She requires a caregiver to go to washroom day and night! She used to be cheerful and enjoy all activities before 2 years ago! I wish she could become independent again as she used to be.
I am so sorry your wife has this problem. It must be very hard on both of you.
I hope you can get a firm diagnosis. While a 'label' seldom brings a cure, it names what beast you are dealing with. This can help planning. Eg when to consider a higher level of care.
If you are both in IL maybe its time for you both to be in Assisted Living. Those suffering from Parkinson's can decline fast or it takes years. Dementia usually goes hand and hand with Parkinsons. You really need to make plans now for your care in the future. Get all ur ducks in a row. Will, POA, and put your important papers together where the info can be found easily by family.
If you or your wife fall backward, it probably is Parkinsons. There are special walkers made for those who have Parkinsons.
So sorry you and your wife are facing the end of your good health at such young ages. If you need a place to vent you have found it. Many here have problems that must be managed and can’t be cured.
As more help is needed due to poor mobility or advancement of disease then it is sometimes necessary to go to where the help is as it gets very expensive to bring the help to you.
I know it is hard to stop living independent until it becomes obvious that all independence is gone due to the need for extra help.
I am sorry and wish for you and your wife to find the help you need in order to have more cheerful days enjoying activities together. It is hard to accept our limitations in life. They come all too soon.
Yed, I can't know what steps have been taken, but firstly you need a solid diagnosis. There are medications to be tried and etc. I know you wish she were as cheerful and as able as once she was, but sounds as though she is becoming more debilitated due to her illness.
Can you tell us what help you have in caring for your wife? Has she had any rehab or any PT help for balance? Do you have a support system of family around you?
Do you consider that you and your wife should be in a situation now where you have more caregiving support?
And your wife probably wishes you did not have the slew of health issues YOU have too!
Per your profile: About Me I am 82 , I am a diabetic for about 15 years and now i have developed Nerological problem, Nerologists in Stanford and in Sutter Health say I may have developed Parkisonisam try have put me on LEODOPA , Carbidopa !
Instead of wishing you could both be young and carefree again, perhaps try being grateful for the daily blessings you DO have which invites abundance into your lives.
We all wish our loved ones could go back to their cheerful independent selves, but seldom if ever does that happen. You will be best served now if you accept your new reality with your wife and make sure that she's getting the best and correct care out there. And make sure that you're educating yourself about whatever the doctors say she has, so you're better prepared for what ever lies ahead. And if her care gets to be too much for you, make sure you're either hiring some in home help or look into placing her in the appropriate facility, where she will receive the care she requires and you can get back to just being her loving husband and advocate. I wish you both well.
I hope you can get a firm diagnosis. While a 'label' seldom brings a cure, it names what beast you are dealing with. This can help planning. Eg when to consider a higher level of care.
If you or your wife fall backward, it probably is Parkinsons. There are special walkers made for those who have Parkinsons.
As more help is needed due to poor mobility or advancement of disease then it is sometimes necessary to go to where the help is as it gets very expensive to bring the help to you.
I know it is hard to stop living independent until it becomes obvious that all independence is gone due to the need for extra help.
I am sorry and wish for you and your wife to find the help you need in order to have more cheerful days enjoying activities together. It is hard to accept our limitations in life. They come all too soon.
Why do you have an actual diagnosis but she hasn't been able to get one?
There are medications to be tried and etc.
I know you wish she were as cheerful and as able as once she was, but sounds as though she is becoming more debilitated due to her illness.
Can you tell us what help you have in caring for your wife? Has she had any rehab or any PT help for balance? Do you have a support system of family around you?
Do you consider that you and your wife should be in a situation now where you have more caregiving support?
Per your profile:
About Me
I am 82 , I am a diabetic for about 15 years and now i have developed Nerological problem, Nerologists in Stanford and in Sutter Health say I may have developed Parkisonisam try have put me on LEODOPA , Carbidopa !
Instead of wishing you could both be young and carefree again, perhaps try being grateful for the daily blessings you DO have which invites abundance into your lives.
Good luck.
You will be best served now if you accept your new reality with your wife and make sure that she's getting the best and correct care out there.
And make sure that you're educating yourself about whatever the doctors say she has, so you're better prepared for what ever lies ahead.
And if her care gets to be too much for you, make sure you're either hiring some in home help or look into placing her in the appropriate facility, where she will receive the care she requires and you can get back to just being her loving husband and advocate.
I wish you both well.