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On 12/20/2023 my 84 year old mother had a large stroke with onset atrial fibrillation. The stroke left right side paralysis but she was moving the left side. A few days after the stroke she had bleeding on the brain after which we noticed that she wasn’t moving her left side anymore.
She seems to be in a coma like state, she’s not responding just eyes open from time to time. The doctors said there’s nothing more they can do. The day before the stroke my mother was at bingo and lived independently. I decided end of life care with hospice but find myself going back over if I made the right decision? My mother didn’t want help even if she needed help, you would have to help her anyway. She rarely called for anything and was active in church, went to stores and got around pretty good. She didn’t have advanced wishes in place so I based my decision on how she lived her life.

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Oh, you did. From how you described your mom, you actually have HONORED her and her life.

May God hold you close as you walk this road with her.
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blberry Jan 7, 2024
🙏🏽🙏🏽🙏🏽
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Since the doctors said there is nothing more medically that can be done for your mom, what other choice is there but hiring hospice to keep her comfortable? Hospice is not going to kill her......her heart will stop beating when the time is right. If she's meant to live longer and heal, she will. Only God knows when it's time for us to pass, so this decision isn't really in your hands but in His. That's how I thought of it when I hired hospice for my parents.

All the best to you at this difficult time.
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blberry Jan 8, 2024
Thank you, your words of encouragement really touched me.
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Yes, you did.
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blberry Jan 7, 2024
Thank you.
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Given your famliarity with your Mom and seeing the aftereffects of the stroke and consulting with doctors... you made the best possible decision given the circumstances and available information.

Do not feel guilty. Feel grief, but not guilt. I'm so sorry for your loss. May you receive peace in your heart and be comforted by memories of your time with her.
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blberry Jan 7, 2024
Thank you so much this is helpful.
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You made the right decision.
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blberry Jan 7, 2024
Thank you.
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You absolutely did! I'm 87 and have my EOL wishes down in writing but, if I didn't, I would want my family to do exactly what you did. Exactly. There's a HUGE difference between living and existing. It's probably obvious which one I'd vote for.
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blberry Jan 7, 2024
Thank you.
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The situation is extremely familiar to me. My mother had a brain bleed stroke, minutes after being just fine and having an ordinary day living an independent life. She looked at my dad and said she didn’t feel well and boom, it all changed. She slept a deep, coma like sleep afterwards for 3 weeks. The difference was our family had multiple doctors, including the best neurologist in the area, telling us there was great hope of recovery. This was prior to easy access to an internet and quickly being able to do research. We were told she needed a feeding tube to get her over the time before she could begin therapy to get back to normal, so in went the tube. After 3 weeks, she woke and was transferred to rehab. She had lost every physical ability but was mentally completely intact. She worked valiantly in therapy for months to no avail. Even the therapists were tearful when they told us that therapy had to be discontinued for lack of documentable progress. It was and remains the cruelest thing I’ve ever witnessed. My mother lived for four years in a body that would do literally nothing. How she did it, I will never know. I have no doubt of her misery. Her care was intense, a two person assist for everything. There was no “plug to pull” and as she was fully cognizant and aware, there certainly wasn’t anyone who was going to remove her feeding tube. Given the situation you’re facing, and knowing what I saw with my mom, no doubt both my mom and I, along with our whole family, would choose the gift of letting her go. You have made the compassionate and selfless choice and your mother is blessed to have you there to do so. There is no room for guilt, just gratitude for the life she’s lived. I truly wish you both peace
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blberry Jan 7, 2024
Thank you for sharing this information.
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You are doing right by your mom.
Sorry for your impending loss .
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blberry Jan 7, 2024
Thank you, I appreciate it.
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Yes. I can only wish that the two of you had discussed things so you would/could be more certain in your own mind. I am an old nurse, so at 81 you can imagine my 61 year old daughter has heard all of my wishes in this regard most thoroughly. And she would be certain that what YOU have done is exactly what I would wish. To live a good life, and then go so quickly and without struggle, without dementia, without loss upon loss upon loss.
Yes, in my humble opinion you have made the most loving, most strong, best decision on earth for your mother. My condolences. There would be no coming back from this to anything that is any quality of life.
Bless you for your strength in honoring what you know is right for your dear mom. She'll always be with you; I guarantee it.
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blberry Jan 7, 2024
Yes I wish we had that discussion. You have some family that disagree but they are not looking at this as I am. I am going to encourage my family to make sure they have their wishes outlined and notarized. Thank you so much.
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Please don’t question your decision.

You know your mother and the way that she lived her life. You absolutely made the correct decision.

I am so sorry that you are going through this. Wishing you peace as you continue on this difficult journey.
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blberry Jan 8, 2024
Thank you so much.
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