MK gave a hug
2/23/2010 at 5:37 pm

Oh, Yvonne! That's a good one, yes, I've heard it. Have you heard these? "Oh, you'll manage, you are so strong" or "remember, you have to take care of YOU" (a personal favorite) or "It will get eas
...Read MoreOh, Yvonne! That's a good one, yes, I've heard it. Have you heard these? "Oh, you'll manage, you are so strong" or "remember, you have to take care of YOU" (a personal favorite) or "It will get easier for you as time goes by" or "I know just how you feel" or "have you thought about hiring a live-in?" or "I don't know how you do it". Then there are those who want you to hear about the facility they know of where the patient could get such good care. I think that what happens is that we really like some of these people we talk to about our life, and it disappoints us to discover that they are probably scared this sort of thing could happen to them, and they are uncomfortable acknowledging that possibility even to themselves. So they mutter something they think is an original thought. they really don't get it.
I long to hear the one who "gets it". I wait for that one. She will say "I have a couple of hours Saturday. I want to come and have you put me to work, or take you where you would like to go, or stay while you do as you like, even nap." So far, that person doesn't exist for me, but I hope she finds you. In the meantime, know you are not alone in this, we got yur back, Sister. Mind the previous advice. Keep kicking. Don't give up. Keep networking. One benefit is that the more you share the more likely you are to find someone who has experienced similar issues and found some help or answers. I try to be that person to others, and even that helps a lot.
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