomfort, but even better, allow yourself the comfort of knowing that she taught you well as a child, and that you are now able to free her from the anxiety that torments her.

In her dementia, she will react as her damaged perception of reality compels her to do. If at some point she appears to “mistrust? You, it will NOT be because of her past experiences with you, as you are now. Her tragic behavior Is very common to sufferers of dementia. Many of us have observed it in our own dear ones.

Please be good to yourself.
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"Lying" is a situation all caregivers to someone with AD must come to grips with. You can try to reason with her... it'll do no good. Your dad is right. Reality changes in some with AD, and your mom's reality is that John has left, so buy into it and suggest that he'll be back.

You say you rarely lie. Well, make this one of those rare occasions. It won't be the last time.
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You have never altered the truth to avoid hurting someone?

This is the same only you are altering the truth to help your mom.

You didn't see dad, but you spoke with him, so you know he is around and he is going to be there later, you just left out the fact that he is there now. What possible harm could come from helping to calm her and reassure her that she is safe and loved and her man hasn't left her?

This is so different than lying, it is hard for all of us at 1st. It does make us question our integrity, but you are not saying anything wrong or hurtful. Be gentle with everyone right now, including yourself, this is a daily learning and adjusting process.
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disgustedtoo Aug 2020
I like that analogy - kind of "bending the truth"! In this case, sure, saying "
I spoke to dad" and "He'll be here later", knowing full well he is there works! But, when the one in question is no longer with us, bending becomes a little trickier. It can be done. I have had to do it multiple times with my mother (queries about her mother and a younger sister, both gone long time!) You are correct also in that at first it is hard, but it does get a bit easier with some practice and quick thinking!

The one thing I can assure anyone is that your nose won't grow!!!
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I "fibbed" to a lady with vascular dementia (post stroke) when she asked about her dog.  Yes, she did have a dog.  He WAS adopted by a family who lives up the road from me.  I would see the dog outside periodically and I would honestly tell her that the dog looked happy, etc.  I saw no value in telling elder that her dog did have to be put to sleep a while back due to old age and many other problems.  Some might feel she has a right to know, but I do not feel it's kind or helpful to tell her.  When she asks, I simply say that I have not seen the dog in a while and I make it a joke that "I don't get out much" so how could I have seen him?  We both laugh and the conversation moves elsewhere.  If she really could think clearly, she would realize that there's almost zero possibility that the dog could even still be living, but she doesn't seem to get that fact so why tell her?  Let her think the dog is thriving/happy.
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disgustedtoo Aug 2020
Great example! It does work for people too. My mother has asked about her own mother and also a younger sister. I know her mother has been gone 40+ years. I don't know when that sister passed, but her mentioning that she's likely tied up with "that baby" tells me that's also about 40 years ago (my cousin had 2 kids, both with a form of MD - the youngest severely disabled, so her mother did spend a lot of time helping, esp as my cousin's health and abilities diminished, as she also was affected later in life with this. "That baby" would have been about 40 now.)
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