My mother (91) lives with me. She is wheelchair bound, stage 6 dementia as well as heart and kidney failure. She complains about her eyes. She has a bad cataract in her right eye, but can see out of her left eye. She sleeps 20 hours a day. My sister who lives 2,000 miles away thinks I should have her cataract removed and mom agrees. Suggestions on how I tell my mom it isn’t going to improve her quality of life? I don’t want to put her through the surgery. She doesn’t read and has no interest in any activities. She can see the TV but doesn’t stay awake to watch it. Thanks.
Not my agenda either but my cousin was in great health, no wheelchair, no walker, no dementia, no major issues. She was able to enjoy life!
Her body just gave out at 101!
Most people aren’t so lucky as she was.
If unable to read or watch tv due to lack of vision only - yes.
But if unable to read or watch tv due to brain (cognition changes, mental &/or physical fatigue) well, it isn't going to improve QOL as you have pointed out.
Your sister may mean well, want the best for Mom, have heard it's a simple surgery etc but is she looking at the bigger picture?
Does your sister bake? Maybe she could bake Mom a nice cake instead (only half-joking). If she wants to bring cheer to Mom, she can find a different way. Maybr sit & read books to Mom instead.
Too bad, though, because cataract surgery takes maybe 15 minutes and you're on your way home. I don't think she could follow the instructions and follow-up care, though.
If I were 4 years older with dementia, other life-threatening health issues, on palliative care, and already sleeping 20 hours/day, it's a strong possibility that I would derive no benefit from cataract surgery. If I had the capacity to choose, surgery would probably not be my choice. However, everyone is different, and improving quality of life may be a consideration. My surgery did not involve full anesthesia, but I did need to understand and follow the post-surgery procedure.
I just love how you say that you are only 87! You remind me of my cousin who lived to 101!
She was our ‘energizer bunny’ in the family. She always looked towards the future, went on many trips, out to lunch with her friends, etc.
She read a million books during her lifetime and was an absolute delight to spend time with. I never, ever saw her as an ‘old lady’ because she was so young at heart!
She died not that long ago. I miss her terribly.
Yet I wasn't 91 and slept 20 hours a day. I could see considering it being done if she was not sleeping so much. Why exactly does she want it?
Ignore your sister. Someone not caregiving Mom has nothing worth listening to.
I was legally blind in my left eye to do a different type of cataract. My right eye had a typical cataract that was due to normal aging. I had excellent results from my surgery. 20/20 vision in both eyes.
When I told my ophthalmologist that she really worked her magic on me, she said, “You are the exception to the rule because many people will need glasses for reading.
It seems like I read something about an age limit for cataract surgery to be successful. I could be wrong about that. It’s worth talking to the doctor to find out if she can be helped by having the cataract removed.
My surgery was finished in 15 minutes! The anesthesiologist asked me if I liked music. I said, Yes, I do.
He said, “Great! I will play some music for you and after a few tunes, everything will be over.” It was completely painless. They scheduled the second eye surgery to remove the remaining cataract and I could see perfectly.
Wishing you all the best.
I disagree that cataract removal wouldn't improve your mom's quality of life. She may not read because she can't, due to the cataract. TV watching must be difficult with a cataract. Stage 6 dementia is serious stuff, but she may be declining cognitively because she can't see well. Hearing aids and good vision correction are necessary to prevent acceleration of decline, according to my DH's doctor.
I'm not saying she should have the surgery, not saying she shouldn't, but I do think you should confer with the ophthalmologist who would do the surgery before you completely rule it out. That's probably the best place to look for guidance in your mom's situation.
If anything the OP may need to get hospice on board since her mom is sleeping 20 hours a day. Sleeping that much is often a sign that end of life is near.
Also, after the surgery there are many different eyedrops she needs to have for about 2 weeks and the dosages and types change almost every day, so it is complicated for the caregiver.
She needs to be able to lie still during the surgery because in my experience they don't put you out completely. Then she cannot rub her eye at all afterwards.
I personally would not attempt it.
She doesn't get a vote in this. It isn't her FAULT she is 2,000 miles away and disconnected; but it IS a fact.
IF your mother can go through this surgery without it being a catastrophy (such as itching at newly operated eye CAN and likely WILL be-- I think any MD would concur) then the decision is hers to make UNLESS you as her POA realize that she is no longer CAPABLE of making this decision. She is only risking the loss of site in an eye that can already not see in a body that is, I think you recognize, failing now.
I wish you the best. This is your mother's decision if she can make it.
But fact she is sleeping twenty hours a day sounds as though she is not thinking clearly about this.
AND if she cannot make it, then it is your decision. For me that decision would be NO. But I am not you.
Your sister should never have been brought into the discussion at all until it was scheduled or mom talked to her about it. Too many decisions from those who really cannot judge something adds confusion.
Like I am doing.